Urinary issues?--radiation

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Carolinagirl
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Joined: Mon Dec 17, 2012 7:39 pm

Urinary issues?--radiation

Postby Carolinagirl » Mon Apr 14, 2014 10:18 pm

Did anyone experience urinary incontinenance/leakage following radiation? I just finished treatment one week ago and started having some problems with this after treatment ended. Anyone else have a similar experience? I called the physicians assistant who said that this is not usually a side effect.
12/12 colon resect. Stage IIIb 35 yo
KRAS mutant, MSS
1/13 Folfox
11/13 local recurrence pelvis
12/13 Folfiri + Zaltrap x 4
2/14 xeloda + rad x 28
5/14 lung mets/resection
6/14 Irinotecan/5FU
9/14 Posterior Pelvic Exenteration
10/14 Xeloda/Avastin
11/15 peritoneal mets
FOLIFIRI + zaltrap

Jachut
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Re: Urinary issues?--radiation

Postby Jachut » Mon Apr 14, 2014 11:54 pm

I do, but the complete opposite. At times I find it really difficult to urinate, its a drip drip drip thing. Oftentimes my hubby is banging on the door telling me to hurry up, but I have a very weak urine stream now.

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dianetavegia
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Location: Villa Rica, Georgia

Re: Urinary issues?--radiation

Postby dianetavegia » Tue Apr 15, 2014 6:29 am

5FU affects all 'moist' areas. XELODA is 5FU. Possibly your concern is caused by the chemo?

I was already past menopause when I got colon cancer and didn't have radiation, but I've had serious problems with leakage and recurrent UTI's since chemo ended 5 years ago.

Do a websearch for Xeloda and urinary incontinence.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Kathy
Posts: 114
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Location: New Jersey

Re: Urinary issues?--radiation

Postby Kathy » Tue Apr 15, 2014 7:33 am

I also have leakage and frequent UTIs since radiation 6 years ago. When I say I have to go to he bathroom, people assume it is because of my colostomy. It is because I have to urinate often. I had no issues before and my uro-gynocologist says it is from the radiation.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

lorrainem
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Re: Urinary issues?--radiation

Postby lorrainem » Tue Apr 15, 2014 7:49 am

Sadly yes, anotherthankyoucancergift. I have no sensation in my bladder, so it can be really full and I have no urge to pee. Leakage started pre-cancer and now post menopause, sneezing and laughing are dangerous. Its an inconvenience I've learned to manage 6 years post radiation/5fu or folfox whichever left their mark.
Good luck, I hope it becomes only an inconvenience for you too.
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08

laneylou
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Re: Urinary issues?--radiation

Postby laneylou » Tue Apr 15, 2014 9:38 am

I had something similar. Right at the end of radiation, I started feeling like I couldn't quite empty my bladder all the way, and then I'd notice just a little bit of leakage (a few drops or so), usually within about a half hour of a trip to the bathroom.

In my case, it went away (I can't remember exactly, but I think it was after about a month or so). I wore a pad for a while and that was it. Nearly 2 years out from end of radiation, I have no bladder issues. Hopefully it will be the same for you, an acute radiation effect that will get better :)
Laine, dx @ 39, 4/12
T3N0M0 Stage IIA
Emergency IVF, 4/12
Chemorad, LAR/temp ileo, FOLFOX (no oxi after #2)
DVT on chemo; IVC filter
Reversal/port out 5/13
IVC filter finally out 2/14
NED (clean CT, scope, CEA)

Peabody5422
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Re: Urinary issues?--radiation

Postby Peabody5422 » Tue Apr 15, 2014 11:36 am

Oh yea. Now when I have to go. I have to go! Also, after I go, I have to wait for the rest. It's like there is a pause after I void, then more leaks out. I have been out of radiation 2 yrs this month and the leakage has slowly gotten better but not completely. My side effects, neuropathy, etc all seem to get better with time so hang in there.

Female: 65
T1 Nc1 MX
Rectal (P-trap)
Surgery 12/23/11
Xeloda and Rad: Jan., 2012 thru April, 2012
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

NWgirl
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Re: Urinary issues?--radiation

Postby NWgirl » Tue Apr 15, 2014 1:18 pm

I think the radiation can have an effect on your urinary issues. Shortly after radiation I had more issues with leakage - those have thankfully cleared up - except for the occasional sneeze issue - but I have to wonder how much of that just comes with age.

What I notice more now is that my mind doesn't always seem to know when I have a full bladder - and all of a sudden I have to go NOW - and pee for 5 minutes! Sort of a disconnect there. Thankfully though, leakage rarely if ever happens.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

Coppercent
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Re: Urinary issues?--radiation

Postby Coppercent » Tue Apr 15, 2014 1:29 pm

I had a kidney stone issue and ended up seeing a urologist. The kidney stones were caused from chemo induced dehydration. I have an issue with not being able to empty completely sometimes and having to go again shortly after I go the first time. On a rare occasion I have the "oh my I have to go now" issue. My urologist says he sees a lot of patients that have issues from radiation. I am not sure how common it is but radiation does seem to have an effect.
07/15/11 Stage III Rectal, 08/11 - 09/11 Chemo/rad 11/11 LAR - Whole rectum gone, ostomy, hysterectomy
01/12 Port placed, 01/12 thru 06/12 Folfox, Xelox 10/03/12 Reversal, Clear scan
And then the story continues.
Currently, remission round two!

Cj51
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Location: Midwest

Re: Urinary issues?--radiation

Postby Cj51 » Tue Apr 15, 2014 10:03 pm

Yes, what everyone else said. When I have to go, I have to gonow. I think part of it is because I just don't feel that my bladder is full until it's really full, and then it's an urgent situation. Ah, well, at least I'm here to complain about it. :-)
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

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handicap18
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Facebook Username: kyle.gendron
Location: Burlington, MA

Re: Urinary issues?--radiation

Postby handicap18 » Wed Apr 16, 2014 9:09 am

I had radiation 2 weeks before my surgery back in Dec '12. I don't recall having issues during that time. I did get an abscess/infection after surgery and have had bladder issues since then. For the most part it wasn't too bad. I think between the radiation, surgery and infection nerves going/coming from my bladder were damaged. I just couldn't go anymore no matter how full my bladder was. So I have to use a self catheter. Now I'm on Cetuximab which is being tested with a new drug (Phase 3 trial) called Imprime PGG. The Imprime is now giving me other bladder issues. Lot more leakage. Not particularly fun.
Kyle. Male: 44
dx stage 4 RC w/mets to liver & lungs 3/29/12 - CEA 2937
1st of 15 FOLFOX 4/16/12
9/24 11 tx - CEA 12.9 10/4 CT scan - no lesions in lungs.
12/10 Rectal tumor removed
5/20/13 1st of 16 FOLFIRI
2/3/14 1st Cetuximab

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rodey
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Location: Bethlehem, PA

Re: Urinary issues?--radiation

Postby rodey » Wed Apr 16, 2014 12:15 pm

Did radiation trigger menopause? My gyn told me a combination of radiation and menopause weakens your pelvic floor, resulting in some dribbling. Fun stuff.
-Rose-
38 years old
Initial Stage IIIb diagnosis in Dec 2010 @ 34 y.o.
Now Stage IV with lung mets.
Miss December 2014
http://www.colonclub.com/the-2014-colondar/december-2014/

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beccab1
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Re: Urinary issues?--radiation

Postby beccab1 » Wed Apr 16, 2014 12:16 pm

Eric has urgency issues - with basically no warning, he has to go and go bad... He hasn't seen a urologist but probably should. His surgeon said it's normal...
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

Carolinagirl
Posts: 73
Joined: Mon Dec 17, 2012 7:39 pm

Re: Urinary issues?--radiation

Postby Carolinagirl » Wed Apr 16, 2014 1:17 pm

Thanks for the replies. Sometimes you just want to know that what is going on is "normal".
12/12 colon resect. Stage IIIb 35 yo
KRAS mutant, MSS
1/13 Folfox
11/13 local recurrence pelvis
12/13 Folfiri + Zaltrap x 4
2/14 xeloda + rad x 28
5/14 lung mets/resection
6/14 Irinotecan/5FU
9/14 Posterior Pelvic Exenteration
10/14 Xeloda/Avastin
11/15 peritoneal mets
FOLIFIRI + zaltrap

grace06
Posts: 16
Joined: Thu Dec 05, 2013 2:05 am

Re: Urinary issues?--radiation

Postby grace06 » Wed Apr 16, 2014 3:43 pm

I had my radiation/5FU close to the end of 2009. My Radiation Onc stressed to me the 'importance' of having a really full bladder before radiation. Every day about 3 hours before treatment I drank 6 (8 0z,s) of water.
They even used a brace like object pushed against my bladder, to help protect my bladder from the radiation while on the table.

I took 6 to 8 imotium at that time also to stop or help with the diarrhea that I was prone to.

There were a couple of times I had diarrhea 'anyway' and they made me wait in the clinic until I had drank the water and my bladderr was full.

All this time and I have not had a bladder problem.

NO one has mentioned having to do that proceture?

This may be something anyone starting onethe Radiation may wish to speak with the Radiologis' about.


I really don't post much, but if this can help any one, then I am overjoyed I could help a bit.

grace06
Dx w/ colon/rectal cancef 9/9/09
Rad/chemo pump Dec 09 through Jan 2010
Surgery April 2010 (colostomy)
Oxi/5fu started June 2010
developed heart and breathing problems
then blood clots
stopped treatments at 6


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