Scared- advice needed

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Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Scared- advice needed

Postby Girl111 » Sat Apr 12, 2014 2:19 am

Hi

My father had his surgery 2 weeks ago . He is dukes c1 with local
Lymph nodes affected .

I am
Now worried regarding meta as I've read stage 3 has more chances if mets occurring right ?

Last scans were done feb but wondering whether we shod get them done again .

Will chemo help ?
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !

User avatar
chemo sabe
Posts: 444
Joined: Fri Mar 09, 2012 9:01 pm

Re: Scared- advice needed

Postby chemo sabe » Sun Apr 13, 2014 5:26 pm

Dear Girl111,
your internet search engine will pop up a ton of stuff for you and your Dad to read and learn enough to ask questions of his doctors. Here is a site that will start you. http://www.cancerresearchuk.org/cancer- ... wel-cancer Colon Cancer is very sneaky and can return. I can only tell you not to dwell on the Statistics. We have no way of telling the future.

As far as adjuvant chemo is concerned, in America, standard of care says you will get chemo following surgery. However, this is not true everywhere. I think the Europeans will not give chemo until or if the cancer returns. Lots of people get chemo and get sick again, lots of people remain disease free. The first big thing was your fathers surgery to remove the tumor. For a shot at the best outcome, the pathology report should say "clear margins".

Here is hoping your father has a good outcome!!
64 year old male
Diagnosed Stage 3 Rectal Cancer - T3N1M0 - Oct 2011
28 radiation treatments with xeloda
Colon resection with ileostomy Feb 2012
8 Rounds of Xelox completed Sept 2012
Ileostomy reversal surgery Oct 2012
Incisional Hernia Repair Nov 2013

Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Re: Scared- advice needed

Postby Girl111 » Tue Apr 15, 2014 1:13 am

Thx

What does "clear margins' mean ?

I will check to see if it states this.

He was t3n2m0.
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

" Clear Margins "

Postby O Stoma Mia » Tue Apr 15, 2014 4:49 am

Girl111 wrote:...What does "clear margins' mean ?

The concept of "clear margin" is discussed in the following report:

Understanding Your Pathology Report: Colon Cancer
Margins
Your report may comment on margins. This is the area at the edge of the specimen that was submitted. When performing a cancer surgery, the surgeon attempts to remove the entire tumor and some normal tissue surrounding it. This area of "normal tissue" is important because any stray cancer cells may be included in this. If the edge (or margin) contains tumor, there may have been cancer cells left behind. The goal of surgery is to achieve a "clear margin", that is, clear of any cancer cells.


ooooo
Last edited by O Stoma Mia on Wed Apr 24, 2019 1:43 am, edited 2 times in total.

Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Re: Scared- advice needed

Postby Girl111 » Tue Apr 15, 2014 1:59 pm

Thank you . I will have to check that .

But a re occurrence is high for stage 3 right ?

Could some cells have escaped from the primary tumor even before surgery ?

Tina
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Scared- advice needed

Postby NWgirl » Tue Apr 15, 2014 3:53 pm

Girl111 wrote:
Could some cells have escaped from the primary tumor even before surgery ?



Yes. I had clear margins at surgery, received chemo after surgery and had a recurrence 3 years later - determined to be from the original tumor.

You can drive yourself crazy over all of this - try not to. Many stage 3's survive - many don't. It's all a big crap shoot. All you can do is have him follow his doctors advice, try to stay active, eat right, all that good stuff and just hope for the best.

If he had scans done in February, there's probably no reason to scan again so soon. When I finished my post surgery chemo, because I had so many lymph nodes affected (27 of 38 removed); we scanned every 3 months the first year; every 6 months the second year - and then the cancer returned. The most frequent I've seen most scanned is every 3 months - and that was to either watch for a recurrence after finishing chemo - or in my case now to monitor the chemo I'm receiving to see if it's working on the active cancer cells (if it isn't then we change chemo regimens).
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

lentini66
Posts: 11
Joined: Wed Mar 19, 2014 9:13 am
Location: Denver, CO

Re: Scared- advice needed

Postby lentini66 » Tue Apr 15, 2014 4:01 pm

Hi,
They found my stage 3 in December 2012 and I have had several scans that show I am currently cancer free.
If you dig around you will unfortunately see that recurrence rates for stage 3 are high. The best reason to have Chemo is hopefully to kill any escaped cancer cells.
Get your dad's docs to do scans every 3-6 months.
Blood tests more often.
The anxiety leading into my scans is difficult but the relief after the news that there is nothing there will be tremendous.
Good Luck.
Andrew
Dec. '12 StageIIIc diagnosed
Dec. '12 colon resection-colostomy
Jan.'13 Folfox x12
July 13 Chemo ended
Sept 13 Colostomy takedown-Protective Ileostomy
Nov 13 Ileostomy reversal
Since then, 4 CT scans, NED

Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Re: Scared- advice needed

Postby Girl111 » Thu Apr 17, 2014 3:25 pm

Thx all.

Should he stop smoking and alcohol? He has a drink a day and few cigarettes a day ?
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !

User avatar
chemo sabe
Posts: 444
Joined: Fri Mar 09, 2012 9:01 pm

Re: Scared- advice needed

Postby chemo sabe » Thu Apr 17, 2014 6:38 pm

Dear Girl111,
How old are you and are you here in the United States?? I ask because I think your question about smoking is really silly. In America, unless you are a child, it is well known that smoking causes cancer and heart disease. I know your father is not sticking those smokes up his butt, however, smoke and carcinogens are swallowed and end up down there anyway. Colon cancer is well known for metastasizing to lungs and liver - does he really need to smoke??
64 year old male
Diagnosed Stage 3 Rectal Cancer - T3N1M0 - Oct 2011
28 radiation treatments with xeloda
Colon resection with ileostomy Feb 2012
8 Rounds of Xelox completed Sept 2012
Ileostomy reversal surgery Oct 2012
Incisional Hernia Repair Nov 2013

User avatar
horizon
Posts: 1535
Joined: Tue Apr 12, 2011 10:10 pm

Re: Scared- advice needed

Postby horizon » Fri Apr 18, 2014 7:31 am

NWgirl wrote:You can drive yourself crazy over all of this - try not to. Many stage 3's survive - many don't. It's all a big crap shoot. All you can do is have him follow his doctors advice, try to stay active, eat right, all that good stuff and just hope for the best.


This is great advice. You're not a doctor and can't predict what will happen. Every time I worried and tried to predict what was happening with me I was completely wrong. Of course you're going to worry because it's your dad, but try not upset yourself unnecessarily.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Re: Scared- advice needed

Postby Girl111 » Tue Apr 22, 2014 4:28 pm

Thx all for the replies .
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !

Girl111
Posts: 234
Joined: Fri Dec 06, 2013 4:43 pm

Re: Scared- advice needed

Postby Girl111 » Tue Apr 22, 2014 4:29 pm

Thx all for the replies .
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !


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