Brain mets -2nd round

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michelle c
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Re: Brain mets -2nd round

Postby michelle c » Mon Mar 10, 2014 1:01 am

You are a wonderful friend, Maia. Sending love, thoughts, comfort, best wishes and peace to you and your dear friend from Australia.

Hugs xoxo
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

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Location: Honolulu, Seattle

Re: Brain mets -2nd round

Postby pukalania » Mon Mar 10, 2014 4:17 am

Big hug dear Maia xoxo
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

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Joined: Tue Jul 23, 2013 3:03 am

Re: Brain mets -2nd round

Postby Ajane » Mon Mar 10, 2014 4:30 am

Hoping you and your friend can feel the love being sent your way.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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Joined: Thu Aug 22, 2013 2:15 pm

Re: Brain mets -2nd round

Postby ColOrPan » Mon Mar 10, 2014 9:26 am

I am sorry about your friend, this disease really sucks so bad. I hope her mets will clear up again.
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

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Facebook Username: pollo2
Location: central valley, calif

Re: Brain mets -2nd round

Postby pollo65 » Mon Mar 10, 2014 10:01 am

Sending prayers (Buddhists pray too) your way and her way.
Pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
chemo break

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Re: Brain mets -2nd round

Postby Maia » Mon Mar 10, 2014 10:51 am

Thank you, to all you.
Yes, Pollo, I do pray, exactly in that sense. That's why I said "keep her in your thoughts/ meditations/ prayers". How could I be offended by prayer, Janderson... only grateful for yours, and everyone's else.
Grateful for all you lovely words, I'm positive the good intentions will keep her as safe as possible. :)
Right now, she has not any symptoms from this -she emailed me that she went for a walk by herself, yesterday, and she's doing errands today.

Traveler, Laser Thermal Ablation in not available to her in Toronto, and I'm no in a position of suggest her any traveling. I suspect in other Hospital/center with GammaKnife they may use other approach: treat the lesions with GammaKnife, and use WB radiation after the ablation -WB at a lower dose, prophylacticly. But, again I'm not in a position where I could suggest her a review of the images in USA, for example.
In a last-ditch effort, I pointed her to that trial I've mentioned, for MRI guided Focused Ultrasound Surgery, which is other form of Thermal Ablation (using focused ultrasound instead of laser). (I've been ready for this since months ago: I knew GammaKnife/ Cyberknife would her doctor's plan A and, knowing that Plan B would be whole brain radiation, I had this trial ready to explore. She was proposed WB a Friday, the Saturday I was emailing back and forth with the main researcher and he accepted to review the MRI images. Had to tell my friend to send him the CD with the images -without giving her too much details-, which she did during the next week, but the lesions are not treatable with MRI guided FUS because of location. I don't know too much about *laser* thermal ablation but I have a feeling it would be the same case -these techniques are better for deep-seated brain tumours. Hers are on the cerebellum (left, recurrence at the surgical bed; right, a small new one).

Sharon, Traveler: I thought of you when I read about MRI guided Focused Ultrasound Surgery (Lee, I don't think you're at more risk of CC mets because your previous bening tumors, but you may also find this interesting in case the benign buggers bother you again : ) When I have some time and energy, I'll post about it in other new thread. It's really mind-blowing.

Thank you again, I really appreciate each one of your words.

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Re: Brain mets -2nd round

Postby Guinevere » Mon Mar 10, 2014 11:02 am

Sending thoughts of peace, calm, mercy and grace to your friend as well as to you! You are definitely a good friend.

God bless ~
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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Joined: Wed Sep 28, 2011 11:46 am
Location: Seattle, WA

Re: Brain mets -2nd round

Postby annalexandria » Mon Mar 10, 2014 2:15 pm

Bright sparks of love and hope coming her way from Seattle...and some for you too, Maia.
Mom, librarian
Dx age 43, Sept. '09, Stage IV Carcinosarcoma of the colon
5 surgeries, 2009-2011:
colon/sm. bowel res., node removal, peritoneum, hysterectomy
FOLFOX/Avastin Feb.'10-Aug '10
Carbo-Taxol Dec. '10-Feb. 2011
NED since Dec. 2011.

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Location: North Carolina

Re: Brain mets -2nd round

Postby dianne052506 » Tue Mar 11, 2014 10:56 pm

Friends are the family we choose, and your friend chose very well when she included you in her life. My heart goes out to her with these new issues, and to you, with the pain of feeling apart and helpless.

I have been blessed with a small, but very precious, number of wonderful friends. Some of us have decided that the song, "For Good," from the Broadway musical Wicked, is "our song." It is two friends, about to be parted, singing of the impact each has had on the other's life. It will make you cry, but it is one of my favorite pieces.

Prayers and virtual hugs to you both,
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again

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Location: Chicago, IL

Re: Brain mets -2nd round

Postby gep » Wed Mar 12, 2014 9:32 pm

Hello all.
My thoughts are with you and your friend.
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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