NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Please feel free to read, share your thoughts, your stories and connect with others!
HardKnox
Posts: 96
Joined: Wed Jan 16, 2013 4:04 pm
Location: Crooked Lake, Wisconsin

Re: New thread for loved ones left behind

Postby HardKnox » Wed Apr 09, 2014 12:48 pm

My dear friend has been gone eight months now and I'm still a complete and utter mess.

I think about her the moment I lay down to sleep at night and the first moment I awaken. The void left in my life is absolutely CAVERNOUS.

I don't know why I still lurk Colon Club. I guess I've grown to care about so many of you, and I truly do undertand what you're going through.

I know one thing for sure, and that is I certainly feel alot more "finite" than I ever did before.

My heart goes out to all of you (those that have cancer and their caregivers) who are hurting.

HK
Wife DX bowel obstruction
Hemicolectomy 1/17/13
DX Stage IV CC
Recovery Jan - March
Relapse 4/10/13. Surgery 4/12/13
Ileostomy. Gastrostomy. Jejunostomy.
Home 4/22/13
Starting chemo 5/8/13
Round 1 FOLFOX
No more chemo
She died 7/28/13.

SMR
Posts: 631
Joined: Thu Feb 16, 2012 1:20 pm

Re: New thread for loved ones left behind

Postby SMR » Thu Apr 10, 2014 8:39 am

I feel so scared that I am losing all the important things I want so dearly to hold on to. I feel like I can't picture his face without looking at a photo, I can't hear his voice, feel his touch, remember that incredibly unique and amazing feeling of being his one and only. How can these things be so foreign, so far away? It hasn't even been two weeks since my love passed. If things are fading this quickly how will I ever survive? Some have said that I am still in shock and these things will come back to me. I certainly hope so because the pain and disappointment of this part is oh so much worse than I could have ever fathomed. I WANT to feel the pain of my incredible loss... I want to see his face everywhere I look, hear his voice in my head and on and on...
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: New thread for loved ones left behind

Postby andy21 » Thu Apr 10, 2014 4:27 pm

I keep a journal in Google Docs and write names of each city I lived or visited with my dad and then write what I remember of him.
It keeps growing every day and then I talk with my mom of specific incidents and days with him.
Keeps both me and my mom sane.

Among the desert of people in the world I knew, he was the Oasis.
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: New thread for loved ones left behind

Postby Laurettas » Thu Apr 10, 2014 5:59 pm

I still lurk here also to see how all of my virtual friends are doing and offer any little support that I can. My husband passed away 17 months ago after being diagnosed in April 2011.

SMR, you are experiencing what many call widow fog. I think it is our mind's way of protecting us from the overwhelming pain of losing the one we have become one with. For most widows/widowers it lasts about six months and then the pain and reality come back into focus. I have found that reading a widows' site is quite helpful in understanding what is happening to me. There seems to be a fairly common pattern to grieving the loss of a spouse and it is helpful to know that what you are experiencing is normal.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

livingbyfaith
Posts: 430
Joined: Wed Dec 31, 2008 5:06 pm

Re: New thread for loved ones left behind

Postby livingbyfaith » Fri Apr 11, 2014 10:53 am

My hubby went to heaven 10-24-13, the struggle has been rough. A great help to me has been Daily Strength site for widows and widowers, a message board of people going thru the same thing. They have been very comforting. Also a book "Hello From Heaven" is great and "Reflections of a Grieving Spouse" has also been a great help. God bless.
Hubby 72 cc
Resctn colon 07 stage 3/11 15 cm liver met CEA 3000+
CPT 11, 12 xelox kras wild gall blddr rem 7-12 & abltn
liver stents bi-mo gilbert lng mets , cpt-11 3-13, 2 hernia surgeries2013 & liver abltn went to heaven 10-24-13

Helen
Posts: 240
Joined: Wed Jul 11, 2012 11:50 pm
Facebook Username: helen.andersen

Re: New thread for loved ones left behind

Postby Helen » Fri Apr 11, 2014 6:47 pm

Hi Everyone,

Thank you for the birthday wish's! It has been 112 days since my beloved Pam was set free from the monster known as cancer.This week has been harder than last for me…. I am back to not being able to sleep, I am open to suggestions. I miss my darling Pam in every way,Pam was such a free spirit and so full of life until cancer robbed her of life. Pam was in such constant pain and I am grateful that that is no longer the case. Our oldest nephew and I were talking last weekend and he told me if I could bring Aunt Pam back I wouldn't because to have her be in the horrific pain she was in would just be cruel.He is a wise young man who has had to much loss to soon in his life,his mother my only sibling died 10-29-2012 in the middle of the night. My beautiful wife was 10 months into chemo for life at that point in time.

I feel lost and without direction,not really knowing how to go forward.I do see friends and our nephews visit often and our dogs and gardening keep me busy.Its just that everything is different now…For example I had lunch with an old friend yesterday and she said about half way thru our lunch.Wow this is so odd I think its the first time since Pam has been gone that we have had lunch alone and I just realized how weird it is that Pam hasn't called and you haven't called her and its just so strange.I said yes it is strange and heartbreaking and I do not like it one bit at all.

Peace and Love

~Helen
My partner of almost 18 years ***Wife as of July 1 2013***Pam was dx in Nov 2011
Stage IV advanced mCRC
Nov 2011 colostomy
Feb 2012 Folfiri
March 2012 Erbitux
May 2012 3 blood clots
June 2012 Lovenox
May 2013 FOLFOX
Dec 19 2013 My beloved was set free

DogMom
Posts: 63
Joined: Wed Jul 17, 2013 5:11 pm
Location: Irvine, CA

Re: New thread for loved ones left behind

Postby DogMom » Sat Apr 12, 2014 2:43 am

Helen.. I have never posted on the "wives etc.." Thread because I am a patient, not a caregiver. I have followed your and Pam's story for some time though. I was and continue to be inspired by your love for each other. It's apparent many others are too. I wish for you to know peace and joy again, but I fear that a after loss like you have suffered, it will take a long time for you to feel those those things. I wish I had some advice for you. I don't. Just know that you have blessed and inspired at least one person on this forum (and I know many more) by sharing your story.

Wishing you the best going forward. Bonnie
DX 2/08 St 2 Rectal C, 47 y/o
Transanal excision/radiation/Xeloda
mult Lung Mets found 7/09
Xelox + Avastin 5 TX
neuropathy: Xeloda + Avastin 12/09
12/10 40 day Avastin headache, Xeloda
6/11 SBRT lungs
1/13 Regorafenib
11/13 Xeliri-fail
3/14 Gemzar

User avatar
abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: New thread for loved ones left behind

Postby abuttigi » Sun Apr 13, 2014 4:23 pm

Today is Palm Sunday for us Catholics. My dad use to always get palms and make them into crosses. It's a common thing to do, so when I got home, I youtubed how to do it and made two. They are now resting against my framed photos of my dad. I couldn't find the strength to do it last year, and this year I didn't make it through without breaking down, but at least I did it.

Man this time if year my dad got so excited to get the garden ready and plant his veggies for the year. We use to always aim for my bday, may 3, to plant everything.

Lately, my extended family, specifically some of my uncles, have been putting so much pressure on me to take care of my mom since she doesn't drive. I eventually want to do a residency out of Michigan in a big city, but that would mean leaving her behind. People tell me it's my life, while my family implies that I need to stay home to take care of her. I know they will gossip about me if I leave, but I have a feeling I'll hate myself if I don't. My dad would be ashamed of them. I could really use his guidance now about what speciality to go into, and where. He had the uncanny ability to help me see what u really wanted without telling me or forcing me into anything. He supported me no matter what, which is more than I can say of my family now.

It's just very lonely. I'm sure it doesn't even begin to compare with loosing a significant other, but I know thus is a safe place to jot down how I feel, so there it is.

Angie
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: New thread for loved ones left behind

Postby vickitwo » Mon Apr 14, 2014 9:22 am

Angie,

You have worked so hard to get where you are at today. Follow your dreams, you have to make your own life. As a parent that is what I would want for my children. My oldest daughter is graduating from college in May and has started the process of applying for medical school. That was her Dad's profession. My heart aches for her that he is not around to share that with her. The two of them were very close. He was and would be so proud of her. You remind me of her. I wonder if the two of you could offer some support to one another? Good luck in your decision. :D
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

SMR
Posts: 631
Joined: Thu Feb 16, 2012 1:20 pm

Re: New thread for loved ones left behind

Postby SMR » Mon Apr 14, 2014 9:34 am

Angie,
I so agree with Vikki. You really NEED to follow your passion. You are going to be absolutely amazing and help countless people and families. The inner family drama is never easy to deal with, especially where guilt and the like are used. Out of curiosity, have you talked with your mom at all about this? I'm really early in the grieving process, but I'm constantly asking what my husband would say about every different situation that arises. I'm trying to guide my life based on seeking the kinds of answers we would come up with together. It seems clear that you've thought about what your dad would have to say...
Lots of love and good vibes to you,
Stacey
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: New thread for loved ones left behind

Postby janklo » Mon Apr 14, 2014 4:27 pm

Angie, as a mom, I too would want you to make your decisions based on what you want and what's best for your career, not on what your family thinks. You going away for residency is just temporary, you can always settle back where your mom lives later. Or maybe your mom will move where you live, maybe a change of pace would be good for her. Just follow your heart and don't feel guilty! Your dad is smiling down, proud of you every day.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Lois7718
Posts: 65
Joined: Sat Jul 24, 2010 10:10 pm
Facebook Username: Lois Rivet

Re: New thread for loved ones left behind

Postby Lois7718 » Tue Apr 15, 2014 9:28 pm

So nice to see this thread here. I haven't checked out the board in quite some time. I alternate between coming back to a place where Bill found so much community and support and staying away for fear of learning of more loss.

So hard sometimes to realize he has been gone for 20 months. Sometimes it seems like an eterinty and others like yesterday. I've found my self recently putting off getting my taxes done as I would have to deal with his unused vacation time, stock options and filing for the first time as a qualifying widow. I've never been so unhappy to get a refund :? Bill always hated getting a refund...he felt we should have been earning interest in stead of floating a free loan.

Lois
Wife of Bill5107
DX 7/10 Stage III

User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: New thread for loved ones left behind

Postby CRguy » Tue Apr 15, 2014 9:50 pm

Thanks for checking in Lois.
You and Bill are always part of this great group ..... at least, for your 100% KEWL screen names ( inside joke ) ... and the fact that :

"Farticus" will live forever in our hearts !

Love, Peace and Harmony
always on a Journey, my friend

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Diane61
Posts: 15
Joined: Sat Feb 22, 2014 10:57 pm
Location: Baton Rouge, LA

Re: New thread for loved ones left behind

Postby Diane61 » Wed Apr 16, 2014 1:53 pm

It's been 20 yrs since my dad passed away, 40 yrs for my grandfather, and now I'm fighting it again with my husband. This horrid thing called colon cancer is going to yet again, one day, take the third most important man from me. What's so ironic is I was 11 & 33 yrs old when they died, and if statics are accurate, onc is saying life expectancy is 2 1/2yrs, I'll be 55. I read on this blog and believe it was Bev G who wrote "if God gives us challenges according to our capacity, he must really think you're a badass"...well I want to be a whimp!
Caregiver of DH age 54
Colon resection 2/14
Stage IV multipal mets to liver
Folfox w Avestin starting 3/11 stopped 5/6
Folfiri + Zaltrap 5/28/14 stopped 7/23 liver mets bigger
Cetuximab + Irinotcan 8/13
Hospice

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: New thread for loved ones left behind

Postby vickitwo » Wed Apr 16, 2014 5:01 pm

Diane61,
Yes, I would want to be a wimp as well. Colon cancer is a cruel beast. I am a Louisiana native also, from a little town west of B.R. on I-10, known as the Crawfish Capital of the World. Makes my mouth water just thinking of those little critters. I bet they are real good about this time of year.
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54


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