Chemo has stopped working - update 2/26/14

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kiwiinoz
Posts: 1170
Joined: Thu Jan 03, 2013 11:44 pm

Re: Chemo has stopped working

Postby kiwiinoz » Thu Feb 13, 2014 4:55 pm

Ashlee
When I came on to this board you were one of the stoic members of the club and I always appreciated the way you faced up to the reality of this disease. The disease my be progessing, you may or may not go for clinical trials, but I consider how you faced this adversity a source of hope and an example of how cancer my dominate one's body but not your spirit.
Best wishes with your decision
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Chemo has stopped working

Postby Maia » Thu Feb 13, 2014 5:04 pm

Ashlee, may each one of your days be full of life, lived at its fullest -love, laughter, joy, peace.
All my love to you ((hug))

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Chemo has stopped working

Postby mymom » Thu Feb 13, 2014 5:17 pm

I am so sorry. I am thinking of you.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

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stephh
Posts: 128
Joined: Fri Nov 04, 2011 9:51 pm
Location: Arizona

Re: Chemo has stopped working

Postby stephh » Thu Feb 13, 2014 5:42 pm

I'm so sorry to hear this Ashlee. You are one of the toughest people I know in this battle. You've been through so much. I completely understand your decision though. I think I'd do the same as you if I were in your situation. Enjoy the time you have which I feel will be longer than the doc expects. I imagine you will physically feel great being without chemo. Eat and drink how you feel! I've not been able to eat in over a year and a half due to surgical complications with this crappy cancer. I'd give anything to be able to eat anything again-including junk food! It's all about what I want at this point-not about what's healthy for me. Perhaps that's a bad way to look at it? I don't know. But I want to enjoy the time I have left as well.
Please keep us updated. We love and care for you.
2/9/11 Dx 33 yrs old-Stage IV
3/1/11 LAR-peritoneal met found
4/1/11 5 rds folfox/avastin
6-7/2011 radiation/xeloda
8-9/2011 3 rds folfox
10/12/11 mets-peritoneum
12/19/11 HIPEC
5/4/12-cervical mets
6/8/12-Hysterectomy/liver resection/HIPEC #2

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Rob in PA
Posts: 2022
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Chemo has stopped working

Postby Rob in PA » Thu Feb 13, 2014 6:31 pm

Keep proving them wrong Ashlee! U just never know.

Prayers with you friend.


Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Chemo has stopped working

Postby Lee » Thu Feb 13, 2014 7:22 pm

Ashlee,

I'm so sorry to read this. I hope you have many goods days ahead.

I truly respect your words and wisdom! But as others have said, I secretly hope your Onc is wrong.

Thinking of you and hoping and praying your upcoming scan can have some good news for you.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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edinaman
Posts: 1108
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: Chemo has stopped working

Postby edinaman » Thu Feb 13, 2014 7:44 pm

Ashlee, I am so sorry for your news. We are here for you on your journey, and support what choices you make.
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Chemo has stopped working

Postby tammylayne » Thu Feb 13, 2014 7:56 pm

Ashlee...like so many others I am saddened by this news. May you have much, much MUCH more time then anyone knows, and may your days be gentle and kind to you. Live it your way....I can't imagine you doing it any differently.
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Chemo has stopped working

Postby lauragb » Thu Feb 13, 2014 8:08 pm

I am sorry to see this subject line but when I read down further I am picturing you enjoying some good quality time off the chemo and I hope that time
lasts for a good long while.

Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Chemo has stopped working

Postby weisssoccermom » Thu Feb 13, 2014 9:22 pm

Ashlee,
I know that while this isn't the news you wanted to hear, you were prepared for it nevertheless. As you told me once, you knew that someday you would be presented with this news....you just didn't know when. I totally respect and understand your decisions...you've thought them out and you have to live your life the way that you want to. You truly are an amazing woman who has battled this disease with grace and dignity and I have no doubt that you will continue to do so in the upcoming days ahead. I hope that you are able to enjoy many chemo free days finding happiness in whatever activities and adventures that you choose to pursue. Please remember that we are here for you no matter what and I hope you will continue to frequent this site and keep us updated.
Hugs,
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Chemo has stopped working

Postby chrissyrice » Thu Feb 13, 2014 10:09 pm

Ashlee, you always said you would know when it was time to stop, so I am hoping that you have some good quality of life for the time that lies ahead.

I can tell you that you have always been one of my favorites on this board and I admire your choices in all that you have been through.

All of us will at some point follow you down this path to the end of our lives in this world. You have a wonderful legacy to leave us with. It is your legacy that matters most and what you have shared of yourself with others.

Whatever your beliefs or choices I support you with my kindness thoughts and prayers.

Much love,
Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: Chemo has stopped working

Postby horizon » Thu Feb 13, 2014 10:57 pm

I have nothing but respect for you and how you handle yourself in the face of this disease. You're one of my favorite people on here.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

Choijk
Posts: 109
Joined: Sun May 19, 2013 4:52 am
Facebook Username: June choi lee
Location: Glendale, ca

Re: Chemo has stopped working

Postby Choijk » Thu Feb 13, 2014 11:24 pm

Ashlee I have been following your posts since I've found this forum. I appreciate your realism and practicality. May you enjoy your chemo free days. Sending you blessings and positive thoughts.
Daughter to 73 yr mom at dx 5/16/13
6/5/13 rt hemi
T3n0mx (no prognostic factors)
No txmt, observation only
2/14- MRI: potential new primary. Biliary adenoma
5/1/14 liver resection (7th sector) and gallbladder also taken out

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Chemo has stopped working

Postby michelle c » Thu Feb 13, 2014 11:35 pm

Dear Ashlee,

Thank you for the update. I have noticed your absence - you have been missed here. I wish the news was different for you. I'm assuming that your tumor markers have gone up. I'm sorry to hear your news and that you have to give up working. I know that you are a realist, and that you will do what you need to do for you. Continue to live life. You are in my thoughts and prayers, Ashlee.

Michelle xx
Last edited by michelle c on Fri Feb 14, 2014 7:56 am, edited 1 time in total.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Chemo has stopped working

Postby CRguy » Fri Feb 14, 2014 12:44 am

Ashlee H. wrote:I know I haven't been around much lately. For those of us who are dealing with the end stages of this disease, the deaths of Gloria, Kathryn, plus so many others the last few months have really sucked out a lot of the hope. I know some newbies and NED posters get upset when bad news is posted. I wish everyone here could say they are NED and never have to deal with cancer again.
My chemo has stopped working. There is nothing else to try. I'll have a scan next week just to see where I'm glowing. I'm now preparing to quit work which was a very hard decision to make. The ONC gives me 6 months. I know he isn't God - I could be gone in 3 months or 18 months. From other friends I've known from this board, they had some pretty good months once they stopped treatment. That is my intention as well - to enjoy days without chemo in my body and just be in the moment of living. -Ashlee

I haven't been around much either Ashlee. I would read but not post too much … just did the Mod thing in the background.
Vicariously I have just lived what you speak of, with my father.
It is a very surreal dynamic, in so many, too many, ways to even describe.

Newbies and NEDs notwithstanding my friend, while I would not rub anyone's face in reality, I'll be damned if I would sugarcoat it.

It IS what is … not what if.
Quality not quantity.

Life on your own terms …. damn the torpedoes … full steam ahead.

Peace, Love and Harmony,
on every Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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