Any Stage IV's that have been cured?

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Grace14
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Joined: Mon Oct 24, 2011 7:42 pm

Re: Any Stage IV's that have been cured?

Postby Grace14 » Thu May 31, 2012 7:55 am

I also agree with so-confused!! Everytime someone comes on here and is optimistic, you always find a way to bring them down and that's so unfair! I know that you have alot on your plate and that you know alot about this disease but that does not give you the right to shatter Someones hopes! Give it a rest Gaelen!!!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

missjv
Posts: 1416
Joined: Tue Sep 12, 2006 10:38 am
Location: FLORIDA

Re: Any Stage IV's that have been cured?

Postby missjv » Thu May 31, 2012 10:10 am

anything is possible so don't let anyone crap in your cornflakes. some people are cured some aren't some live many years with this disease some die right away. who is to say you or any of the rest of us are not curable? got to ignore the negative people. i was diagnosed 6 years ago stage 4 and im getting ready to walk out the door and go to the beach. will i ever be cured? who the hell knows but i have gotten the last 6 years to see my daughter go from 2nd grade to 8th grade. so far i have been very lucky to have minimal mets that were small and resectable. i have been through chemo, 3 nasty long and painful surgeries, rfa and that is so far. who knows whats next? there is new drugs in the pipeline for crc and who's to say those drugs won't beat the hell out of this disease. those of us with stage 4 disease know what we have we are not stupid. anytime i wake up on the right side of the turf is going to be another good day. will i die of cancer? maybe but i could also drop dead of a heart attack or get hit by a bus who's to say. no one has the right to crap on anyone's hopes just cause they think they know it all.


missjv

andy21
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Location: N California

Re: Any Stage IV's that have been cured?

Postby andy21 » Wed Jun 27, 2012 7:38 pm

Herman Cain also was Stage IV and is currently NED:

http://www.newsmaxhealth.com/health_sto ... 13023.html
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

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prtza
Posts: 405
Joined: Mon Apr 02, 2012 2:47 am

Re: Any Stage IV's that have been cured?

Postby prtza » Thu Jun 28, 2012 1:01 am

cptmac wrote:My doctors have stated that as far as they are concerned I am cured, and I haven't reached the 5 year mark yet.


It's almost 8 years now hey Cpt Mac?
DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013

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cptmac
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Facebook Username: Dorothy McGrath

Re: Any Stage IV's that have been cured?

Postby cptmac » Fri Jun 29, 2012 6:06 pm

Yes, it's been almost 8 years since I was diagnosed, almost 8 years since I was NED, almost 6 years from when my docs considered me cured, almost 3 years since I saw my oncologist, and now I can go for months without thinking that I had cancer..

The time, for me, went by faster than I could ever imagine. Easy to say now, that it is behind me..

I wish everyone the best of success with the newer treatment options....
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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dianetavegia
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Location: Villa Rica, Georgia

Re: Any Stage IV's that have been cured?

Postby dianetavegia » Thu Jul 12, 2012 8:20 am

Bumping this for Dixiecups, a new member who is Stage IV.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

taexali
Posts: 10
Joined: Thu Jul 12, 2012 1:41 pm

Re: Any Stage IV's that have been cured?

Postby taexali » Sat Jul 14, 2012 12:04 pm

Male 66 yrs.
DX 7/2007 Stage IV Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin)
11/2008 Ileo reversal
5/2009 Left lower lobectomy
7/2012 NED

I wish that I had discovered Colon Talk when I was receiving treatment.
There is so much useful information here that I missed out on and would have been most helpful.

Taexali
Male 74 yrs.
DX 7/2007 Stage IV Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy
11/2019 Still NED, 01/21 Skin Cancer!

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Any Stage IV's that have been cured?

Postby andy21 » Tue Oct 09, 2012 7:06 pm

Wade Hayes: Stage IV Colon Cancer Survivor

http://www.cmt.com/news/country-music/1 ... tory.jhtml
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

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Lara239
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Re: Any Stage IV's that have been cured?

Postby Lara239 » Wed Oct 10, 2012 10:48 am

Disclaimer for what I am about to say here: I do NOT have cancer myself and I am only a caregiver to my husband who is stage 3c
Our oncologist at Vanderbilt told me the day we were in his office that he believes that stage IV can be curable. I am SURE he did not mean every case...not sure what he meant as he was vague about it. He just said that all the tremendous advances in liver surgeries/treatments have made it possible. I have never heard a doctor or oncologist say that before. I DO know a lady who had stage IV CC with inumerable mets everwhere and now she has not one detectable cancer cell in her body now for 5 years. Not sure if that means she is cured or just in a really solid state of remmission. She did have loads of alterntative treatment (herbs and things) as well as regular chemo though...not sure if that is what made the big difference, guess you can never really know.
Another very good friend of mine who has stage IV colon cancer is also going to the same practice at Vanderbilt right now (different oncologist but same group/practice) and she was also told that stage for CAN be curable. I say CAN here as I dont like to give people false hope on this board....just repeating what our onocolgist said. She just got diagnosed this summer, was totally inoperable and now has had MAJOR shrinking of all tumors and will probably be operable soon. I guess everybody's case is just different.
wife of DH (age 41) DX 8/3/2012 with 10 cm tumor in decending colon
pre-surgery CEA 4.4, no spread to other organs
8/22 - resection DX stage 3c 9/44 positive nodes
10/3/2012 CEA 1.3
Lynch test negative, tumor IS MSI-H
Folfox 10/3/2012 w/Yance protocol

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Any Stage IV's that have been cured?

Postby andy21 » Wed Oct 10, 2012 5:32 pm

Another Book about long term Stage IV survivor since 20+ years.
Hope and Prayer together with a good medical team can do miracles even now.

http://www.amazon.com/Dawn-Will-Come-Ja ... 1605632503
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

sadysue
Posts: 986
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Location: Charleston, TN

Re: Any Stage IV's that have been cured?

Postby sadysue » Wed Oct 10, 2012 6:26 pm

I have a good friend who is a stage IV lymphoma (sp?) survivor - 12 years. She got cancer pretty young and is in her early/mid 50's now with grandchildren. What an inspiration!
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Any Stage IV's that have been cured?

Postby sadysue » Wed Oct 10, 2012 6:30 pm

Lara239.......what is your opinion of Vanderbilt? We are planning a move to TN once we get our house sold and Vanderbilt will be the closest big cancer center available to me. My current radiation onc is a graduate of Vanderbilt and currently practices at the Univ of PA Hospital in Philadelphia. He told me he could hook me up with doctors at Vanderbilt when I get down there. Thanks :D
Mary Ann
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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Lara239
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Re: Any Stage IV's that have been cured?

Postby Lara239 » Wed Oct 10, 2012 9:12 pm

sadysue wrote:Lara239.......what is your opinion of Vanderbilt? We are planning a move to TN once we get our house sold and Vanderbilt will be the closest big cancer center available to me. My current radiation onc is a graduate of Vanderbilt and currently practices at the Univ of PA Hospital in Philadelphia. He told me he could hook me up with doctors at Vanderbilt when I get down there. Thanks :D
Mary Ann


Well, so far we have been very impressed but we just started and we also have nothing to compare it to since neither one of us (my husband nor I) have had cancer before now. there is another large clinic here in Nashville but they are not even nationally ranked. Vanderbilt is ranked #29 out of 900 cancer treatment centers nationally so I guess they do very well. Like I said above, i have another friend who is stage IV and she was completely inoperable and had done 8 rounds of chemo at Vandy and I believe she will be operable soon because she is responding so well. She is in her 50's. The thing I like is they do not keep you waiting around so long...they give you a pager and move you along very quickly and I feel like it is such classy place. You get your very own chemo room when your treated which from what I have been told is rare. I would definitely choose Vanderbilt if I had a choice and was in Tennessee for certain! I just dont know how my husband will respond to his treatment since he has only had one so far....but it went okay, no major problems. I hope that helps from a newbie!
wife of DH (age 41) DX 8/3/2012 with 10 cm tumor in decending colon
pre-surgery CEA 4.4, no spread to other organs
8/22 - resection DX stage 3c 9/44 positive nodes
10/3/2012 CEA 1.3
Lynch test negative, tumor IS MSI-H
Folfox 10/3/2012 w/Yance protocol

sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Any Stage IV's that have been cured?

Postby sadysue » Thu Oct 11, 2012 8:38 am

Lara...thanks for the reply. Your info is much appreciated :D
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

pog451
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Facebook Username: andrew.morgan

Re: Any Stage IV's that have been cured?

Postby pog451 » Thu Oct 11, 2012 1:23 pm

I saw this thread pop up and revsited it in the light of my metastatic progression and have two thoughts.

The jury is out on whether I was StIV all along or have just had a rapid progression/recurrance (both are not good news) but my oncologist, who is a pretty down-to earth guy and very well aware that I am almost as well informed as he is and so could probably see through any smokescreen clearly expects to be able to cure me (his exact words, albeit in German), and that despite the assumption that I am currently probably inoperable (his assessment, not yet a surgeons). He promised to tell me if his opinion changed, which it might when we see how I react to Folfox, and there are lots of studies about how Docs are unwilling to communicate prognoses they fear themselves, but I dont think hes fazing me and I choose to accept his guarded optimism.

The other thought comes after I re-visited Gaelens "cold wind of reality" post. Quite apart from the fact that Gaelen has sadly proved herself right by passing recently despite a couple of extended periods NED, I realised she had made an error in presenting her (uncomfortable but based on solid facts) stats. She stated that "most people live the median of 3 years" (paraphrased). Well actually, of course, the whole point of the "median" is that exactly half the people studied (minus the guy who was the median) lived less than three years (and many considerably less - Its a sobering thought that up to 20 or 30% of the people diagnosed when I was a year ago may well already be dead), and exactly half (minus the median) lived longer. Now if you look at the curve (any survival curve) it continues to fall very steeply after the median and Im sure not many folks would regard it as a huge advantage to live 3 years + two weeks (which was essentially Gaelens point) but even so.

As a point of interest, the US Wikipedia page for CRC still has that stat that we know and love whereby overall long term survival @ STIV is 5%. The German wiki page now has "0-57%", which pretty much exactly reflects what newer chemo and advanced surgical techniques are achieving in pre-selected patients. Of course, the sum total may remain low, but its an indication that some of us stage IVs are increasingly in with a good fighting chance. Gaelen was fond of saying that the overall survival stats for CRC havent moved significantly in decades. In Germany (thats me), something like 65000 new cases (2008) are diagnosed a year. 5% is still 3250 people. A 1% increase (I dont know the excat number or even if there has been an increase like this) in overall survival would mean 650 more people staying alive and most of the research and progress is at Stage IV. Every little helps and each and every one of those 3250+650 is a person. One could be me. Or you. Hopefully AND you.

Yeah, im lying here with my Folfox flowing and have nothing better to do. Does it show? ;-)

Stay well, fellow survivors.
09.11 Dx @ 46, uT3uN1M0 G2
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015


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