Postby AppleTree » Fri Aug 24, 2018 9:38 pm
I only had my bag for a short period of time, due to infection under it. Then I went through chemo. When I first got home I did suffer from terrible, painful LARS. Plus, it just popped out, no control at all. Metamucil gave me daily runs. I now have a monthly Sandostatin shot and take up to 8 Lomotol a day for diareah. I eat very bland foods, cooked veggies, cooked fruit, bananas, rice, yogurt, low fiber potato bread, rice, scrambled hamburger, etc. Spicy foods hurt way to much to make it worth it. So, my issue is diareah. If I can keep the stool firm enough, then it is less acidic on my skin and easier to clean up...having feces dripping down your legs is no fun, but I can deal with a semi-solid stool. I wear Depends anytime I go out because I never know when it will happen. The shot wears off in 3 weeks and then I am totally miserable and stick mostly with the BRAT diet. The issue for me is the incredible pain just before it comes out...often times no where near a toilet. Right now my insurance pays for the Sandostatin shot. But if I lost the ability to have the shot, I think I would get a permanent bag immediately.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital
2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!