Postby JDinNC » Mon May 26, 2014 11:20 pm
Since being a teenager I always viewed myself as being a clown on the outside but always crying on the inside. And as I entered my adult years, I learned to face my problems with "it is what it is" because crap always happened that I couldn't control.
As for my stage 4 situation.....I'm determined to beat this or at least try living with it. Though I know what the final outcome will be. For some reason, I'm always making wisecrack comments...like "well I know I won't be around to deal with that" and so on. And everyone thinks I'm sick...well duh!!!
I hate it when they all say you're going to beat this, or you'll be fine I just know it or you have such a positive attitude. How about having a husband who has not once talked, discussed or even mentioned my cancer to me from day one. I feel like I have to watch what I say to friends if he's within ear shot. All he will say is why are you so negative when you're cancer free..because I know it won't be for long. I'm always searching for new cancer information and he keeps telling me to stop.
Do I feel like I was cheated out of my life..you betcha. Before my dad died, I promised him I would care for my mom if anything were to happen. In the winter of 1996, my uncle died and my aunt was put in the hospital with pneumonia. Since they had no children and I lived near them I became her caregiver. She was in her mid 90,s but was sharp as a tack. I had to move her from her apartment into Assisted living, where I would visit everyday on my way home from work. In the winter of 1997, my dad died. I was living in So. Florida and they were living in central Fla.. He was in a coma for four week and I drove up there every weekend to see him and to help mom. Little did I realize she was in the early stages of Alzheimer and when my dad passed we knew mom couldn't stay alone. So we moved her down by us. For the next 4 years, I took care of my mom and Aunt, visiting with them after work, going to doctor appointments, shopping, making necessary phone calls, all while driving an hour to work five days a week plus trying to keep my husband happy. My aunt died in 2001, and I had to deal with her arrangements and personal belongs. Mom was slowly getting more confused and wasn't taking her medicines, meaning more doctor appointments and taking off from work. Finally in 2004, I quit work and moved her in with us. Her personality completely changed becoming totally confused as to who I even was, thinking she was living in a hotel and my husband was the help. In 2005, my husband retired and we moved to North Carolina, where we put her in a assisted living. I spent the next 5 years, being the best daughter I could. Going over and having dinner with her, taking her to the doctors, being a helper during their field trips. Until it got to the point where she didn't even know who I was anymore. In 2010' she passed away. There's so much more details I could write about but it wouldn't make any different regarding my situation. I made my promise to my dad and I would do it again. Was I stressed..on the outside I felt I was handling everything well.. On the inside, I must have been tearing up inside. It was 14 years of love and devotion to my mom. And now that it my turn to live my life again, I'm dealt the death hand. You always read about how caregivers are at health risk...well I've became an example.
Do I have a positive attitude...all I can say...I have a picture of my parents on my wall, which I always ask for their help and guidance, a cross by my bed, a good luck voodoo doll from a friend made from the power of water, wind, earth and fire, healing stones above my head, a lot of hope and praying and my 6 dogs who all sleeps around my bed every night. Is there anything else out there I'm missing??
I'm so sorry for venting..I finally had to let it all out... my husband doesn't want to hear anything and my friends feel uneasy when I try to talk about it.
Thank you,
Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED