CEA and Scans
CEA and Scans
Do the Drs tend to rely on solely the CEA and stop doing scans? My CEA was 14 about 6 weeks ago and 2 weeks ago was 28. Haven't had a scan in awhile and Dr. hasn't scheduled one. I tried searching for this at this site, but "CEA" brought me 492 pages! I did have a cycle of treatment again after being off since Feb, pending a liver resection that never came. (Tumor found in Lung which WAS resected). According to my Oncologist, I do have the marker so they are going to watch that. I just feel uncomfortable not having the scans to see what is going on.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
Re: CEA and Scans
reading Peabody's post in the other post seems to verify what I was thinking.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
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Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: CEA and Scans
Don't watch! Push for a PET scan! I went from 4 to 10 and they did one.
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
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hdridin'fool
- Posts: 74
- Joined: Fri Feb 14, 2014 12:53 am
Re: CEA and Scans
My CEA was dropping from (if I remember right) 138 to 83 to 58. The Onc was really upbeat but in her wisdom, she wanted a PET scan to verify her optimism.
Tumors in the Liver and Lungs are still growing.
After 9 rounds of Folfox, 6 of those with Avastin, she immediately changed me over to Fofiri with Avastin, which is stomping my ass. Oxi was way easier than this stuff but my options appear to be dwindling.
I just asked to keep me alive long enough to get into an immuno therapy trial. That seems to be the future for cancer treatment. I hope we all have a chance to benefit from it, if it works.
Tumors in the Liver and Lungs are still growing.
After 9 rounds of Folfox, 6 of those with Avastin, she immediately changed me over to Fofiri with Avastin, which is stomping my ass. Oxi was way easier than this stuff but my options appear to be dwindling.
I just asked to keep me alive long enough to get into an immuno therapy trial. That seems to be the future for cancer treatment. I hope we all have a chance to benefit from it, if it works.
Last edited by hdridin'fool on Thu Jun 05, 2014 1:29 pm, edited 1 time in total.
62 /male.
Dx 11/15/2013. Stage IV mets liver & lungs.
3 dx Folfox.
6 dx Folfox w/Avastin: Tumor growth lungs and liver.
13 doses of Folfiri w/Avastin
Chemoemobolization Aug/14. PET shows halt in growth and reduced activity.
Dx 11/15/2013. Stage IV mets liver & lungs.
3 dx Folfox.
6 dx Folfox w/Avastin: Tumor growth lungs and liver.
13 doses of Folfiri w/Avastin
Chemoemobolization Aug/14. PET shows halt in growth and reduced activity.
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Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: CEA and Scans
Yea they had some encouraging news with some T cell trials. In 2 our of 8 pts in the trials, uteran cancer was gone. It help 1 but had not response in rest. That was on the news the other night. They also said they could use this with colon cancer, etc as well. Apparently they use your own immune system to kill cells. There is hope in some areas.
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Re: CEA and Scans
As my onc says, you never want to hang your hat on CEA.
DX July 2013, 37yo
12 of 68 LN
Stage IV w/ drop peri met
Folfox 8/12/13
Clean scans 1/24/14
Rising CEA 2/13/14
HIPEC 3/13/14
Folfiri 4/21/14
Recurrence in lungs 12/19/14
Xeloda & Avastin
Follow my blog: http://julieyipwilliams.wordpress.com/about/
12 of 68 LN
Stage IV w/ drop peri met
Folfox 8/12/13
Clean scans 1/24/14
Rising CEA 2/13/14
HIPEC 3/13/14
Folfiri 4/21/14
Recurrence in lungs 12/19/14
Xeloda & Avastin
Follow my blog: http://julieyipwilliams.wordpress.com/about/
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Re: CEA and Scans
My CEA was 6.4 when I was dx'd with a liver met. I'd demand a PET scan asap.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
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singingholly
- Posts: 1133
- Joined: Thu Feb 27, 2014 3:37 am
- Location: Northern Italy
Re: CEA and Scans
I think you should ask for a pet or at least a ct scan asap. Where did your doc got his degree..?
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno
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Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: CEA and Scans
Without the PET scan, my new lymps would not have been found. Be more aggressive with these dr. I wish I had known better. I just kept being told everything looked great. I wonder if they had done a scan or colonoscopy in the last year they would have found these new sites earlier or at least the tumor in the original site in the colon. All of these new tumors are almost 2 inches in diameter now. I have not symptoms at all except for the PET scan results. What do you have to gain????? Catching it early!
I am being pushy with trying to get an appointment at MD Anderson and so far it has got me nowhere after 2 wks, but hey, call me a bitch! it is my life.
I am being pushy with trying to get an appointment at MD Anderson and so far it has got me nowhere after 2 wks, but hey, call me a bitch! it is my life.
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Re: CEA and Scans
That's exactly what I was thinking. Although, in my case, the PET didn't see something the CT did. I see him on Tuesday and will push for another set of scans.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
-
Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: CEA and Scans
I am pulling for us both!
Deb
Deb
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Re: CEA and Scans: UPDATE
Had a full day of chemo yesterday. Dr. had ordered new scans. Should know today what CEA was before yesterday's treatment
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
-
Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: CEA and Scans
The rising CEA fortold the tail. DX: 2 Aortic, 1 S2 spine and 1 reocurring at original site. Only treatment: Chemo for life. No surgery recommended by MDA. This sucks to go from NED to this state almost immediately. If it was not for the dr. rechecking the rising CEA level and then scanning I would still be at home thinking I was fine.
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
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