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Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 1:01 am
by michelle c
You are a wonderful friend, Maia. Sending love, thoughts, comfort, best wishes and peace to you and your dear friend from Australia.

Hugs xoxo

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 4:17 am
by pukalania
Big hug dear Maia xoxo

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 4:30 am
by Ajane
Hoping you and your friend can feel the love being sent your way.

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 9:26 am
by ColOrPan
Maia,
I am sorry about your friend, this disease really sucks so bad. I hope her mets will clear up again.

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 10:01 am
by pollo65
Sending prayers (Buddhists pray too) your way and her way.
Pollo 65

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 10:51 am
by Maia
Thank you, to all you.
Yes, Pollo, I do pray, exactly in that sense. That's why I said "keep her in your thoughts/ meditations/ prayers". How could I be offended by prayer, Janderson... only grateful for yours, and everyone's else.
Grateful for all you lovely words, I'm positive the good intentions will keep her as safe as possible. :)
Right now, she has not any symptoms from this -she emailed me that she went for a walk by herself, yesterday, and she's doing errands today.

Traveler, Laser Thermal Ablation in not available to her in Toronto, and I'm no in a position of suggest her any traveling. I suspect in other Hospital/center with GammaKnife they may use other approach: treat the lesions with GammaKnife, and use WB radiation after the ablation -WB at a lower dose, prophylacticly. But, again I'm not in a position where I could suggest her a review of the images in USA, for example.
In a last-ditch effort, I pointed her to that trial I've mentioned, for MRI guided Focused Ultrasound Surgery, which is other form of Thermal Ablation (using focused ultrasound instead of laser). (I've been ready for this since months ago: I knew GammaKnife/ Cyberknife would her doctor's plan A and, knowing that Plan B would be whole brain radiation, I had this trial ready to explore. She was proposed WB a Friday, the Saturday I was emailing back and forth with the main researcher and he accepted to review the MRI images. Had to tell my friend to send him the CD with the images -without giving her too much details-, which she did during the next week, but the lesions are not treatable with MRI guided FUS because of location. I don't know too much about *laser* thermal ablation but I have a feeling it would be the same case -these techniques are better for deep-seated brain tumours. Hers are on the cerebellum (left, recurrence at the surgical bed; right, a small new one).

Sharon, Traveler: I thought of you when I read about MRI guided Focused Ultrasound Surgery (Lee, I don't think you're at more risk of CC mets because your previous bening tumors, but you may also find this interesting in case the benign buggers bother you again : ) When I have some time and energy, I'll post about it in other new thread. It's really mind-blowing.

Thank you again, I really appreciate each one of your words.

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 11:02 am
by Guinevere
Sending thoughts of peace, calm, mercy and grace to your friend as well as to you! You are definitely a good friend.

God bless ~
Guinevere

Re: Brain mets -2nd round

Posted: Mon Mar 10, 2014 2:15 pm
by annalexandria
Bright sparks of love and hope coming her way from Seattle...and some for you too, Maia.
AA

Re: Brain mets -2nd round

Posted: Tue Mar 11, 2014 10:56 pm
by dianne052506
Maia,
Friends are the family we choose, and your friend chose very well when she included you in her life. My heart goes out to her with these new issues, and to you, with the pain of feeling apart and helpless.

I have been blessed with a small, but very precious, number of wonderful friends. Some of us have decided that the song, "For Good," from the Broadway musical Wicked, is "our song." It is two friends, about to be parted, singing of the impact each has had on the other's life. It will make you cry, but it is one of my favorite pieces.

Prayers and virtual hugs to you both,
Dianne

Re: Brain mets -2nd round

Posted: Wed Mar 12, 2014 9:32 pm
by gep
Hello all.
Maia,
My thoughts are with you and your friend.
Gloria