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Please Help. Reversal back 2 bag 4 2nd time complications!

Posted: Sun May 04, 2014 7:21 pm
by StupidAssCancer
On April 30th I had a reversal of my reversal done. I went back to a permanent bag. The dr was only able to give me a perm ileostomy. My stoma is very hard and strange shaped. It is sluffing off bloody tissue all the time. Bags are leaking one after another but that's a whole other situation....
My reason for writing is because ever since my surgery I have been having contraction "labor" like pains in my abdomen and stoma. They come and go but are consistent every time my stoma puts out. I've been on a full liquid diet, I'm not dehydrated. But barely eating anything. My last stoma never once cramped, in fact I could never feel it when it was "going" etc.
I'm still here in the hospital. They are drugging me up on diladid, toradol, Percocet, Valium, phenegren, zofran, simethicone. My dr just keeps feeling me that the meds should start to work and I should feel better. My spasm contractions are at least every 15 minutes. Can anyone help?
I'm in so much pain. It feels like either a blockage, or this stoma doesn't work.

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Posted: Sun May 04, 2014 7:25 pm
by pfCml73183
Alys, I have no advice but, I am rooting for you to get better. It stinks you have to go through this.
God Bless You, Celeste

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Posted: Sun May 04, 2014 7:34 pm
by gtownguy
Really sorry you have to go through all this and hope it improves real soon!

Just a thought - have you been seen by an ostomy nurse? If not, maybe he/she could help with the leaking bags as well as the pain.

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Posted: Sun May 04, 2014 7:36 pm
by NWgirl
Oh no, no, no!!! I've never experienced anything like this! Granted the stoma will be swollen this early on - as time goes on it will (should) shrink down to a smaller size. But the other issues I've had no experiences with. I hope the doctors can get your pain under control soon - you have been through far too much already. :(

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Posted: Sun May 04, 2014 7:43 pm
by Rob in PA
I think it should "settle" down after a while. I used to be able to tell when I was going to have a BM into my colostomy via cramping, but i don't recall it being painful.

I wish you the best.

Rob