Eight Years Ago Today

Please feel free to read, share your thoughts, your stories and connect with others!
weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Eight Years Ago Today

Postby weisssoccermom » Sun Jun 22, 2014 11:35 am

I've started this topic a few times...not really knowing what to say. I think it's fair, however, to say that when anyone hears those words 'you have cancer'....it throws you into a new realm...one which we don't welcome but we are a part of nevertheless.
Cancer can and does wreak havoc on our lives. It robs us of our privacy, changes who we are and how we look at life and forces us to allow others to sometimes be in control. Sometimes we 'lose' our friends and family members but other times, we gain so much more. Had it not been for this forum and the friendships I have made on this board, I'm not sure what I would have done.

I didn't join this board until after all my treatments were finished but wished that I had. It's hard to go through all of this alone without anyone to ask questions of and just vent/cry with. Along the way, I've made some wonderful friends and unfortunately, lost a few of them as well. However, I wouldn't have given any of it up for anything in the world.....what I have gained in knowledge and in personal growth is far beyond anything that cancer can throw at me.

When I found out that I had cancer, I set goals and I've achieved those. I taught Erik (youngest) how to drive and watched him graduate HS and set off to college.....and last May, I was there as he received his BS degree. I've seen my eldest son get married (but no grandmunchkins yet....argh!) and cried tears as my middle son moved first to Chicago and then later to Philly.

I'm not sure why I'm traveling down memory lane...but just wanted to say thank you to all of you on this board for allowing me to be a part of this community. I owe a debt of gratitude to all of you and a very special thanks to those who have traveled down this road before me who have imparted immense wisdom to me. I miss many old members....Brady, Pammy Sue, Mary Galaen, John603, Traveler, Starbuck, Justsing, KarMel, Jessica, Ashlee, Lauren and of course, my best friend, Terry.

Thank you all for being here and remember that cancer may be a part of your life but it doesn't define who you are as a person.
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Eight Years Ago Today

Postby skypup » Sun Jun 22, 2014 2:02 pm

Congratulations on another good anniversary, and thank you for hanging around with us and sharing your knowledge and optimism!

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: Eight Years Ago Today

Postby SkiFletch » Sun Jun 22, 2014 9:59 pm

Amen and congrats on 8 years :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

User avatar
chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Eight Years Ago Today

Postby chrissyrice » Sun Jun 22, 2014 10:15 pm

Jaynee,
I come here almost everyday since I joined too. I will be NED for 4 years after chemo on August 1st and with each year I realize more and more the many ways cancer has changed my life.
So much of what you have said is true for me as well.
We have lost so many dear ones that have helped me and I continue to find others that join and give me hope.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

User avatar
horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: Eight Years Ago Today

Postby horizon » Mon Jun 23, 2014 8:18 am

Wow, I found myself myself nodding my head in agreement for your whole post.

Congrats on your milestone!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

User avatar
beccab1
Posts: 625
Joined: Wed Apr 14, 2010 7:37 pm
Location: Raleigh, NC

Re: Eight Years Ago Today

Postby beccab1 » Mon Jun 23, 2014 3:00 pm

Congrats! :)

I remember when I was asking a million questions and you took your time to give me invaluable info. regarding radiation. You've always been a great source of info. and support for so many here.
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Eight Years Ago Today

Postby NWgirl » Mon Jun 23, 2014 3:44 pm

You've been a tremendous help to so many here. I'm so glad you're still around to share your experiences and advice. :mrgreen:
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Eight Years Ago Today

Postby Ajane » Mon Jun 23, 2014 4:06 pm

Jaynee, congratulations on your eighth anniversary. You are such a blessing to this site. I'll never forget you how much you helped me days into hearing those awful words (it's hard to believe it'll soon be one year). I may not post very often, but nare a day goes by that I don't check in and check up on everyone here. I see you paying it forward all the time. :D
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Eight Years Ago Today

Postby Guinevere » Mon Jun 23, 2014 4:45 pm

Congrats on 8 years! I don't know what we'd do here without you. Reading about what you've gotten to witness with your kids made me smile because so many of us use those milestones as goals for ourselves as well.

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Eight Years Ago Today

Postby Badass » Mon Jun 23, 2014 7:46 pm

Jaynee, CONGRATULATIONS!!!!
:D :D :D :D :D :D :D :D :D :D
Wishing you many, many more happy, NED anniversaries!

Jane (Rusuja)
Last edited by Badass on Mon Jun 23, 2014 9:09 pm, edited 1 time in total.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Eight Years Ago Today

Postby weisssoccermom » Mon Jun 23, 2014 8:21 pm

Thank you all. This month has been a really tough month for me and I am about at the end of my rope. Hubby had back surgery on the 2nd and while I knew that I was going to be responsible for everything.....I guess I just didn't envision that lots of stuff would go 'wrong' in the ensuing three weeks! So, when I realized that yesterday was 8 years since diagnosis, well, I just started rambling and reminiscing. Sorry if I rambled....but I just got 'caught up' in all the emotions of the past three weeks and just let it all go. I do miss so many of the 'old timers' and don't like the fact that 'life goes on'. Sure, I know it does but it just seems wrong somehow.

To everyone on the board....I wish all of us lives, whether short or long, that are filled with happiness, the love of family and friends and most importantly a sense of peace that we have lived a good life and that in some small way, we have each contributed to the "betterment" of this universe. By experiencing all these things, we have all ultimately become better individuals and have left a wonderful and lasting legacy for our family and friends.

Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Eight Years Ago Today

Postby CRguy » Mon Jun 23, 2014 8:41 pm

Harmony …..and
Always on a Journey.

Just who we are and what we do here.

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Cured
Posts: 581
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Eight Years Ago Today

Postby Cured » Mon Jun 23, 2014 9:07 pm

Congratulations Jaynee!!!
You have performed a wonderful service for us!
May God heal your husband and grant you many years.
7-18 Stg 4
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radian+5fu Pre-Surg
FOLFOX 8 Cyc,1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing brain Remove
Met to lung. CEA 6.9
Folfiri
CEA 4.5 after 1 chemo
8rds CEA 3 1.8, 2.3,1.7 then up:32
12rd Folfiri
Avastin ev 2 wks
Seizure Anti-seiz meds work-no driving for 6m
4-20PET: Lng spots=Chemo
2-21 tumr gth =Folfiri
Radiation 7-22

Cathie
Posts: 78
Joined: Fri Mar 28, 2014 12:09 pm

Re: Eight Years Ago Today

Postby Cathie » Mon Jun 23, 2014 10:46 pm

Not too many years after my dx I had a high school friend call me and she kept saying "you poor dear" I found it strange that she said it because I was well on my way to victory and I had told her that I was well and had been for a few years at that time. I told her that cancer gave me more than it took away....she didn't get it. All she could say was "you poor dear." I had to hang up on her because she just didn't understand that it gave me my life back, it gave me a faith in the one and only true God, It gave me the chance to "stop and smell the roses" it gave me a stronger relationship with my kids and family. Yes it made me sick and I lost my hair and I looked like a ghost, but today I feel blessed beyond belief. I too have seen my children marry and my grandson graduate from high school and go on to college. It's been 12 years for me and I get up in the morning and count the ways I'm blessed. There are too many blessings to count.

Cathie
Dx'd colo rectal cancer Oct 2002
radiation chemo November December 2002
Surgery Mar 2003 which was a temp ileo
Summer of 2003 more chemo
Ileo reversed Mar 2004
Cancer free since then

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Eight Years Ago Today

Postby vancouver eve » Fri Jun 27, 2014 10:36 pm

Eight years is a wonderful milestone to reach. Cherish your good health now and live life to the fullest.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 65 guests

cron