I had my ileostomy takedown on Jan 15th... 10 months prior I had a Jpouch created with a very low anal resection. On march 5th I was back in the hospital for a 3rd surgery to remove staples from the original surgery. My cancer was super ultra low in my rectum so the staples were killing me!
Since the staples were removed I'm still dealing with major pain, burning, pressure, stinging and very little control. What symptoms are normal of these and what is not?
I've laid in bed all day long as today has been violently painful with multiple bm's causing stinging burning and pressure and pain all inside. There is some outside pain however most is located inside. I've tried every cream butt balm etc. that they make I swear! I've even squirted straight lidocaine or straight hydrocortisone cream up there with no relief.
A perm colostomy bag is looking so very good to me as I'm struggling keeping hope alive. My PET scan is tomorrow.
I'm almost 10 weeks out and really struggling. If it wasn't for the pain, I could deal with this. But the pain is truly making it unbearable.