Cherie36 wrote:I'm just about to have surgery to have mine removed and I feel like I'm making the biggest mistake in the world.
A reversal is rarely easy, Cherie, but most people seem to get through it OK.
Hi, i'm Teddi
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BrownBagger
- Posts: 7954
- Joined: Fri Jul 24, 2009 2:56 pm
- Location: Central NYS
Re: Hi, i'm Teddi
A reversal is rarely easy, Cherie, but most people seem to get through it OK.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.
Re: Hi, i'm Teddi
Welcome to the board Teddi. You can find a lot of support here.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
Re: Hi, i'm Teddi
Hello Teddi,
So sorry you need to be here but you will find lots of support. I had the same dx you do and I've had the bag and the reversal, successfully I might add. And I was initially told there was no way that would happen.
. "There's a member on this forum, Weissoccermom, who has compiled an excellent compendium of advice tailored to women. I hope she'll be along shortly to pm it to you, but if not, do look her up and ask her for it. Radiation can have unintended consequences for your lady parts--and it can be mitigated, but don't delay."
Just wanted to second the quote above, I wish I had done more searching about radiation because no one talked to me about what could happen and now I have to deal with the consequences of that. Weissoccermom is a fantastic resource here and I am glad to be available to you for whatever.
Jean
So sorry you need to be here but you will find lots of support. I had the same dx you do and I've had the bag and the reversal, successfully I might add. And I was initially told there was no way that would happen.
. "There's a member on this forum, Weissoccermom, who has compiled an excellent compendium of advice tailored to women. I hope she'll be along shortly to pm it to you, but if not, do look her up and ask her for it. Radiation can have unintended consequences for your lady parts--and it can be mitigated, but don't delay."
Just wanted to second the quote above, I wish I had done more searching about radiation because no one talked to me about what could happen and now I have to deal with the consequences of that. Weissoccermom is a fantastic resource here and I am glad to be available to you for whatever.
Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Re: Hi, i'm Teddi
Well said chixter!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
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lemonzinger
- Posts: 42
- Joined: Sat Mar 01, 2014 1:12 am
- Location: San Francisco, California
Re: Hi, i'm Teddi
Welcome, Teddi!
My tumor was very low also -- I had a great response to chemoradiation and there was actually no tumor left when my surgeon did the LAR --- just scar tissue. I know you are at the beginning of a long road, but you can get through it! Hope you find lots of support and good tips here.
When I was doing the chemo radiation, my radiation oncologist suggested using a natural ointment - Calendula cream. The brand that they gave me was Boiron. I think it was very helpful for "butt burn" from the radiation. Also helpful were baths with a little lavender oil.
My tumor was very low also -- I had a great response to chemoradiation and there was actually no tumor left when my surgeon did the LAR --- just scar tissue. I know you are at the beginning of a long road, but you can get through it! Hope you find lots of support and good tips here.
When I was doing the chemo radiation, my radiation oncologist suggested using a natural ointment - Calendula cream. The brand that they gave me was Boiron. I think it was very helpful for "butt burn" from the radiation. Also helpful were baths with a little lavender oil.
Rectal, dx 9/2013 (age 38)
Stage 3b T3N1M0
5 wks radiation w/ 5FU
LAR & temp ileo 1/2014 - 0 of 20 nodes
8 cycles FOLFOX - finished 6/2014
Ileo reversal 8/2014
slightly enlarged lymph nodes in original tumor area - stable since 2015
NED - clear scans 3/2018, 6/2019
NED - Clear colonoscopy 10/2019
Stage 3b T3N1M0
5 wks radiation w/ 5FU
LAR & temp ileo 1/2014 - 0 of 20 nodes
8 cycles FOLFOX - finished 6/2014
Ileo reversal 8/2014
slightly enlarged lymph nodes in original tumor area - stable since 2015
NED - clear scans 3/2018, 6/2019
NED - Clear colonoscopy 10/2019
Re: Hi, i'm Teddi
Thanks so much for the warm welcome. It comes at a good time be cause I am feeling a bit defeated at the moment. Had to pop my first pain pill today. Not sure how I'm going to face the next 2 weeks, but I suppose I will.
Teddi
Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
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michelle c
- Posts: 1929
- Joined: Wed Dec 02, 2009 3:58 am
Re: Hi, i'm Teddi
Hi Teddi,
A warm welcome to you - sorry you need to be here but glad you found us. This place is a great place of support, advice and encouragement.
Hugs for you xx
A warm welcome to you - sorry you need to be here but glad you found us. This place is a great place of support, advice and encouragement.
Hugs for you xx
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair
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