Please Help. Reversal back 2 bag 4 2nd time complications!

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StupidAssCancer
Posts: 69
Joined: Sun Sep 29, 2013 9:24 pm
Facebook Username: Alys.Geertsen
Location: Utah

Please Help. Reversal back 2 bag 4 2nd time complications!

Postby StupidAssCancer » Sun May 04, 2014 7:21 pm

On April 30th I had a reversal of my reversal done. I went back to a permanent bag. The dr was only able to give me a perm ileostomy. My stoma is very hard and strange shaped. It is sluffing off bloody tissue all the time. Bags are leaking one after another but that's a whole other situation....
My reason for writing is because ever since my surgery I have been having contraction "labor" like pains in my abdomen and stoma. They come and go but are consistent every time my stoma puts out. I've been on a full liquid diet, I'm not dehydrated. But barely eating anything. My last stoma never once cramped, in fact I could never feel it when it was "going" etc.
I'm still here in the hospital. They are drugging me up on diladid, toradol, Percocet, Valium, phenegren, zofran, simethicone. My dr just keeps feeling me that the meds should start to work and I should feel better. My spasm contractions are at least every 15 minutes. Can anyone help?
I'm in so much pain. It feels like either a blockage, or this stoma doesn't work.
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Postby pfCml73183 » Sun May 04, 2014 7:25 pm

Alys, I have no advice but, I am rooting for you to get better. It stinks you have to go through this.
God Bless You, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

gtownguy
Posts: 151
Joined: Thu Nov 22, 2012 7:57 pm
Location: Washington, DC

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Postby gtownguy » Sun May 04, 2014 7:34 pm

Really sorry you have to go through all this and hope it improves real soon!

Just a thought - have you been seen by an ostomy nurse? If not, maybe he/she could help with the leaking bags as well as the pain.
Sep 12 - dx rectal cancer - stage 3B - T3N1M0
Oct/Nov 12 - 6 wks daily radiation & Xeloda
4 Feb 13 - LAR w/ temp ileostomy
18 Mar 13 - install port
19 Mar - 02 Jul 13- FOLFOX chemo
23 Jul 13 - clean CT scans
26 Sep 13 - reverse ileo & remove port

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Postby NWgirl » Sun May 04, 2014 7:36 pm

Oh no, no, no!!! I've never experienced anything like this! Granted the stoma will be swollen this early on - as time goes on it will (should) shrink down to a smaller size. But the other issues I've had no experiences with. I hope the doctors can get your pain under control soon - you have been through far too much already. :(
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Please Help. Reversal back 2 bag 4 2nd time complication

Postby Rob in PA » Sun May 04, 2014 7:43 pm

I think it should "settle" down after a while. I used to be able to tell when I was going to have a BM into my colostomy via cramping, but i don't recall it being painful.

I wish you the best.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED


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