Our Kathryn UPDATE

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ConnieSPK
Posts: 144
Joined: Tue May 07, 2013 6:28 pm
Facebook Username: Connie Perkins Kreienheder
Location: Dardenne Prairie, MO

Re: Our Kathryn UPDATE

Postby ConnieSPK » Tue Dec 31, 2013 12:31 am

I'm so sorry to hear this latest news. Kathryn, you are an inspiration. My dearest hope is that you are pain free and recovering....God's watchful hand be holding yours.

Connie K.
Dx08@54,StgIV Colon,Liver,Lung, ColonSurg,FOLFOX+Beva
09 LiverSurg
10 FOLFIRI+Beva
11 FOLFOX+Beva,ox reaction
12 Bi-lat LungVATS
13 New mets L lung FOLFIRI+Zaltrap,5FU reaction
14 Return mets L lung SBRT,successful
15 Lung Spots, Irinotecan

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ConnieSPK
Posts: 144
Joined: Tue May 07, 2013 6:28 pm
Facebook Username: Connie Perkins Kreienheder
Location: Dardenne Prairie, MO

Re: Our Kathryn UPDATE

Postby ConnieSPK » Tue Dec 31, 2013 12:54 am

Bev,

Thank you for keeping us updated, sending you hugs

Connie K.
Dx08@54,StgIV Colon,Liver,Lung, ColonSurg,FOLFOX+Beva
09 LiverSurg
10 FOLFIRI+Beva
11 FOLFOX+Beva,ox reaction
12 Bi-lat LungVATS
13 New mets L lung FOLFIRI+Zaltrap,5FU reaction
14 Return mets L lung SBRT,successful
15 Lung Spots, Irinotecan

jdepp
Posts: 488
Joined: Sun Sep 28, 2008 7:53 pm

Re: Our Kathryn UPDATE

Postby jdepp » Tue Dec 31, 2013 1:08 am

Kathryn,

You can handle this the same way you you've handled everything, with intelligence, guts, love, and grace. Here's wishing you a great new year.
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18

rcap
Posts: 25
Joined: Sat Apr 27, 2013 3:45 pm
Facebook Username: rita caprilli

Re: Our Kathryn UPDATE

Postby rcap » Tue Dec 31, 2013 1:31 am

Dear Kathryn:

My prayers are with you and your family/

rcap
DH 58 stage 4 cc
surgery 2/28/13 15/17 LN
distant LN
no organs involved
12 treatments folfox/avastin
ned from Sep to jan /14

michelle c
Posts: 1882
Joined: Wed Dec 02, 2009 3:58 am

Re: Our Kathryn UPDATE

Postby michelle c » Tue Dec 31, 2013 5:30 am

Thank you for the update Bev. The news actually makes me feel physically sick too. I'm so sorry to hear this. Kathryn is one wonderful lady that's for sure, her spirit and courage never ceases to amaze me. She is loved so much. May she be comfortable, at peace and surrounded by her loved ones.
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

mymom
Posts: 1274
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Our Kathryn UPDATE

Postby mymom » Tue Dec 31, 2013 7:55 am

My prayers are with you and your family.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

SoConfused
Posts: 1024
Joined: Mon Jan 30, 2012 2:40 pm

Re: Our Kathryn UPDATE

Postby SoConfused » Tue Dec 31, 2013 11:44 am

My thoughts and prayers are with dear Kathryn and her family. My hope is that she is spending peaceful, quality time with her loved ones.
Stage IV CC

scattered edge
Posts: 405
Joined: Sun Jul 31, 2011 6:45 pm
Facebook Username: Rosie Englebert-Elmore

Re: Our Kathryn UPDATE

Postby scattered edge » Tue Dec 31, 2013 12:19 pm

My thoughts and prayers are with Kathryn and her family.

Rosie
resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

Lee
Posts: 5971
Joined: Sun Apr 16, 2006 4:09 pm

Re: Our Kathryn UPDATE

Postby Lee » Tue Dec 31, 2013 12:32 pm

Kathryn,

I am so sorry to read this. I hope & pray you are pain free, surrounded with love with your family and friends.

Thinking of you,
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

weisssoccermom
Posts: 5956
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Our Kathryn UPDATE

Postby weisssoccermom » Tue Dec 31, 2013 6:34 pm

Kathryn,
May you and your family find peace in the upcoming days and weeks.
The strength, tenacity and courage that you have shown over the past 4 years has been a inspiration not only to those on this board, but I'm sure also to your family and friends.
Take comfort, Kathryn, in knowing that you have fought a long and hard battle and that we are all proud of you.
My wish for you is that you find happiness and comfort surrounding by your family and friends and that you can spend quality, pain free time with those whom you love.
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

rp1954
Posts: 1521
Joined: Mon Jun 13, 2011 1:13 am

Re: Our Kathryn UPDATE

Postby rp1954 » Tue Dec 31, 2013 7:00 pm

Best wishes for you and your family, Kathryn.

I want to especially thank you Kathryn for all, for your many contributions to penetrate the fog and map the mysteries of Mt Olymphia, long whited out by silence, medical misinformation, and the unknown here, until starting 2010.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Our Kathryn UPDATE

Postby chrissyrice » Tue Dec 31, 2013 8:09 pm

Kathryn,
I so wish you could stay forever and continue to be my hero and our example for living with terminal cancer.

The same day I read this message that you had entered hospice I got the bad news that my cancer is back.

Mets to the bones and skipped the liver and lungs. I am heartbroken for us both as your cancer followed this same path.

Rare but real. And this is exactly how I would describe you.

Thank you for your work to bring the world closer to a cure for colon cancer.

Hugs.
Chrissy Rice
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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WorriedWife
Posts: 1125
Joined: Tue Jul 24, 2012 5:41 pm

Re: Our Kathryn UPDATE

Postby WorriedWife » Wed Jan 01, 2014 2:23 am

Dear Kathryn,
My prayers are with you and also your family.
Hubby
CC Stg. 2b
Dx 6/12
surgery & reconnect
opted out Folfox
Pet Scan Aug NED
abscess/fistula for over a year
ongoing Dec 2013
Praying for each and every one of you

Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: Our Kathryn UPDATE

Postby Badass » Wed Jan 01, 2014 2:29 pm

Kathyrn,
I deeply hope for you warm and pain-free time with your family. Thank you for being a strong presence on this board and in my cancer experience.

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

FatBob2012
Posts: 198
Joined: Tue Jul 03, 2012 3:41 pm
Facebook Username: arthur.h.baker1
Location: Texas, USA

Re: Our Kathryn UPDATE

Postby FatBob2012 » Wed Jan 01, 2014 5:58 pm

Hope and healing for Kathryn and her family this New Year's day.
Stage IV 5/2012
FOLFOX + Avastin
Liver res 7/2012
Chemo 9/2012
NED 10/2012
CEA @ 5 mets lung&liver 12/13
Liver spot 3.7 x 2.5 cm found January 2014
Cystectomy 2/14
3/14 FOLFIRI 8 treatments
10/14 CEA 3 with stable METS
12/14 CEA 51 :-((


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