Scanxiety? Who's scanning in the next few weeks?

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beccab1
Posts: 624
Joined: Wed Apr 14, 2010 7:37 pm
Location: Raleigh, NC

Re: Scanxiety? Who's scanning in the next few weeks?

Postby beccab1 » Thu Apr 03, 2014 9:19 am

Scanxiety sucks!! Good luck everyone! Positive vibes for you all :)
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

gtownguy
Posts: 151
Joined: Thu Nov 22, 2012 7:57 pm
Location: Washington, DC

Re: Scanxiety? Who's scanning in the next few weeks?

Postby gtownguy » Thu Apr 03, 2014 9:55 pm

I have a CT scan and blood work next Tues April 8th. Trying not to obsess over it too much.

Good luck and best wishes to all of you having tests coming up!
Sep 12 - dx rectal cancer - stage 3B - T3N1M0
Oct/Nov 12 - 6 wks daily radiation & Xeloda
4 Feb 13 - LAR w/ temp ileostomy
18 Mar 13 - install port
19 Mar - 02 Jul 13- FOLFOX chemo
23 Jul 13 - clean CT scans
26 Sep 13 - reverse ileo & remove port

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MariaMaria
Posts: 36
Joined: Tue Sep 08, 2009 1:03 am

Re: Scanxiety? Who's scanning in the next few weeks?

Postby MariaMaria » Fri Apr 04, 2014 11:39 am

Had scans yesterday-holding my breath

dianne052506
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Location: North Carolina

Re: Scanxiety? Who's scanning in the next few weeks?

Postby dianne052506 » Fri Apr 04, 2014 12:31 pm

Diane,
Sorry you're dealing with the anxiety so far in advance. I always have trouble praying for myself. What a good idea to go out and ask who else you could be praying for!
While I was on the trial, I had a scan every 6 weeks. Monday (April 7) is my first scan since the one in December where the IV contrast gave me such a fit. My onc felt sorry for me and made the follow up apt for Tuesday. Wonderful guy!
Dianne
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Scanxiety? Who's scanning in the next few weeks?

Postby KWT » Fri Apr 04, 2014 1:10 pm

Diane, I had my ct yesterday and had a good result. I'm sure yours will be good try not to worrie. Easier said than done.

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CRguy
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Re: Scanxiety? Who's scanning in the next few weeks?

Postby CRguy » Fri Apr 04, 2014 6:55 pm

SO....if by the next few weeks you mean ......... June or July something ( I have the referral in my drawer somewhere :shock: )
....then YES , I am.

@ my stage, my age and my mindset ....sorry BUTT ..WTF ?
it IS what it IS .... OR will NOT be ?????

SkiFletch would always propose the notion of :
" Will one second of my worrying change anything which is to come ? " .... OR some such.
Too busy enjoying life to search the forum right now ... BUTT I think (hope) you get the gist ?

Scanxiety is REAL .... BUTT so is REAL LIFE.
I quote :
BrownBagger " Living life, scan to scan. "
jmarie " Can't stop the waves, so learn to surf. "
bradyr " Sometimes, life IS what it IS. "
SBL " ...but not always what it seems. "
NWgirl " Don't retreat....RELOAD. "

.....need I go on ?

It IS a scan.
It is NOT your whole life.

One day, every way, on the Journey,
We deal, we feel, we move along ...and
MOVE ON !


Sorry, BUTT that is the ONLY way I have gone along this Journey of mine, which is way LESS than any of my homies I quoted above .....

Need more references ?
I could give about 50-60 more...BUTT I hope you get my drift.

A scan is scan ........... is a scan ...............

Harmony
Always

On a Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: Scanxiety? Who's scanning in the next few weeks?

Postby drebay » Mon Apr 07, 2014 4:12 pm

Had part of my scan on Friday, rest of scan on Friday (Insurance issues). Wish all here the best
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Scanxiety? Who's scanning in the next few weeks?

Postby dianetavegia » Mon Apr 07, 2014 5:26 pm

I'll be praying!
Blue Cross refused the PET scan and I'm having an MRI of the abdomen and CT w/o tomorrow (April 8th) at 12:40 and 2:30 in the next town. I'm a bit down and a bit nervous. Everything (including a hive where some elastic rubbed me all day) MUST be cancer.......

I decided against the panic type med and am just going with my Klonopin since it's long lasting and I will be either driving or having tests for hours. Won't get my results until Tuesday the 15th.

Glad for the GOOD news above and praying for the rest to have great news, also!
Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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Dobe Man
Posts: 75
Joined: Wed Oct 31, 2012 10:47 am
Location: Smyrna, GA

Re: Scanxiety? Who's scanning in the next few weeks?

Postby Dobe Man » Mon Apr 07, 2014 5:59 pm

Good luck to all. Had an ultrasound of my liver on 4/4, abdomen/ pelvis CT with contrast today 4/7, won't know anything until next week. My upper right quadrant/liver has been bothering me for awhile.

Sometime after seeing my oncologist in early December, 2013 he was diagnosed with bladder cancer, and was on his last round of chemo in early March when I went back, I was more than a little shocked. He had surgery the third week of March and doubt he has made it back to work, fingers crossed for him as he is a great guy. He had me go see a urologist last June for some tests due to the radiology notes from my 2013 CT scan regarding a potential issue with my bladder, which turned out to be OK, and then he has that diagnosis later in the year. Shocking to say the least.
4.2012 Dx @ 48 with CRC
5.2012 resection of 10" sigmoid colon/UR & 20 LNs
T3N0M0 2x1.5x.8 cm Adenocarcinoma low grade tumor
1-YR tests: clear scan, xray, ultrasound
3-small benign polyps removed during colonoscopy
Continued quarterly Onc apptmt

Sharona
Posts: 187
Joined: Sun May 19, 2013 3:06 am
Facebook Username: Sharon Rauch

Re: Scanxiety? Who's scanning in the next few weeks?

Postby Sharona » Mon Apr 07, 2014 6:12 pm

Thinking of you tomorrow,Dianne. I know it will be a long week until you get results. I'm having some later this month, don't have the date yet.
Hugs from down I 20,
Sharon
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
colostomy
FOLFIRI, FOLFIRI, avastin, Zaltrap
Stivarga
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15
http://www.caringbridge.org/visit/sharonrauch

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: Scanxiety? Who's scanning in the next few weeks?

Postby nkoske » Mon Apr 07, 2014 6:21 pm

I'm doing blood work on the 24th, which will likely be a nothing burger as my CEA has never as much as blipped. We are keeping an eye on my Vit D which has been low, but I've been 'loading' with about 4500 iu for the last two months.

No scan for me until Oct., but I am getting scoped in July. Fun Fun...

Good luck everyone!!
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

MHL
Posts: 5
Joined: Mon Apr 07, 2014 8:46 pm
Facebook Username: Mitzi.lanier

Re: Scanxiety? Who's scanning in the next few weeks?

Postby MHL » Mon Apr 07, 2014 9:40 pm

Dear Dianne, I will pray for you!!!! I'm new here. Colonoscopy today, approx 5 cm mass rectal. Please pray for me too. [quote][/quote]

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

Re: Scanxiety? Who's scanning in the next few weeks?

Postby Cherie » Tue Apr 08, 2014 12:18 am

I think we all need valium...No I'm not joking, I'm a hysterical mess at scan time. If getting whacked out on drugs for a day or two helps why the hell not. I hate living with such uncertainty hanging over me. I just want to be carefree...all this worry can not be good for our health. SO BRING ON THE VAIUM!!! :wink:
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: Scanxiety? Who's scanning in the next few weeks?

Postby drebay » Tue Apr 08, 2014 10:37 am

Man, I cannot type well anymore. Part of scan Friday, rest of it was yesterday......Results tomorrow.....
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

jcclay
Posts: 1
Joined: Tue Apr 08, 2014 11:32 am
Facebook Username: jill c clay

Re: Scanxiety? Who's scanning in the next few weeks?

Postby jcclay » Tue Apr 08, 2014 11:41 am

Hello Everyone,
This is my first post, and I have some serious scan anxiety. I was diagnosed with Stage IV Colon Cancer on October 9, 2013. I am 46 years old, mother of 4, (actually 5- my first daughter passed away when she was six months -SIDS), married, ran 3 miles 10 days before diagnosis, have always exercised, eaten well, etc... you know the drill. I have been in treatment since Oct. 30, just had number 11, and will go for number 12 next week, the 15th. I have my scan on the 22nd. The cancer is in my colon and liver. It has shrunk a little more than a third, my cancer markers went down from 68.8 to 9.6 from Oct to Jan. I have continued to work, and take care of my family, try and exercise, eat right, kale shakes, nutritional supplements, prayer, meditation, visualization... And still there are moments of every day I want to crawl in the back of my closet and stay there. I am posting because I need people who understand completely how hard this is. How hard it is to get out of bed each day and keep going. Thank you for listening.
Sincerely,
Jill


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