O/T For my pals re: husband's lymphoma UPDATE

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

O/T For my pals re: husband's lymphoma UPDATE

Postby Bev G » Wed Aug 13, 2014 1:08 pm

Copied from my FB:

!00 days post stem cell transplant is the most critical time point in the whole procedure. Steve reached that milestone this week and had his follow-up PET/CT yesterday. We just returned from his doc appointment at Dartmouth. The PET/CT was all clear for cancer. the next scan will be in 6 months, but in the meantime most of the immunosuppressed restrictions have been lifted. He is back to about 50% functional. The doc expects to release him to return to work (where??!??) in October! He has a 40-60% recurrence risk over the next 2 years, but our doc (in Pittsburgh) "certified" that he would pass in 6-12 months last September, so wow! Just WOW!
My scan is tomorrow. My cancer marker has been up for 6 months, so fervently hoping the bastard isn't back this close to my five year mark. It is what it is though, huh? I had a 6% chance of making it to 5 years (this December) when I was diagnosed, so whatever it is, I've gotten a lot of unexpected time.

Thank you, my friends here, for your wonderful and unwavering support as I have slogged with Steve through his lymphoma diagnosis and treatment.

Love you all,

Last edited by Bev G on Fri Aug 15, 2014 7:38 am, edited 1 time in total.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: O/T For my pals following my husband's lymphoma

Postby so-scared » Wed Aug 13, 2014 1:11 pm

Wow! That is just amazing, Bev!

I pray that you will get a great report from your scan too!!!

DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
HAI pump 12/12
Had to leave 5/23/14

Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: O/T For my pals following my husband's lymphoma

Postby Badass » Wed Aug 13, 2014 1:43 pm

Bev, when I think back to just a few short months ago, I am STUNNED by this amazing news about your husband! i hope you feel a strong sense of accomplishment for all of the effort you exerted on his behalf including moving to Vermont! I am sending you my deepest wishes and best vibes for a perfect scan and then a good long time ahead for you and your husband to enjoy your new life in beautiful Vermont.
Jane (Rusuja)
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

User avatar
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: O/T For my pals following my husband's lymphoma

Postby ziggymonster » Wed Aug 13, 2014 1:45 pm

I will pray for good scan results.....you deserve a life time break from all this cancer sh*t
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: O/T For my pals following my husband's lymphoma

Postby Kathy » Wed Aug 13, 2014 4:43 pm

Great news Bev! I t is about time you got a break. Now please take care of yourself!

Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

User avatar
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: O/T For my pals following my husband's lymphoma

Postby Voxx66 » Wed Aug 13, 2014 4:46 pm

Very glad he is better. Now tell him to be nicer to you or I will have to have words with him...ha
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
10/14 mets lung and peri
1/15 Folfiri

Posts: 187
Joined: Sun May 19, 2013 3:06 am
Facebook Username: Sharon Rauch

Re: O/T For my pals following my husband's lymphoma

Postby Sharona » Wed Aug 13, 2014 6:19 pm

So glad to hear the good news, Bev! Praying that you have good news as well. You deserve a break.
Hope that now that Steve feels better his disposition will change as well.
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
FOLFIRI, FOLFIRI, avastin, Zaltrap
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15

Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: O/T For my pals following my husband's lymphoma

Postby Delinda » Wed Aug 13, 2014 6:47 pm

That is so great Bev! You certainly deserve excellent results for yourself as well. I will be praying for you until we hear from you. You give SO MUCH to all of us, on top of supporting Steve, that you have earned a special halo - butt no for many, many years. We love you Bev & hope this puts hubby in an appreciative, loving state of mind. Swingin' for you Hon. :D XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: O/T For my pals following my husband's lymphoma

Postby Stanfordmom » Wed Aug 13, 2014 8:05 pm

You are such a strong lady, having to go through your cancer journey and your husband's.

I am so happy for your hubby's scan results. Also best of luck to your upcoming scan results!

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

justin case
Posts: 4266
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: O/T For my pals following my husband's lymphoma

Postby justin case » Wed Aug 13, 2014 8:09 pm

What Voxx said!
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: O/T For my pals following my husband's lymphoma

Postby vickitwo » Wed Aug 13, 2014 8:24 pm

Thanks for the update. I was wondering how Steve's recovery was going. I will be swinging some poultry that you have good news from your scan.
PS I loved your recent post about the religion, democrat/republican thing. You are a real gem and I am so glad that you are here on this forum. :D

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
radiation tx to L5 and hips
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: O/T For my pals following my husband's lymphoma

Postby jean60 » Wed Aug 13, 2014 9:00 pm

Amazing news, Bev! I am sending positive thoughts for your scan.

Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

Posts: 57
Joined: Sat Jan 14, 2012 10:55 pm

Re: O/T For my pals following my husband's lymphoma

Postby LurkingWife » Wed Aug 13, 2014 9:09 pm

So glad to hear the good news! And your scan will be great. Take solace in the fact that 5 year survival rates are actually more like 40-60% if you have stage IV with resectable liver mets. Surgery is truly the hope for cure with this beast, and you've done so well.

Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: O/T For my pals following my husband's lymphoma

Postby skypup » Wed Aug 13, 2014 9:14 pm

Second what Voxx said, and hoping and praying to get equally good news for YOU!

Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: O/T For my pals following my husband's lymphoma

Postby SkiFletch » Wed Aug 13, 2014 9:47 pm

Wow, incredible compared to how things seemed 100 days ago...

Will send thoughts, prayers, and swinging chickens for your scan.
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: DCook54, ginabeewell and 4 guests