My Scotty Boy has flown away ....

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skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: My Scotty Boy has flown away ....

Postby skypup » Mon May 26, 2014 7:01 pm

DeAnn, you know all those beautiful things that happened for you and Scott at the end? They happened because of you--your beautiful spirit attracts love. What love you hold! Thank you so much for sharing it with us. The picture of you and Scott is so... incredible. You adored each other, it shows. And Scott looks like such a nice, NICE man!

I wish you as much happiness as your memories can bring you. I wish you the full peace of knowing you truly loved and were loved. I wish you and your kids a long, long lifetime of holding Scott in your hearts. Thank you for sharing him with us.

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: My Scotty Boy has flown away ....

Postby Bev G » Mon May 26, 2014 7:11 pm

Dearest,

I would like to echo verbatim what the wonderful Skypuppy said. You truly loved, as you were loved. The photo is simply amazing, and took my breath away. You already know we are grieving with you, and will always be here for you, however we may be. Wishing you as much rest as you can get, comfort from your family and friends, and the breather you are so surely entitled to. Your mission has been valiantly addressed, as has Scott's. Rest now.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: My Scotty Boy has flown away ....

Postby janklo » Mon May 26, 2014 7:31 pm

Thanks for posting that beautiful photo. It helps me to come back here and I hope you will come back and let us know how you are doing DeAnn. I can't believe all the amazing things that you experienced. Scott was blessed in so many ways!
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Sharona
Posts: 187
Joined: Sun May 19, 2013 3:06 am
Facebook Username: Sharon Rauch

Re: My Scotty Boy has flown away ....

Postby Sharona » Mon May 26, 2014 7:33 pm

DeAnn,
Your story of your last hours with Scott has me in tears. What beautiful experience! Your account radiates the love that you had for each other and for the boys. I pray that this love will give you peace and get you through the days ahead. Thank you so much for sharing.
Much love to you and your beautiful family!
Sharon
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
colostomy
FOLFIRI, FOLFIRI, avastin, Zaltrap
Stivarga
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15
http://www.caringbridge.org/visit/sharonrauch

jean60
Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: My Scotty Boy has flown away ....

Postby jean60 » Mon May 26, 2014 7:34 pm

I am so very sorry for your loss. I also want to comment on your incredible generosity of spirit in sharing what you shared..it is a true testament to your love.

Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: My Scotty Boy has flown away ....

Postby Badass » Mon May 26, 2014 7:46 pm

DeAnn,
Thank you so much for taking the time to share the details of Scott's passing and your experiences in hospice. I am so glad you experienced the love and connection that made this difficult time meaningful. I echo others in welcoming your continued participation in this community as you deserve all the support you would like. Peace to you and yours.

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

wandalein
Posts: 93
Joined: Thu Nov 07, 2013 6:24 pm
Facebook Username: Wanda Leinweber

Re: My Scotty Boy has flown away ....

Postby wandalein » Mon May 26, 2014 8:09 pm

I was reading your post and wondering. The Chinese say a good death is important and it sounds like it was peaceful and full of love. Your experience proves to me that we are all instruments of god. As I approach the coming weeks and months of fear for my 52 year old husband, I keep hope that everything will be okay with this stage iv but also know thy will be done on earth as in heaven and I may read your post again.
Wife of Chris
March 2012 Stage 3 rectal cancer
May 2014 spread to liver
JUNE 2014 Liver resection 80% including gallbladder
June 2014 PET, CT, MRI
Oct. 2014 NED
Apr. 2015 NED
Jan. 2017 - still NED

livingbyfaith
Posts: 430
Joined: Wed Dec 31, 2008 5:06 pm

Re: My Scotty Boy has flown away ....

Postby livingbyfaith » Mon May 26, 2014 8:27 pm

How beautiful, thanks for sharing Will be praying for you and your family. I recommend a great book Hello from Heaven, helps you recognize all the signs you will get from him. God bless.
Hubby 72 cc
Resctn colon 07 stage 3/11 15 cm liver met CEA 3000+
CPT 11, 12 xelox kras wild gall blddr rem 7-12 & abltn
liver stents bi-mo gilbert lng mets , cpt-11 3-13, 2 hernia surgeries2013 & liver abltn went to heaven 10-24-13

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: My Scotty Boy has flown away ....

Postby tammylayne » Mon May 26, 2014 8:33 pm

Thank you so much for sharing your love story with us....I am sad that Scott is no longer here with you physically, but so happy for you to have this pure love to fall back on in your time of need....may it bring you peace in the coming hours, days and months.

Gentle hugs to you and your children...
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

rcap

Re: My Scotty Boy has flown away ....

Postby rcap » Mon May 26, 2014 8:59 pm

Deann:
I am praying for peace and that the love of God be with you and your family during this difficult time.

Hugs))))

rcap

ColOrPan
Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: My Scotty Boy has flown away ....

Postby ColOrPan » Mon May 26, 2014 9:47 pm

DeAnn,
That wonderful picture says it all.

Suze
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

Mommato4boys
Posts: 75
Joined: Wed May 15, 2013 8:53 pm
Facebook Username: Debbie Rech Whitmore

Re: My Scotty Boy has flown away ....

Postby Mommato4boys » Mon May 26, 2014 9:54 pm

I am so sorry for the loss of your dear, sweet husband. Thank you SO much for sharing your experience with us. I will pray that the next few days, weeks and months are gentle to your soul. Accept help from others and take time to be alone too. Xxxooo.
47 yo BRAF mutant
Dx: Age 44: Nov. 2011. stage IV. >20 liver mets, +15/21 nodes pos.
Mets in peritoneum, liver, lymph, ovary
Stage 3 thyroid cancer 1999
Caringbridge-debbiewhitmore
Interview:weei Debbie Whitmore

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exaussie
Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
Contact:

Re: My Scotty Boy has flown away ....

Postby exaussie » Mon May 26, 2014 10:01 pm

Awwww too soon. Sadness for your loss.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: My Scotty Boy has flown away ....

Postby jgall » Mon May 26, 2014 10:04 pm

Absolutely speechless. How sad yet beautiful.

With much love from Chris and I. xoxoxo
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: My Scotty Boy has flown away ....

Postby Ajane » Mon May 26, 2014 10:41 pm

Deann, beautifully said. I'll be praying for comfort, strength, and peace for you and your sons as you lay your beloved to rest. God Bless, Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9


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