He May Not Make It Through The Night ...

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so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

He May Not Make It Through The Night ...

Postby so-scared » Fri May 23, 2014 3:22 am

Scott has gone from going to the business expo yesterday to possibly leaving us yet tonight. Unbelievable. Home hospice came and suggested residential hospice over home due to how quickly my beautiful husband was going downhill. She was floored. He went from walking to the bathroom (with me hovering him of course) and being able to empty his own colostomy bag etc in the morning, to not even being able to stand by the early afternoon. The hospice lady came at about 2:00 to sign him up and never left until an inpatient facility was located and the ambulance came which wasn't until about 8:00. That lady was an absolute Godsend. My kids are amazing and we are all going to miss Scott dearly. This is sooooo hard but it is now my job to help him have a peaceful and pain free death and that it was I plan to do. I have been so lucky to call him mine for the last 20+ years. He has spoiled me rotten for years and I miss him already. :cry:

Please pray for a gentle passing for my sweet husband. Please pray for strength, peace, and acceptance for me and my kids.

DeAnn
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

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Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: He May Not Make It Through The Night ...

Postby Voxx66 » Fri May 23, 2014 3:45 am

Thoughts and prayers for you and your family.
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri

pog451
Posts: 799
Joined: Thu Oct 13, 2011 6:11 am
Facebook Username: andrew.morgan

Re: He May Not Make It Through The Night ...

Postby pog451 » Fri May 23, 2014 3:56 am

Thinking of you and your family and wishing Scott a pain-free last few hours/days.

It kills me that this disease can turn around so fast. makes me wonder if this is my future too.
09.11 Dx @ 46, uT3uN1M0 G2
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: He May Not Make It Through The Night ...

Postby michelle c » Fri May 23, 2014 4:05 am

Oh DeAnn, my heart goes out to you and your family. Thank you for taking the time to update us when you are going through so much. The hospice lady sounded wonderful. Although I wish that things were different it sounds like he is in good hands. The way in which you care for and love your husband is beautiful. Of course I will pray for the peaceful passing of your dear Scott and for peace, comfort and acceptance for you and your children.

Love,
Michelle xx
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: He May Not Make It Through The Night ...

Postby skypup » Fri May 23, 2014 4:41 am

My thoughts and prayers are with you and your children, and I am holding Scott in light and love.

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: He May Not Make It Through The Night ...

Postby ams5796 » Fri May 23, 2014 4:48 am

DeAnn,

I pray for comfort and peace for Scott. Scott has been so lucky to have you by his side through this journey. Your love is beautiful.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: He May Not Make It Through The Night ...

Postby Ajane » Fri May 23, 2014 5:12 am

Deann, I just now posted on the other thread, then saw this one. Praying for a peaceful passing and prayers for peace and comfort for you and your boys. Again, gentle hugs.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: He May Not Make It Through The Night ...

Postby singingholly » Fri May 23, 2014 5:56 am

My heart and tears are with you and your wonderful, wonderful family.
May peace and love fill your souls so that not too much room is left for pain and sorrow.
An enormous hug.
Holly
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: He May Not Make It Through The Night ...

Postby janklo » Fri May 23, 2014 6:31 am

DeAnn, sending you all my bed thoughts and prayers that Scotts journey ends peacefully. And sending you the strength to get through this period of your life. You can handle it, we are all here standing behind you.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

LKGower
Posts: 275
Joined: Fri Jan 11, 2013 4:23 pm
Location: Sydney, Australia

Re: He May Not Make It Through The Night ...

Postby LKGower » Fri May 23, 2014 6:35 am

I'm so sadden to hear this Deanne,

My thoughts and prays are with you and your family.

Lisa
Dx 10/12 @ age 28 Stg. IV CRC spread to both ovaries, bladder and liver
Surgery 11/12 - 8/16 LN positive
9/13 Liver resection & RFA - 1/1 LN positive
10/13 boo its back already! Back to chemo

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: He May Not Make It Through The Night ...

Postby tammylayne » Fri May 23, 2014 6:43 am

I am so sorry to read this news....I wish Scott peace and love. May he find that place where his passing is gentle as he is surrounded by the love of his family. And for you and your children, may your memories and love you have shared over the years bring you strength.

Hugs to you all...
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: He May Not Make It Through The Night ...

Postby vickitwo » Fri May 23, 2014 6:46 am

HUGS ((((De Ann)))) :(
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: He May Not Make It Through The Night ...

Postby Maia » Fri May 23, 2014 6:47 am

May Scott be filled with loving kindness, may he be peaceful and at ease, may he be free from suffering and the causes of suffering. May he, you, all the family be surrounded by love.
((DeAnn))

ColOrPan
Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: He May Not Make It Through The Night ...

Postby ColOrPan » Fri May 23, 2014 7:31 am

I am so sorry, DeAnn.
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: He May Not Make It Through The Night ...

Postby Bev G » Fri May 23, 2014 7:44 am

Dearest DeAnn,

I pray Scott's passing will be gentle and kind, and that his last time on Earth will allow you to know what an incredible, wonderful caregiver and loving wife and mom you have been. God bless you, Scott and the rest of your family and loved ones. We will always be here for you, DeAnn.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now


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