dying alone or not

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lohidoc
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Joined: Tue Aug 09, 2011 6:37 pm

dying alone or not

Postby lohidoc » Fri Apr 25, 2014 11:48 pm

Sometimes after a treatment session my thoughts turn dark.
Most of us do not wish to die alone. I myself will want my attorney to be present.

But some of us will be alone. The following new development in end of life care may be of interest.

https://www.youtube.com/watch?v=T8PNzA2S6EY
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

skypup
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Re: dying alone or not

Postby skypup » Sat Apr 26, 2014 6:21 am

That is just a bit weird! That stroking motion doesn't look particularly comforting, but I guess it's better than nothing.

So why the lawyer present?

I want my dog!

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O Stoma Mia
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Re: dying alone or not

Postby O Stoma Mia » Sat Apr 26, 2014 7:26 am

Skypup wrote:...I want my dog!

NWgirl
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Facebook Username: Belle Piazza
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Re: dying alone or not

Postby NWgirl » Sat Apr 26, 2014 8:37 am

That's just creepy. Reminds me of a cold version of Soylent Green.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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vilca11
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Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: dying alone or not

Postby vilca11 » Sat Apr 26, 2014 8:42 am

Horror movies would make me feel better than this...
Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

KWT
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Re: dying alone or not

Postby KWT » Sat Apr 26, 2014 8:54 am

I'm not going to watch.

Everyone dies alone.

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Guinevere
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Re: dying alone or not

Postby Guinevere » Sat Apr 26, 2014 9:49 am

Creeped me out!! :shock: I would rather be physically alone than have that thing and that voice. Still giving me the shivers...
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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horizon
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Re: dying alone or not

Postby horizon » Sat Apr 26, 2014 1:53 pm

That is so messed up. I don't want Siri stroking my arm and chattering in my ear to be my last moments on this earth.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

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Bev G
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Re: dying alone or not

Postby Bev G » Sat Apr 26, 2014 1:54 pm

Wow! No thanks.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Lee
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Re: dying alone or not

Postby Lee » Sat Apr 26, 2014 2:05 pm

"Creepy" describes it best!

If I had to choose, I would choose dying alone verses that voice and machine. As someone pointed out, I would want my dog.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

annalexandria
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Location: Seattle, WA

Re: dying alone or not

Postby annalexandria » Sat Apr 26, 2014 2:24 pm

I think this is an art installation. Although it is modeled on companion robots being used in Japan.
Info about it here:
http://www.pixedge.com/lastmoment
Mom, librarian
Dx age 43, Sept. '09, Stage IV Carcinosarcoma of the colon
5 surgeries, 2009-2011:
colon/sm. bowel res., node removal, peritoneum, hysterectomy
FOLFOX/Avastin Feb.'10-Aug '10
Carbo-Taxol Dec. '10-Feb. 2011
NED since Dec. 2011.

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cptmac
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Re: dying alone or not

Postby cptmac » Sat Apr 26, 2014 4:29 pm

I didn't look at it either, thinking it might be creepy, but I agree with skypup... "I want my dog" or in my case, I want my cat....
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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CRguy
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Re: dying alone or not

Postby CRguy » Sat Apr 26, 2014 5:23 pm

NWgirl wrote:That's just creepy. Reminds me of a cold version of Soylent Green.
....or maybe Logan's Run with everyone swirling upwards to "RENEW" ........
Not for me..... I would choose being alone over that option.
I do understand the notion that "hearing" is the last sense to go, so that may be what has driven this concept ???

lohidoc wrote:Sometimes after a treatment session my thoughts turn dark.

Marc, how are you doing my friend ?
You mention "after treatment" here's hoping the darkness has lightened a bit for you.

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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lohidoc
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Re: dying alone or not

Postby lohidoc » Sat Apr 26, 2014 8:02 pm

Thanks for pointing out the origin of this annalexandria.

So why the lawyer present?

Need you ask? I'll need all the help I can get when I meet St Peter.

Been a tough winter CRguy. My February scan showed significant growth of my lung tumours, and I had a good going radiation pneumonitis. Looking back I think I have been neglecting my treatments for over a year, skipping sessions, sometimes for a month, and cigars. So I decided it was time to get to grips with this thing. Full disability from April 1st, and focus entirely on treatments - twice a week. And clean living. Already noticing the difference, next scan in July and we shall see.

Interesting psychological effects from these sessions - deep depression, to the point of crying, which then makes way for euphoria. Apparently it is also effective for schizophrenia.
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

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CRguy
Posts: 10234
Joined: Sun Feb 10, 2008 6:00 pm

Re: dying alone or not

Postby CRguy » Sun Apr 27, 2014 12:00 pm

The "clean living"part would be enough of a challenge for me, but two of your treatments per week would be daunting !

Wishing you much success Marc.
In Harmony my friend.

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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