OK, Kids. Come out of the closet. What do you guys do?

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Bev G
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Location: Quechee, VT

OK, Kids. Come out of the closet. What do you guys do?

Postby Bev G » Wed Jul 23, 2014 3:48 pm

Anyone who is willing to say, and of course you certainly don't have to, what do/did you do in your work life? Trying to think through getting our incredible COLON CLUB FIRST ANNUAL BARBECUE together, which I am hoping the awesome PAULA DEEN will help sponsor. I think we'll need some expertise in public relations/publicity, probably legal, fundraising, organization, kissing-up (:-) )---stuff like that. I've always known we have many, many creative and brilliant people on this board, but don't know what other than a very few do "in real life".

Anyone feel like sharing? Anyone who hasn't checked in on the idea in general feel like doing so?


Love to all,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby justin case » Wed Jul 23, 2014 4:16 pm

well, I'm printing and folding a 72 page booklet for a Kentucky bottle convention, and will stitch and complete that book tomorrow. I'd kind of like to go to that, as there is a guest speaker called Mr. Bourbon, by his tradespeople. Whoops have to save my vacation for something cancer related, I'm sure :x
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

kimanne
Posts: 44
Joined: Sat Sep 03, 2011 10:47 pm
Facebook Username: kim.garner.goodrich
Location: Rochester, NY

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby kimanne » Wed Jul 23, 2014 4:21 pm

Well, I am a mom to 5 kids (1 infant girl has passed...) and keep busy extending advice that no one wants and picking up after people (when I have the energy). Always wanted to be a stay-at-home-mom and I am/was.
DX 11/10 st 3 at 45 yr
Folfox 1-4/11
Rad 5/11
6/11 Scan - Primary gone 2 LN-St 4
Folfox Avastin 8/11
Rad 10/11
1-12/12 Folfiri Avast
3/12-12/12 Scans,shrinking
1/13 5FU&Avastin
4/13 Avastin only-stable
5/14 STROKE
7/14 Recurrence
8/14 APR

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby midlifemom » Wed Jul 23, 2014 4:25 pm

Sorry, I work for the state helping doctors' offices with regulations. Can't see any PR type help there.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby Ron50 » Wed Jul 23, 2014 4:43 pm

I have been a sewing machine mechanic all of my life (since I was 13 ,now 64) One of my friends commented one day that I must be brilliant at public relations not to be killed or at least severely maimed by an angry lady whose sewing machine I had not been able to ressurrect. He said you are too fat to out run them so you must have the gift of the gab...it is a pity I live in Australia. I would dearly love to meet some of the wonderful people I have met on cancer forums. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby jvaime21 » Wed Jul 23, 2014 5:13 pm

Oh its a brilliant idea Bev,. I really want to meet you and some member here.,but unfortunately I can't fly there., and too busy taking care of 2 sick people in the house.

Best regards..

aime
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby justin case » Wed Jul 23, 2014 5:28 pm

Ron50 wrote:I have been a sewing machine mechanic all of my life (since I was 13 ,now 64) One of my friends commented one day that I must be brilliant at public relations not to be killed or at least severely maimed by an angry lady whose sewing machine I had not been able to ressurrect. He said you are too fat to out run them so you must have the gift of the gab...it is a pity I live in Australia. I would dearly love to meet some of the wonderful people I have met on cancer forums. Ron.

I have a wonderful new machine! I t can gather 6 pockets of book material, put a cover on it, and do some stitching(that's the 2 staples that hold it together)and it can run up to 9,000 books an hour, it takes 6 people to operate, but I only have 2. The ladies I am currently working with, have resigned themselves to the proverbial sailor's language :shock: I will trade vocations at any given moment :wink:
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby Badass » Wed Jul 23, 2014 5:44 pm

HI Bev,
Interested in the BBQ gathering-- first I have heard of it. What can you tell us about it? Great idea!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby Badass » Wed Jul 23, 2014 5:46 pm

Never mind, found the thread! :roll:
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby Val*pal » Wed Jul 23, 2014 6:00 pm

Bev, great idea! I'm a teacher/social worker, but I have had a lot of experience in the nonprofit world and we're always asking for money! Just let me know.

Val
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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raym
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Joined: Sat Apr 16, 2011 11:08 am
Location: South Central PA

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby raym » Wed Jul 23, 2014 9:02 pm

I'm a software developer. For the past 22 years have been working in the health care arena for a company that develops diagnostic instrumentation for microbiology labs.
3/11 IIIC +/FOLFOX
4/12 HIPEC
6/12 Chmo/Rad
9/12 XELIRI+Avast/Zltra
9/13 Plvic Absc,stpd chemo
11/13 Tumr rmvd frm Lap Port incis
12/13 Xeloda
1/14 Cardiac Issue no Xeloda/5FU
3/14 Irinotecan
6/14 Stopped chemo
8/14 Clin Trial
9/14 Infectn - Stpd Trial

hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby hart2hart » Wed Jul 23, 2014 9:23 pm

Pete is an architect who happens to be an amazing cook. Like AMAZING ---Could have his own Restaurant In
Connecticut (no kidding) but he tells me that it would be too much work and no fun at all.

Stamford, Ct is 45 Min from laguardia - And we have a few hotels with 10 - 15 minutes walk of our home.

Just saying.......Plus Mymom and greenmonkey live close by to help! LOL



Julie H
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020

sjring
Posts: 181
Joined: Mon Jun 30, 2014 3:16 pm
Location: Philadelphia, PA

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby sjring » Wed Jul 23, 2014 11:11 pm

I am the director of financial analysis for an early stage clinical research organization and have held various finance and accounting positions in that space for the past 14 years.

I am also a board member for the local boys & girls club (I was until recently their treasurer, webmaster, took their newsletter program and converted it to an e-news letter and nominally served as a baseball coach - I handled scorekepper duties and smacked some heads when the kids got out of line on the bench during games). I stepped back from a large chunk of those responsibilities since diagnosis, but I still handle the e-newsletter and serve on the board.

If you decide you want to hold this event in the suburban Philadelphia area, I can obtain the Club's hall for a very nominal fee.
50 YO Husband & father of 2 teenagers.
DX 9/9/13 Stage 4 cc (at age 48)
16 Rounds FOLFOX + Avastin (Oct-13 to May-14)
Maintenance chemo - Avastin & 5-FU infusions (Jun-14 to Jul-15)
Jul-15: Mets to lymph nodes, resuming FOLFOX
Sep-15: MRI showed stability, back to maintenance chemo.

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby SkiFletch » Wed Jul 23, 2014 11:56 pm

For most of my post-collegiate life I was a technician at a special environments research facility (think SCUBA diving, deserts, arctic, high altitudes, etc). We tested the limits of human performance as well as equipment and programs to enhance that performance in those special environments. One heck of a fun job. Alas, a combination of funding shortfalls and politics lead to the closure of that lab entirely.

Now I work for the School of Medicine as a "Laboratory Equipment Systems Designer." We service medical laboratory equipment and create unique technical and engineering solutions to support research at the School.
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

jacekica
Posts: 733
Joined: Sun Aug 05, 2012 12:43 pm
Facebook Username: jasminka marout

Re: OK, Kids. Come out of the closet. What do you guys do?

Postby jacekica » Thu Jul 24, 2014 1:39 am

I am biologist in molecular diagnostic lab at nuclear medicine ward.
Dx 2/11
surgery 5/11, T2N0MX, G2, SRC rectal ca, 22 cm removed
CT- numerous mets in abdomen - LN, 2 big ones on pancreas, one penetrated right urether. Surgery, they just take samples for PHD, 6 roundds 5FU, refuse further chemos


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