OrchardWriting wrote:I guess this doesn't count of you had the works (anus, rectum, sigmoid colon) removed? I would love to find a way to control gas. Eating vegetables is tough for me because I need them and love them, but then get horrible gas that cramps my belly. Anyone have any thoughts?
laneylou wrote:...
I am a bit of an evangelist about this, because it was such a big deal for me - the penny that finally dropped and fixed I would say 85% of my reversal issues,and all the ones that were causing me the most distress. Bile acid diarrhea is underrecognized in general. There's no test for it in the US, if you have the symptoms you just try a bile acid sequestrant and see if it helps.
Here's a link to an article about bile acid diarrhea - if this sounds like you and you've had radiation, ask your surgeon/GI/onc about it. You never know if might help.
tammylayne wrote:Yes...I have this, but I have known about it for a while. I did the quiz and got a 41 : (
I have been doing a daily enema for the past 10 months because of this...and my life is pretty near perfect now...at least when it comes to managing my LARS. 30 minutes every morning and I am good to go for 24 hours about 99% of the time. MUCH better then when I was trying to manage the LARS, nothing seemed to work for me. I was going 20 - 30 times most days.
My surgeon diagnosed this, although I always believed it to be real....VERY real.
b29vince wrote:Are there doctors who specialize in this? It would seem that if (as one statistic I read) 60-90% of LAR patients have LARS this might be a good field to spend some time in.
chrisca wrote:laneylou wrote:...
I am a bit of an evangelist about this, because it was such a big deal for me - the penny that finally dropped and fixed I would say 85% of my reversal issues,and all the ones that were causing me the most distress. Bile acid diarrhea is underrecognized in general. There's no test for it in the US, if you have the symptoms you just try a bile acid sequestrant and see if it helps.
Here's a link to an article about bile acid diarrhea - if this sounds like you and you've had radiation, ask your surgeon/GI/onc about it. You never know if might help.
The link didn't work. Could you please check into it and repost if you can find it? Thanks.
tammylayne wrote:Yes...I have this, but I have known about it for a while. I did the quiz and got a 41 : (
I have been doing a daily enema for the past 10 months because of this...and my life is pretty near perfect now...at least when it comes to managing my LARS. 30 minutes every morning and I am good to go for 24 hours about 99% of the time. MUCH better then when I was trying to manage the LARS, nothing seemed to work for me. I was going 20 - 30 times most days.
My surgeon diagnosed this, although I always believed it to be real....VERY real.
Joecool1983 wrote:I had surgery back in April. Coming up on 4 months post surgery. I have been having bad LARS symptoms. I go from being extremely painfully constipated, to having bad stool fragmentation/clustering and going to the bathroom 20 times a day, to on my chemo/FOLFOX weeks and when I take stool softener, getting extreme diarrhea.
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