StupidAssCancer wrote:I had my ileostomy reversed Jan 15th. I am stage 3c and my original surgery created a Jpouch. I had my surgery 25 days ago and am still really struggling. Using the toilet 3 x an hour with urgency, however at night I am able to sleep without interuption. I'm taking benefiber, lomotil, and probiotics.
The things I'm struggling with are-
*The acid level in my output is so string it burns like crazy
* my output each bowel movement is very small. The constancy is like toothpaste but flat and ribbon like
* my cancer was very low in my rectum, I experience pain with gas and every BM at the surgery site
Three weeks out? Its sounds like you're bang on track to me.
The bad news - You probably have a way to go. The good news - It gets better. It really does.
The first two symptoms are, in my experience, par for the course. they come and go. They are nasty but they get better. You need the softest, most sensitive moist wipes you can find Expensive moist TP is good, but try a few different ones to find the best, they really are VERY different. The best of the best are sensitive baby wipes, but they can cause blockages when flushed in large numbers. You need a good, heavy, ideally zinc-based barrier cream and you need it in volume. I use a European one called "Mirfulan" but youll find lots of tips on suitable brands names in posts elsewhere here. A bidet is heaven, but don't be afraid of hanging your butt over the bath and rinsing with the shower head and some ph-neutral wash lotion.
As far as the pain goes - if you suffer burning that is clearly "further up" your system, have it looked at if it perseveres. I had an ulcer develop at the anastomosis site that was very painful. It also developed into a recurrence, so don't take that lightly.
If you really don't find things getting better (but you sound exactly like me, and mine did get better) there is a bowel training procedure on the web (from Andersomn? someone else will link it probably) that many people have found to be very useful.