Best hospital

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Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Best hospital

Postby Maddielolo » Tue Apr 08, 2014 5:01 pm

What are the top hospitals for stage iv surgery/treatment? Trying to identify the best team I possibly can. Would prefer on west coast or northeast. Thank you in advance.

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Best hospital

Postby CRguy » Tue Apr 08, 2014 5:14 pm

Welcome to the forum.

I would suggest that you supply more specific information, so that others here might give more useful replies.

Is this an initial Stage IV diagnosis or a recurrence ?
Have you already had prior treatments and / or surgeries ?
What is the exact diagnosis : colon, rectosigmoid, low rectal, single met, multiple mets, liver, lung, both ???? ( Stage IV A or IV B ? )

There is a wealth of information here and to prevent you from having to read thousands of posts !!!!! (BTDT :shock: ) ...... the more info you could provide, will yield better answers to your questions. Someone's reply for having a single lung met treated on the west coast ( me ) may not apply to you if you have multiple liver mets and are considering surgeries or HAI on the east coast ...... just as one example.

Please give us more info and ask many more questions as you learn more here !

Best wishes,
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Best hospital

Postby juliej » Tue Apr 08, 2014 5:35 pm

I agree with CRguy. The "best" hospital for you depends on your precise diagnosis, which treatments and/or surgeries you've had so far, and where your mets are located. Then we can give you more targeted advice.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Best hospital

Postby andy21 » Tue Apr 08, 2014 5:37 pm

I would suggest MSKCC in New York or UCSF on West Coast:
Both have staff to take care of most types of CC.

http://health.usnews.com/best-hospitals/rankings/cancer
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Best hospital

Postby orcasres » Tue Apr 08, 2014 5:54 pm

The Seattle Cancer Care Alliance is excellent for most colon cancer needs, but it would be helpful to get more information. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Best hospital

Postby Maddielolo » Wed Apr 09, 2014 1:00 am

Thx and good points. So, 9cm mass in right colon and about a dozen liver mets ( we think). Nothing in lungs or elsewhere. Ct Biopsy tomorrow. Female, 33, young infant and husband. 6 weeks after giving birth started to get mild cramp on right side. Sort of felt something sometimes I thought. No other symptoms. Told doc about cramp so got ultrasound. Two days later CT. And an hour later results. No blood, no change in bowel, no anemia. Healthy, good diet, no family history.

Now trying out where to start... I'll fill in details after biopsy.

radnyc
Posts: 446
Joined: Tue Apr 06, 2010 6:32 pm

Re: Best hospital

Postby radnyc » Wed Apr 09, 2014 6:30 am

Hey there, you are young, in fairly good health and strong. My opinion is you need to hit this hard now when you can handle the treatments. There are a handful of excellent hospitals that treat advanced cancer around the country, but because of your liver involvement you should seriously look into MSKCC and HAI. Dr. Kemeny and her group have helped many with very similar presentations, don't wait too long. Good luck and keep us posted.

Al
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

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Nickmark59
Posts: 1033
Joined: Mon Nov 29, 2010 8:01 pm
Facebook Username: nickmark59
Location: Pittsburgh Pa.
Contact:

Re: Best hospital

Postby Nickmark59 » Wed Apr 09, 2014 7:20 am

UPMC Presby and Monitifiore in Pittsburgh Dr. Wolfgang Schraut one of the best Colon surgeons in area
CRC- IV 7-th yr Survivor -5 rectal tumors 1 bleeding with mets to liver
Rad. 36 treat.
with 6 Chemo 2-Ox.- 4 Fol.
surgery 15 hrs to resect colon and liver- Feb 08
follow up 6 chemo Folfox
www.darkinvestigations.blogspot.com

Bob_Weiss
Posts: 743
Joined: Sun Apr 11, 2010 11:23 am
Location: Brooklyn, NY

Re: Best hospital

Postby Bob_Weiss » Wed Apr 09, 2014 8:13 am

When I read ratings of the best USA cancer hospitals, MD Anderson(Texas) and Memorial Hospital(NYC) seem to always be on top. However, it depends on the type of treatment you will be receiving, and your specific CRC diagnosis. If you have a common type of CRC with no major complications, you will probably receive the standard treatment for your condition, which should be the same for all high-quality hospitals and there are many around the country.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Best hospital

Postby Deb m » Wed Apr 09, 2014 9:36 am

I can only tell you that we travel to Md Anderson cancer center in Huston, and we receive excellent care there. My husbands case was complicated, but I guess never terminal. If he were to be terminal, we would still go their. I have so much confidence in his doctors there. Your treated like a person, not a satistic, and the care is very personalized and based on studies and research done their. That being said, their are also other major cancer centers in the country that are excellent as well. I think some of these centers share their research and study results.

Best of luck to you,

deb m

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: Best hospital

Postby nkoske » Wed Apr 09, 2014 11:09 am

Any of these places would be solid choices

http://www.nccn.org/members/network.asp
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

sdp
Posts: 128
Joined: Tue Apr 03, 2012 2:34 pm
Facebook Username: Shitul patel
Location: Mumbai , India

Re: Best hospital

Postby sdp » Wed Apr 09, 2014 2:01 pm

If it is a liver surgery I hear the following drs ( in usa) are amongst the best,

Dr yuman fong - MSKCC

Dr Steve Curley - md Anderson

Dr dave Geller - UPMC

Dr H petrowsky - UCLA

..........
No actual experience with them bt this is what I found in my research as I got my liver resection done in Germany - dr hans schlitt.

You can search them and about them on the web - send them ur scans / email etc and decide for yourself
Dx sig CC/ liver mets stg4 dec/11
10 cyc FOLFOX+Erb
Resect CC And Liver July-Aug/12
2 cyc - FOLFOX+Erb
Erb only -Nov/12-mar/13
iRE to 2 liver met Oct 13
2nd recur Mar 14
Liver resect April '14
3rd recur -july '14
Microwave ablation-2 liver met- July '14

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Best hospital

Postby Maddielolo » Wed Apr 09, 2014 3:16 pm

Thank you all so much. This is a good start. One question: assuming on a standard tissue diagnosis, is this the type of thing where I can start chemo almost anywhere (stanford, ucsf, ohsu, Hutch) while I seek out opinions on liver mets, surgeries, etc with doctors/hospitals mentioned (Sloan, ucla, etc)? Want to hit this hard from the start.

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Best hospital

Postby Maddielolo » Wed Apr 09, 2014 3:34 pm

And other question is when so people think about surgery on larger colon mass? When mets small enough to due liver surgery? Or if large mass causes more problems? Or would someone consider going in for just the right colon mass now?

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Rob in PA
Posts: 2022
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Best hospital

Postby Rob in PA » Wed Apr 09, 2014 10:04 pm

If you have no immediate issues with blockage, they will probably recommend chemo first to try and shrink the tumors. Hope would be that liver is stable/shrunk and they can take out primary (colon) and then do liver at a later date. Typically will not do surgery on liver unless that is the only trouble spot (typically).

My best to you.

...PS. I'll throw my 2 cents in and give props to UPMC Shadyside in Pittsburgh. Dr. Matt Holtzman for liver.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED


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