Hi everybody. It's been a while since I've stopped by. I suppose because since my last chemo finished in July 2009 I've been having ridiculously good luck with each PET scan being clear (so far so good!). So what could I say to you all? How could I be of any help? What good would it do if I just showed up saying "Hey, I'm fine!"
Well, maybe just to show that sometimes plain old good luck does happen. Yeah, it's nothing you can count on, and I'm always thinking my luck is going to run out. Because I'm not actually supposed to be here. But here I am.
And as I look over the conversations here, I don't feel like I can take part because, although I know exactly how many of you are feeling right now, I'm not feeling like that right now. But I did want to say that you have found a very good place here, with so many great people to connect with, talk to, to help and be helped.
I wish you all the best and - in the words of someone I lost and still love - send you strong thoughts.
Shawn x
Me again! Me still...
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azahar
- Posts: 275
- Joined: Fri Aug 29, 2008 2:49 am
- Facebook Username: shawn.hennessey
- Location: Seville, Spain
- Contact:
Me again! Me still...
DX stage IV May / 08
colon resection May/08
Oxi & Xeloda July/Aug/08
open & close Sept/08, peritoneal mets
liver resection Nov/08
6 rounds Oxi/Xeloda Apr-July/09
NED? so far so good...
http://azahar.wordpress.com/ & http://twitter.com/azahar
colon resection May/08
Oxi & Xeloda July/Aug/08
open & close Sept/08, peritoneal mets
liver resection Nov/08
6 rounds Oxi/Xeloda Apr-July/09
NED? so far so good...
http://azahar.wordpress.com/ & http://twitter.com/azahar
Re: Me again! Me still...
Glad you checked in! Have a fabulous summer!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023
Re: Me again! Me still...
Always good to see long timers. If you like, you might want to discuss factors that seemed favorable or unusual in your CRC IV experience - longevity is notoriety.
You mentioned normal CEA results on recur. The high/low/pre surgury/post-op etc CEA (and any CA199) values might be useful to some prospective readers. Also any special medicines, procedures, nutrients that might be worth a mention? We've had people here with some luck adding cimetidine, celebrex, PSK in the stew.
Thanks for visiting and best wishes for a great summer.
You mentioned normal CEA results on recur. The high/low/pre surgury/post-op etc CEA (and any CA199) values might be useful to some prospective readers. Also any special medicines, procedures, nutrients that might be worth a mention? We've had people here with some luck adding cimetidine, celebrex, PSK in the stew.
Thanks for visiting and best wishes for a great summer.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
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Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: Me again! Me still...
Shawn,
It is so good to hear from you. Thank you for stopping by and checking in. It is huge for people to have hope and sharing your story gives hope. I hope continued clear scans for you!
Aloha,
Kathleen
It is so good to hear from you. Thank you for stopping by and checking in. It is huge for people to have hope and sharing your story gives hope. I hope continued clear scans for you!
Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
Re: Me again! Me still...
Azahar, welcome back!
Kathleen is right -- just hearing your voice is a boon and a balm and your story has salubrious effects on newbies.
Not only them!
And to mark that, here's an emoticon that once regularly accompanied strong thoughts and words:
Kathleen is right -- just hearing your voice is a boon and a balm and your story has salubrious effects on newbies.
Not only them!
And to mark that, here's an emoticon that once regularly accompanied strong thoughts and words:
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18
Re: Me again! Me still...
Feliz de saber que estás bien! Te deseo lo mejor, Shawn 
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ptfly
- Posts: 392
- Joined: Wed May 29, 2013 4:38 pm
- Facebook Username: Paul Turley little rock, ar
- Location: Little Rock, AR
- Contact:
Re: Me again! Me still...
Nothing brightens my day more than hearing from a stage IV survivor! Thank you 
Husband to Tracie with stage 4 CC. Liver Mets
DX 5-10-13. C resection 5-17-13. 5/17 LN
FOLFOX+AVI 6-11 thru 9-19-13
HAI pump on 10/31/2013 Stopped 9/14 
https://www.facebook.com/paul.turley.92
Passed peacefully in my arms at home on 11/11/14
DX 5-10-13. C resection 5-17-13. 5/17 LN
FOLFOX+AVI 6-11 thru 9-19-13
HAI pump on 10/31/2013
Stopped 9/14 https://www.facebook.com/paul.turley.92
Passed peacefully in my arms at home on 11/11/14
Re: Me again! Me still...
Well done, this give me great inspiration and info to tell my dad, I wish you well
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven
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Peabody5422
- Posts: 334
- Joined: Fri Dec 09, 2011 10:21 am
- Facebook Username: debbie.whitaker
Re: Me again! Me still...
Any good news is great news
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery
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