BrownBagger Update

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Re: BrownBagger Update

Postby jgall » Mon Aug 11, 2014 7:23 pm

Great news. So glad to hear it. When you're in the game for this long, stable is awesome!

I hope you look me up one of these times you're here!
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15

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Re: BrownBagger Update

Postby ams5796 » Mon Aug 11, 2014 7:36 pm

Great news, Eric!

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Bev G
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Location: Quechee, VT

Re: BrownBagger Update

Postby Bev G » Mon Aug 11, 2014 7:41 pm

Such good news, Eric. Way to go, and keep going and going, friend. I am very happy for you.


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: BrownBagger Update

Postby vickitwo » Mon Aug 11, 2014 7:51 pm

Glad to hear the wonderful news! :D

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
radiation tx to L5 and hips
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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Re: BrownBagger Update

Postby JAZZToo » Mon Aug 11, 2014 8:04 pm


Congrats - stable is music to our ears!
I was at 53d St. Today getting my second FOLFIRINOX infusion. I would have liked to have met you - I was on the 7th floor waiting for a 2:15 treatment that was delayed over two hours. Does this place ever run on time? Last week was over an hour late. The only bright side was that after 7pm parking on the street is free and I wasn't picked up by DH until 7:30.

Lynch Syndrome
2014. Pancreatic cancer Stage IV
2003. Colon cancer Stage III
1995. Endometrial cancer Stage I

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Re: BrownBagger Update

Postby ziggymonster » Mon Aug 11, 2014 8:26 pm

Great news, stable is good!!

A few nice gestures to the "good" clinicians is always a good idea.... to my special docs I will bring a decent bottle of wine once a is always well received. Also I bring the male nurse that does my quarterly Lupron injection different kinds of craft beer to try I try to make all of them feel good and it makes me feel good!!l
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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Re: BrownBagger Update

Postby BrownBagger » Mon Aug 11, 2014 8:29 pm

jgall wrote:Great news. So glad to hear it. When you're in the game for this long, stable is awesome!

That's pretty much the way I look at it. I have a history of stable/slow-growing tumors, so I'm hoping the current crop is the same. Seems to be, although I'm up to my eyeballs in chemo, so presumably, that's keeping the disease more or less under control. I could easily accept living with a chronic condition for the next 20 or 30 years. But, as we know, that's not likely, though we also know that every case is unique.

Thanks to everyone for their encouraging posts. I've been busier than a one-armed paper hanger lately--both professionally (mostly) and personally--so I haven't contributed as much as I'd like. But that's probably a good thing, on balance. I like to stay busy.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Joined: Mon Dec 17, 2012 12:12 pm

Re: BrownBagger Update

Postby skypup » Mon Aug 11, 2014 8:30 pm

Eric, that is great news! Stable for so long = FANTASTIC! Keep doing what you're doing. :D

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Re: BrownBagger Update

Postby SFLwife » Mon Aug 11, 2014 9:08 pm

Great to hear Eric! I love updates like that.

Wife & BFF DH 56 yo. DX 10/12
Chemo and trial
Tons of chemo
10-15-13 Gone with peace and much love... ... y-96542543

"I get by with a little help from my friends"

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Joined: Mon May 05, 2014 6:33 am

Re: BrownBagger Update

Postby Valorie » Mon Aug 11, 2014 9:22 pm

Wonderful news Eric!
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

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Re: BrownBagger Update

Postby mymom » Mon Aug 11, 2014 9:39 pm

I am so happy for your results.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

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Re: BrownBagger Update

Postby midlifemom » Mon Aug 11, 2014 9:55 pm

Good news Eric, you must be doing the right things. (Or the right veggies!)
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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Re: BrownBagger Update

Postby lohidoc » Mon Aug 11, 2014 10:04 pm

Good news, glad to hear it. And I do think veggies are a better way to pay for cancer treatment. Maybe the next component for Obama care?
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours

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Re: BrownBagger Update

Postby weisssoccermom » Mon Aug 11, 2014 10:26 pm

Congratulations on the good scan news, Eric. You've really been an inspiration to so many people on this board with your great attitude and the way you continue to live a 'normal' life considering all you've been through.
Obviously the best thing would be to have a scan where all those nasty lung thingies would just disappear forever, but short of that, you're quite right....STABLE is fantastic! Keep up the good work!
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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Joined: Thu Jan 03, 2013 11:44 pm

Re: BrownBagger Update

Postby kiwiinoz » Mon Aug 11, 2014 11:17 pm

Damn good news and I have been waiting on the update as you had been noticeably absent recently. I guess you were just too busy in your garden.
Love the good news, and love that you are still gardening :D
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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