At that point: clinical trial or hospice

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Posts: 624
Joined: Wed Apr 14, 2010 7:37 pm
Location: Raleigh, NC

Re: At that point: clinical trial or hospice

Postby beccab1 » Wed Aug 06, 2014 8:22 am

Sorry to hear this news and thinking of you both.
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: At that point: clinical trial or hospice

Postby Bev G » Wed Aug 06, 2014 10:13 am

Thinking of you and Dick today, Kathleen. It's so good to hear that some of your family is there. I hope you have no problems as a result of the storm. Sending wishes for all peace, and for comfort.


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 789
Joined: Wed Nov 23, 2011 10:46 pm

Re: At that point: clinical trial or hospice

Postby hart2hart » Wed Aug 06, 2014 1:46 pm


We're simply heartbroken to read this news.

We're also hoping a clinical trial is available for your precious husband Dick.

Lots and Lots and LOTS of hugs for both of you,

Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - To Current

Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: At that point: clinical trial or hospice

Postby gep » Wed Aug 06, 2014 9:35 pm

Haven't been reading lately. Was so saddened to see your post. It's hard to make the shift from aggressively seeking/getting treatment to just letting things take their course. Give him some hugs and the words you want him to take with him on this leg of the journey and get some words for yourself and your kids to help you go through this and for afterward, whenever that comes.
Hugs for you, Dick and your family.
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

Posts: 121
Joined: Sat May 25, 2013 6:46 pm

Re: At that point: clinical trial or hospice

Postby SFLwife » Wed Aug 06, 2014 11:39 pm


I am so sorry to hear about Dick. He sounds so much like my Richard. He handled things so well, many didn't realize he was on chemo until it finally caught up with him and he weakened the last couple of months. We found, once he got weak, the chemo treatments were doing more harm than good. I wish we had stopped sooner. The chemo just weakened him so much in the end, he lost his strength to battle back.
I so agree with what Helen and the others who lost their loved ones said: have your daughter come home and spend as much time together. Tell him everything you want to say now. Express as much love to him as you can. But do have your daughter come home.
We were fortunate our sons were both home the last week before my husband died. We didn't know the end was coming until just the last few days. My son tells me now that he is so glad he didn't go to work, and he stayed by his dad overnight, all night, the day before he died. He said those hours were so important to him and he carries those memories with him now that his dad is gone. Please make sure your daughter has those memories and not regrets instead.

I am sending many hugs and prayers your way.
Wife & BFF DH 56 yo. DX 10/12
Chemo and trial
Tons of chemo
10-15-13 Gone with peace and much love... ... y-96542543

"I get by with a little help from my friends"

User avatar
Posts: 2719
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: At that point: clinical trial or hospice

Postby dianetavegia » Thu Aug 07, 2014 6:53 am

Kathleen, Dick and I were dx'd at the same time and I've kept up with his great adventures and your family for the last 5 1/2 years. I always was so hopeful that a new treatment would rid his body of all cancer and he'd live many many fun filled years. I'm sorry it's turned out this way but I wanted you to know what an inspiration he has been to so many.

Praying for comfort, painless days and lovely visits with friends and family. I'm also thankful that Dick is a Christian so you know you'll all be together in heaven some day.

Big hugs my friend and continued prayers for Dick and the family.
Stage III cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage PET = 1.5cm liver met. HR 4/11/12 No chemo

11 years since dx and 7 1/2 years post liver resection.
Pronounced CURED

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: martd and 25 guests