hospital over 2 weeks - very ill

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Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: hospital over 2 weeks - very ill

Postby Ajane » Wed Dec 18, 2013 2:51 pm

Praying for answers and wishing you a pain-free Christmas with your kids.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: hospital over 2 weeks - very ill

Postby chrissyrice » Wed Dec 18, 2013 3:42 pm

My dear Kathryn, so sad to hear you are so ill. I am praying for your comfort, peace and time with your family.
Just can't express how much I admire you and your incredible courage and gifts you have given with your knowledge and time helping to find the cure.
Love you,
Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: hospital over 2 weeks - very ill

Postby skypup » Wed Dec 18, 2013 3:58 pm

I'm holding you in light, Kathryn, hoping for good news soon!

Justinm
Posts: 7
Joined: Thu Dec 13, 2012 5:45 pm
Location: Minnesota

Re: hospital over 2 weeks - very ill

Postby Justinm » Wed Dec 18, 2013 4:20 pm

I don't post on this site very often, but I felt compelled to do so, as I have read many of your posts. I wish you the best and hope for a good outcome. Your story and knowledge is an inspiration to many of us who are fighting and tend to be more passive on this site. Wishing you the best.
Dx 9/28/2012 bowel obstruction @ age 32
Right Hemicolectomy 10/1/2012
Stage IIIc, 9.5 cm tumor in transverse colon, 53/95 nodes, T3 N2B M0
Folfox 6 graduate 5/8/13
Currently NED
Kids: boy born 4/8/12, girl born 11/1/08, and a wonderful wife

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: hospital over 2 weeks - very ill

Postby juliej » Wed Dec 18, 2013 5:59 pm

Holding you in the light, Katherine. And hoping your energy returns enough to spend some good quality time with your family over the holidays.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: hospital over 2 weeks - very ill

Postby Lee » Wed Dec 18, 2013 7:36 pm

Kathryn,

So sorry to read this. I hope the Dr.(s) have a plan of action, but MOSTLY, I hope you are PAIN FREE!!!

You are in my thoughts and prayers.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

kmv
Posts: 64
Joined: Fri Aug 02, 2013 6:56 pm

Re: hospital over 2 weeks - very ill

Postby kmv » Wed Dec 18, 2013 8:03 pm

I have been following your story, and really pulling for you. I am terribly sorry about this setback. I will pray for you.
39 yo mother of 3
7/29/13 dx rc six wk postpartum, met to liver
10/9/13 finished 2 cycles FOLFOX
12/2/13 finished chemorad
1/3/14 liver resect
2/28/14 APR
7/16/14 finished 4 cycles FOLFOX
7/28/14 CT scan NED
10/27/14 CT scan 3 lung lesions
2/15 finished 4 cycles FOLFIRI
4/15 VATS on right lung
four mets in left lung, 2nd VATS on 5/21/15

gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: hospital over 2 weeks - very ill

Postby gep » Wed Dec 18, 2013 8:39 pm

Thinking of you and your family.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: hospital over 2 weeks - very ill

Postby Guinevere » Wed Dec 18, 2013 9:05 pm

Dearest Kathryn,
I was shocked to read about a new primary! Although it does help explain a little about the weird crap you've been going through. I hope you can enjoy your time with your kids and that they can come up with a doable plan to help you get through this. You and the family have been and continue to be in my prayers.

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: hospital over 2 weeks - very ill

Postby ziggymonster » Wed Dec 18, 2013 9:40 pm

I, also, have followed your story since joining...you are a true inspiration too many. Wishing you are painfree and now on the mend.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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DBF
Posts: 328
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: hospital over 2 weeks - very ill

Postby DBF » Thu Dec 19, 2013 5:55 am

I have also been following your story, sending good thoughts. I wish you a pain-free and quick recovery.
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :)
2021: NED :D
2022: NED :)
Mom to 3 boys: 24, 13 & 9

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: hospital over 2 weeks - very ill

Postby Hapa » Thu Dec 19, 2013 2:19 pm

I woke up this morning & had the strongest urge to PM you. We haven't really had any personal communications but the feeling was so overwhelming. I am sorry to learn of your recent health struggles. You are such an important part of this community. I have appreciated all of the information you have shared. Praying that you get pain relief & can enjoy the holidays with your family. Thinking of you fondly.
DH Stage 3 RC

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barbara jayne
Posts: 759
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: hospital over 2 weeks - very ill

Postby barbara jayne » Thu Dec 19, 2013 5:56 pm

So sorry to hear this Kathryn,
Thinking of you and sending my very best wishes to you.

Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

ColOrPan
Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: hospital over 2 weeks - very ill

Postby ColOrPan » Thu Dec 19, 2013 9:41 pm

So sorry to hear this Kathryn. I hope that they can figure out a plan soon. I hope that they can keep you comfortable in the mean time so that you can enjoy you children's company.
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: hospital over 2 weeks - very ill

Postby pfCml73183 » Thu Dec 19, 2013 9:59 pm

Kathryn, I hope you are now healing and getting rest.
I will say prayers for you, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15


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