Ileostomy Reversal-Is there anything I can do to prepare?

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StupidAssCancer
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Ileostomy Reversal-Is there anything I can do to prepare?

Postby StupidAssCancer » Fri Jan 03, 2014 2:35 am

Hi,
Thank you for your comments! I am having my ileostomy take down on the 15th of this month which is a little over 2 weeks away. I'm wondering is there anything I can do prior to the surgery take down to help prepare my body, rectum, etc for this? I have read a lot of the comments here on the forum but I do not find a thread with ideas or helps pre-surgery. Maybe there are not any and we just need to take the cards as they fall so to speak, however if there is something I could be doing I sure would like to know about it. Lord knows my Dr isn't telling me anything. :roll:
Second questions- I developed post surgery when I got my ostomy a rather large hernia under my stoma. It is the size of a football. My dr will be repairing my hernia at the time of my bag takedown surgery as well. Has anyone had this happen to them, and if so how was your recovery? Any pre or post surgery tips on dealing with the hernia portion of the surgery?
Thank you and god bless each and every one of us!
xo, Alys
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy

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O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby O Stoma Mia » Fri Jan 03, 2014 4:55 am

StupidAssCancer wrote:Hi,
Thank you for your comments! I am having my ileostomy take down on the 15th of this month which is a little over 2 weeks away. I'm wondering is there anything I can do prior to the surgery take down to help prepare my body, rectum, etc for this? I have read a lot of the comments here on the forum but I do not find a thread with ideas or helps pre-surgery. Maybe there are not any and we just need to take the cards as they fall so to speak, however if there is something I could be doing I sure would like to know about it. Lord knows my Dr isn't telling me anything. :roll:
Second questions- I developed post surgery when I got my ostomy a rather large hernia under my stoma. It is the size of a football. My dr will be repairing my hernia at the time of my bag takedown surgery as well. Has anyone had this happen to them, and if so how was your recovery? Any pre or post surgery tips on dealing with the hernia portion of the surgery?
Thank you and god bless each and every one of us!
xo, Alys


Alys - You can get information on ileostomy reversal preparation by doing a Google search with keywords ILEOSTOMY REVERSAL PREPARATION

Also, in the time between now and your reversal surgery you should try to do as many Kegel exercises or sphincter excercises as possible in order to strengthen your sphincter muscles.

SphincterExercisesforBowelControl

===
You can get information from relevant threads on this Forum by using a Google search on the Internet and including COLONCLUB among the keywords. (NOTE: COLONCLUB is typed as a single 9-character word, with no embedded spaces.)

Examples of Google search keywords, in UPPERCASE: (Searches such as these will retrieve relevant Forum threads ordered by popularity and frequency)

Google: COLONCLUB KEGEL EXERCISES

Google: COLONCLUB ILEOSTOMY REVERSAL

Google: COLONCLUB HERNIA REPAIR

Google: COLONCLUB INCISIONAL HERNIA

Google: COLONCLUB BUTT PAIN
====
EDIT:
See leaflets below:

Stoma Reversal Leaflet

Regaining Bowel Control Leaflet
Last edited by O Stoma Mia on Thu Dec 28, 2017 12:22 am, edited 2 times in total.

jean60
Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby jean60 » Fri Jan 03, 2014 8:25 am

StupidAssCancer wrote:Hi,
Thank you for your comments! I am having my ileostomy take down on the 15th of this month which is a little over 2 weeks away. I'm wondering is there anything I can do prior to the surgery take down to help prepare my body, rectum, etc for this? I have read a lot of the comments here on the forum but I do not find a thread with ideas or helps pre-surgery. Maybe there are not any and we just need to take the cards as they fall so to speak, however if there is something I could be doing I sure would like to know about it. Lord knows my Dr isn't telling me anything. :roll:
Second questions- I developed post surgery when I got my ostomy a rather large hernia under my stoma. It is the size of a football. My dr will be repairing my hernia at the time of my bag takedown surgery as well. Has anyone had this happen to them, and if so how was your recovery? Any pre or post surgery tips on dealing with the hernia portion of the surgery?
Thank you and god bless each and every one of us!
xo, Alys


I am sure others will chime in here but the best advice I can give regarding the reversal is to do the Kegels, do the Kegels and then do the Kegels. That will be beneficial for you however the reversal goes and from what I can see, there is a large variety of experience with reversals so some of it truly is wait and see.
I had my reversal done last May and a hernia repair 2 1/2 weeks ago and I truly cannot imagine going through both at the same time. However, all that means is that I haven't experienced it! My hernia was in the main incision from the LAR but I know my surgeon also reinforced/worked on the former stoma area as well. Hernia repairs are known for being painful recoveries (again, experiences vary) so I wish you the best with that and everything.
Let us know how it goes!

Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

stevieb
Posts: 407
Joined: Sat Feb 09, 2013 12:26 am

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby stevieb » Fri Jan 03, 2014 1:35 pm

In my experience, I needed lots of ointment and adult diapers until my body adjusted. Metamucil helped to slow things down to get formed stools and not go as often. You will have to figure out what works for your body. Well Wishes!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

Oneeyeddog
Posts: 101
Joined: Sat Apr 06, 2013 11:06 am

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby Oneeyeddog » Fri Jan 03, 2014 1:47 pm

Thanks for starting this thread, Alys. Interested in this as my reversal is scheduled for Jan 29th. I haven't really started researching this as wife is due baby at the moment, but those Kegels exercises sound like a great tip. Will definitely start doing them. Good luck with the surgery, Alys.
Colon cancer Stage 3c (dx April 2013) at age 36
Resection and temp ileostomy (4/17)
12 rounds of FOLFOX (May-Oct 2013)
NED (August 2014)
http://www.theoneeyeddog.com

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby justin case » Fri Jan 03, 2014 4:10 pm

This may not help you, as much as someone else. Please find a place to donate your leftover ostomy supplies, mine were gratefully received. May your transition be all you want it to be!
warm regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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StupidAssCancer
Posts: 69
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Facebook Username: Alys.Geertsen
Location: Utah

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby StupidAssCancer » Fri Jan 03, 2014 5:52 pm

Thank you to all who posted comments. I have found them all very helpful. I have started my Keagle's and also read the attached link pamphlet of rectal exercises.
OneEyeddog, I just finished spending the past hour on your blog. Laughed my ass off so entertained by your experiences and ability to share them in such a great way. I want to be your new best friend. the kind that meets me at the bar for a few rounds and we laugh and talk about the bullshit we have been through. Thank you for making my day, my week and my month! Geesh and they always said I was hard to please!
xo,Alys
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy

gtownguy
Posts: 151
Joined: Thu Nov 22, 2012 7:57 pm
Location: Washington, DC

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby gtownguy » Fri Jan 03, 2014 9:42 pm

I had a small hernia that was also repaired at the same time my ileostomy reversal was performed. In my case, I don't think it really changed anything about the reversal.

As far as preparation goes, I would bring some Depends with you to the hospital. Once you're reconnected, the floodgates are open.

Also stock up on Calmoseptine ointment (it's over the counter) - really the best thing to help the inevitable "butt burn."

Good luck with everything!
Sep 12 - dx rectal cancer - stage 3B - T3N1M0
Oct/Nov 12 - 6 wks daily radiation & Xeloda
4 Feb 13 - LAR w/ temp ileostomy
18 Mar 13 - install port
19 Mar - 02 Jul 13- FOLFOX chemo
23 Jul 13 - clean CT scans
26 Sep 13 - reverse ileo & remove port

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StupidAssCancer
Posts: 69
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Facebook Username: Alys.Geertsen
Location: Utah

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby StupidAssCancer » Fri Jan 03, 2014 10:57 pm

Ok great advise! Ill go tomorrow and get both the ointment and the adult diapers! I never ever thought I'd say those words!
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy

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Rob in PA
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Location: Pennsylvania

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby Rob in PA » Sat Jan 04, 2014 12:55 am

Agree...kegel, kegel, kegel. And even then be prepared for accidents... :shock:

Just remember the big picture and your recovery will be over soon enough.

Best
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

Rheaeliza
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Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby Rheaeliza » Sat Jan 04, 2014 9:58 am

Yes thanks for this thread! My reversal is scheduled for Jan. 17th, so it sounds like there are a few of us going through the same thing at the same time. I, too never thought I would have to make a run to the store to buy adult diapers and bum cream at this age (31). Oh well, at least I no longer have to buy tampons. Saving money there at least.

I guess this beats my purchases of metamucil and ensure.
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13

Oneeyeddog
Posts: 101
Joined: Sat Apr 06, 2013 11:06 am

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby Oneeyeddog » Sat Jan 04, 2014 1:26 pm

Nothing like being in your 30s and running out for adult diapers. Not looking forward to that part, but them's the breaks I guess.
Colon cancer Stage 3c (dx April 2013) at age 36
Resection and temp ileostomy (4/17)
12 rounds of FOLFOX (May-Oct 2013)
NED (August 2014)
http://www.theoneeyeddog.com

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby lauragb » Sun Jan 05, 2014 12:06 pm

We are all so different.
So there is a minority of folks who have more issues with getting anything to come out than with loose movements. If you're one of these, you may not need the depends, but the calmoseptine will be your
friend. Or if you end up needing to use miralax or milk of magnesia, then you may want to keep those depends on hand just in case.
It seems like some folks recover easily from the reversal too, but the first weeks following the takedown are challenging for most. You will get through it just like you have everything else.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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StupidAssCancer
Posts: 69
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Facebook Username: Alys.Geertsen
Location: Utah

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby StupidAssCancer » Sun Jan 05, 2014 12:56 pm

Has anyone tried doing warm water enimas prior to reversal surgery to help tone and strengthen muscles?
:? Curios about this?
xo, Alys
Stage 3c Colorectal Cancer
Surgery March 2013 Jpouch Temp Iliostomy
May 2013Chemo Infusions 5-FU Oxi Lev-Allergic
Radiation w/Xeloda Chemo-Allergic
Oct 2013 Reversal of Ostomy Nov 2013 Perm Ileostomy
Feb 2016 Ostomy collapsed moved to other side
Jun 2016 colon removed permanent ileostomy

Cured
Posts: 571
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Ileostomy Reversal-Is there anything I can do to prepare

Postby Cured » Sun Jan 05, 2014 6:22 pm

Alys, Concerning the hernia which the ostomy in essence created: Let it heal. My surgeon was very, very cautious about letting me lift anything or get aggressive with exercise. It was 6 months before he allowed me to do serious exercise. I also know several people who have had hernia repairs and tore them by doing too much too soon. Be patient.

(sorry I am not touching the enema question)
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
Folfiri
CEA 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7,2.2,5.7,5.3,2.3.4.8,8.4,9.1
12 rd Folfiri
Avastin ev 2 wks
Seizure Anti-seiz meds work-no driving for 6m
4-20PET: Lung spots=Chemo


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