Our Kathryn UPDATE

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Our Kathryn UPDATE

Postby Bev G » Mon Dec 30, 2013 12:02 pm

Hello All,

I detest posting this, but wanted to wait until I had discussed this with Kathryn before posting here. She wanted me to let her friends here know the following:

As someone else mentioned, Kathryn was discharged from the hospital in time to share Christmas with her husband Bruce and all of her children. She's posted lots of comments on Facebook about the wonderful times she has had with them.

Kathryn was discharged to Hospice care. Her oncologists feel she is too ill for any further treatment. It is not entirely clear if the duodenal cancer is a new primary or metastatic disease from the CRC, but that matters little. She has asked me to say that she is not expected to live very long.

I am sickened to even type this. So many of us know Kathryn very well, and love her so dearly. She is a warrior like few others, and I wouldn't put anything past her, including, once again, showing her doctors wrong. She has asked NOT to be called, but I believe welcomes messages that DO NOT require responses. She is very, very tired.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Our Kathryn UPDATE

Postby Val*pal » Mon Dec 30, 2013 12:10 pm

I'm so sad to hear this. Best wishes for you, Kathryn, and know that we are all with you in spirit.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: Our Kathryn UPDATE

Postby Laurettas » Mon Dec 30, 2013 12:17 pm

Kathryn, I am sorry to hear this news but I know that you will approach this new stage of your journey with the same grace and courage that you have displayed throughout this most difficult of challenges. God bless you and your family.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Our Kathryn UPDATE

Postby BrownBagger » Mon Dec 30, 2013 12:23 pm

My thoughts are with Kathryn and her family. Such a strong, inspirational woman.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

ann13
Posts: 74
Joined: Sun Oct 20, 2013 12:03 pm

Re: Our Kathryn UPDATE

Postby ann13 » Mon Dec 30, 2013 12:27 pm

Kathryn, my thoughts and prayers are with you at this time. I pray that God will give you and your loved ones the strength to weather this storm.
Mom diagnosed with Stage IV CC 10/13
tumor removed and colon resectioned 10/13
Chemo started 11/13 - error relating to pump caused death two days later
became my guardian angel:)

Alreadyhere
Posts: 89
Joined: Wed Oct 03, 2012 6:38 pm

Re: Our Kathryn UPDATE

Postby Alreadyhere » Mon Dec 30, 2013 12:27 pm

I'm so very sorry to read this. I've learned a lot from Kathryn's postings in my short time here. I will hold her and her family in my prayers!
DH Diagnosed 2012 @ 34 stage iv
Resection/Folfox
Confirmed distant LN
Radiation
More distant LN
Folfiri + Avastin
Stable - No shrinkage or Growth
Erbitux only for past 2 years
More distant lymph nodes
Radiation
Stable and off treatment since Fall 2017.

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Our Kathryn UPDATE

Postby Maia » Mon Dec 30, 2013 12:34 pm

Grace and courage, yes, that defines Kathryn so well.
Kathryn, I love you. May you be free from suffering and the causes of suffering, may you be surrounded by love.

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kellywin
Posts: 492
Joined: Wed Jan 23, 2013 4:46 pm
Location: Northern CA

Re: Our Kathryn UPDATE

Postby kellywin » Mon Dec 30, 2013 12:35 pm

I am so sorry to hear this. My thoughts are with her and her family.
Kelly, mom 14 yo girl
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Kathryn UPDATE

Postby CRguy » Mon Dec 30, 2013 1:06 pm

Kathryn,
know that all of the ColonClub is sending their love.

You don't need to reply,
but you do need to know,
we are thinking about you
and hold you in the light
and in our hearts.

Namasté my friend
wherever our Journeys may take us

Peace, Love and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lisahopes
Posts: 328
Joined: Wed Oct 17, 2012 2:09 pm

Re: Our Kathryn UPDATE

Postby Lisahopes » Mon Dec 30, 2013 1:10 pm

Kathryn, you are always an inspiration to us all.

I send you my love and blessings for this part of your journey.

Peace and love,

Lisa
Daughter to Mom, 65, Stage IV with mets to liver, lungs and peri.
Dx 2006, Stage II.
Regular check October 2011, Stage IV established.
She has had Oxi, Folfox and Xeloda, now Avastin.
Progression.
Mom died on April 5th 2013.

hummingbird3
Posts: 56
Joined: Sat Sep 14, 2013 5:11 pm

Re: Our Kathryn UPDATE

Postby hummingbird3 » Mon Dec 30, 2013 1:23 pm

I will be keeping you close in my thoughts and prayers Kathryn. Peace and comfort to you.
9/11 dx CRC, colectomy/ileostomy, Stage IIIC :shock:
11/11 - 6/12 FOLFOX/nulasta
7/12 watching possible cyst on ovary ... 8/12 it grew
10/12 hysterectomy, oophorectomy, complications/blockage, TPN
Stage IVa
12/12 small bowel resection
3/13 -9/13 FOLFIRI/nulasta
NED
10/14 - 2/15 close monitoring
4/15 it grew
PET/biopsy .. local recurrence
8/15 surgery
NED ... No chemo!

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Our Kathryn UPDATE

Postby janklo » Mon Dec 30, 2013 1:32 pm

Kathryn has definitely fought long and hard. I hope she is pain free and with her loved ones for now.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

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abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: Our Kathryn UPDATE

Postby abuttigi » Mon Dec 30, 2013 1:39 pm

Thinking and praying of our dear Kathryn, her husband, and her children. I hope she is pain-free and at peace. What an inspiration.
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

ammthere 4mom
Posts: 218
Joined: Tue Sep 07, 2010 8:37 pm

Re: Our Kathryn UPDATE

Postby ammthere 4mom » Mon Dec 30, 2013 3:05 pm

Kathryn,

I am thinking of you and your family and sending you all the love and light possible.

Anne-Marie
Daughter and caregiver to mom, 72 @ dx in 7/09
Stage IV with mets to liver and lung
8/09-7/12: 24 rounds of Folfiri + 12 rounds Folfox
2013: Zeloda and Stivarga, then 36 rounds of 5FU
10/2014 back to Folfiri

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: Our Kathryn UPDATE

Postby Hapa » Mon Dec 30, 2013 3:20 pm

Peace and love to Kathryn & her family.
DH Stage 3 RC


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