2 surgeries in a week

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

2 surgeries in a week

Postby Kathleen808 » Tue Apr 01, 2014 12:39 am

Hi,
I believe I wrote that Dick had surgery last Monday to get specimens to be sent to a biotech company. I will keep you updated on any progress from the company. It will take 2 to 3 months. That surgery went well even though he has been in pretty bad shape the past month or so. The lymphedema has been very bad and one of his legs had to be wrapped almost all the time. He has not been able to go in the ocean and the past 2 weeks he had been awake only about 5 hours a day. The pain was very bad and he was on a lot of pain meds. He had been off chemo for 5 weeks. We went to the oncologist thinking that he could start chemo again in a week. The meeting was hard as Dick was in such bad shape. Pain, fatigue, quite out of it. Half way through the visit his numbers come back and his kidney numbers were very bad. The oncologist said he had to go into the hospital right then. There were no hospital beds available so Dick waited it out in the oncologist's office on a bed. I wheeled him to the hospital for an ultra sound and then back across the street again for an appointment with his wonderful urologist (he saw him immediately at 3:00 Friday). The urologist said, let's put stents in at 9:30am tomorrow. Dick finally got checked into the hospital in a quite room with even a view of the ocean. Surgery (his second for the week) was at 9:30am and he was back up at the room by 2:00pm. By 4:00 he was eating, talking and looked so much better than he had in 2 months. And boy did the fluid come out. His kidneys had been a mess because the ureters had been blocked up, probably from cancer or scars, and once they got the stents in it was a huge relief. I am happy to say that his kidney numbers were normal today and the edema is way down. We hope that the stents can keep things flowing for a long time and he can get back on chemo and beat back the cancer. We also hope the edema stays away or is at least greatly diminished. I am finally home and he will be home tomorrow.
That's our story for the past week. This is a hard road and I am grateful when we get any bit of positive outcome. I hope he can get back up on his surfboard soon. I'll keep you posted.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: 2 surgeries in a week

Postby skypup » Tue Apr 01, 2014 2:54 am

So glad to read that Dick is getting some relief! And now, you too, I hope.

pukalania
Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: 2 surgeries in a week

Postby pukalania » Tue Apr 01, 2014 3:11 am

So sorry to hear you are going through all of
This but happy there is some relief
Hugs
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: 2 surgeries in a week

Postby Bev G » Tue Apr 01, 2014 5:59 pm

Hi dear Kathleen,

I'm so sorry to hear about what you and Dick have been going through. The lymphedema must be miserably uncomfortable. So glad they got those stents in. I hope in no time all his renal function will get back to normal and stay there, all the spare fluid will be peed away, and surfin' Dick will be out doing what he longs to do!

Love and hugs,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: 2 surgeries in a week

Postby elise » Tue Apr 01, 2014 6:06 pm

((((HUGS)))) to you both!
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: 2 surgeries in a week

Postby gep » Wed Apr 02, 2014 11:05 pm

Kathleen,
Glad to hear that things are going in the right direction.
All my best,
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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beccab1
Posts: 625
Joined: Wed Apr 14, 2010 7:37 pm
Location: Raleigh, NC

Re: 2 surgeries in a week

Postby beccab1 » Thu Apr 03, 2014 9:23 am

Glad he is feeling better! Thinking of you guys.
My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
ypT2N0M0
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: 2 surgeries in a week

Postby Maia » Fri Apr 04, 2014 6:26 am

Happy to hear the kidneys are better now. Surely that will help great time the lymphedema. Sending positive thoughts your way, Kathleen and Dick!

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: 2 surgeries in a week

Postby so-scared » Fri Apr 04, 2014 9:43 am

I sure hope that Dick feels better quickly and can get back to the beach where he belongs!
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: 2 surgeries in a week

Postby jgall » Fri Apr 04, 2014 2:04 pm

Thinking of you, Kathleen!

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: 2 surgeries in a week

Postby Guinevere » Sat Apr 05, 2014 7:11 pm

So glad he got some relief! Hopefully, he'll be back in the water soon. Keep us updated on how you're both doing.

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14


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