Traveler's update - good news overall.

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Traveler's update - good news overall.

Postby Traveler001 » Thu Nov 21, 2013 11:45 pm

Hello all,

I just wanted to get in touch and let you know how things have been going, now that I am back from MD Anderson. After a scan and a meeting with my oncologist, I have some good news. It turns out that the Folfiri and Vectibix is working, and after 4 rounds the scans show no new growths, and some shrinkage of the tumors. The plan is to keep on truckin.

So that's the good news.. the bad news is that I feel really rung through the ringer chemo-wise. Tired, and not eating very well. Vomiting daily. Plus the Vectibix caused a rash that is stronger than when I had an Erbitux rash back in 2007. I feel like it is the 9th round, when it has only been the 4th. I had chemo 9 days ago and I am still not feeling up to eating a "meal." I would be surprised if I don't end up spending a day or two in the hospital, sooner than later at this rate.

However, while waiting for my appointment with my oncologist, I started talking with a guy sitting next to me. I thought he was a family member of a patient. Turned out that he himself was a stage IV survivor waiting to see his oncologist. He told me that he has been through it all. Chemo for 18 months, Surgery, Radiation, and Chemoembolization of the liver as well. I was pretty amazed, he seemed like he was in great shape, with no signs of what he had been through. It was inspiring to see and reminded me that there is a light at the end of the tunnel. It is a rough road, but I just have to keep moving forward.

Anyhow - that's what is new. Overall good news I would say.

Hope you have a good Thanksgiving,

Diagnosed June '07
Laparoscopic LAR surgery - 7/12/07
Stage IIIC 4/21 nodes
FOLFOX6 and Erbitux started 8/24/07
Completed 11 / 12 on 1/15/08
New 4.5 cm lung mass and lymph nodes discovered 7/12
Folfiri w/ Avastin on 9/14/12 - 11/29/12

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Re: Traveler's update - good news overall.

Postby CRguy » Fri Nov 22, 2013 12:40 am

Traveler001 wrote:.... the scans show no new growths, and some shrinkage of the tumors. The plan is to keep on truckin.

Good plan !
...... stable ... and shrinkage ... priceless !!!!!!

Take care of yourself along the way buddy.
Sorry the juice is hitting you so hard, but keep fighting the good fight.

Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: Traveler's update - good news overall.

Postby skypup » Fri Nov 22, 2013 4:24 am

Hey, Trav, thanks for the report and YAY for the good news. Maybe it's the vectibix that's hitting so hard. I know it must be tough when you posted recently how great you were doing physically.

I'll be down to see our doc in a couple of weeks. Wish me luck...

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Re: Traveler's update - good news overall.

Postby jens22 » Fri Nov 22, 2013 9:18 am

I'm sending you strength and Anti Nausea from NY!!!
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

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Joined: Fri Feb 06, 2009 10:07 am

Re: Traveler's update - good news overall.

Postby ams5796 » Fri Nov 22, 2013 9:35 am

Good news, Traveler! You're the one who's an inspiration. Happy Thanksgiving to you!

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Kathryn in MN
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Location: Minnesota & Mexico

Re: Traveler's update - good news overall.

Postby Kathryn in MN » Fri Nov 22, 2013 9:46 am

Great news. I hope you can get your hands on some medical marijuana - makes a big difference with nausea, vomiting and appetite.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining

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Rob in PA
Posts: 1995
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Traveler's update - good news overall.

Postby Rob in PA » Fri Nov 22, 2013 9:50 am

Stable is a word I've really come to appreciate! Great news overall!

dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Traveler's update - good news overall.

Postby Val*pal » Fri Nov 22, 2013 11:44 am

What great news!

My husband is having side effects from the Folfiri/Erbitux right now and his tail is dragging: no energy, has to force himself to eat. So we can see where you're coming from.

Enjoy your Thanksgiving!
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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Re: Traveler's update - good news overall.

Postby Guinevere » Fri Nov 22, 2013 2:51 pm

Another good stable report at the Colon Club! I love it! I'm so sorry, though, that the Vectibix is being so hard on you. Beside Phenergan and Zofran, I've found sipping lemon ginger tea (Stash is the brand I use) really does help with the nausea and/or queasiness.
Hope you're feeling up to enjoying Thanksgiving. We're still here so we do have that to be thankful for and there are probably lots of other things as well.

God bless ~
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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Joined: Fri Sep 07, 2012 1:37 pm

Re: Traveler's update - good news overall.

Postby Busymamaof3 » Sun Nov 24, 2013 8:02 am

Have you tried acupuncture for the nausea? I am staying very consistent with it this time and I find it helps tremendously. She puts seeds in my ears that I keep in for 4 days at a time. I can push on them with a wave of nausea and it kicks it back. I still have some on the 3 chemo days but nothing like without it and I seem to rebound faster.
Dx Stage IV CRC 8/12, 40yrs old
3 kids under 10
10/5/12 1 met to liver
folfox w/avastin 4 rds
Folfox alone 4 rds
HIPEC/CRS 2/13/13
Back on Folfox 3/12 - 4/23/13
It is back 8/23/13
FOLFORI 9/13-1/14 cea up
Folfox 1/13
Hipec w crs #2 2/27/14

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Re: Traveler's update - good news overall.

Postby BrownBagger » Sun Nov 24, 2013 9:22 am

What Kathryn said, Trav.

Glad to hear the the treatments are working. Like you, I look to longterm survivors who had it as bad as (or worse than) me, and take inspiration from that. "Hey, what's that guy got that I ain't got?" Signs of active disease, for one. That's a great goal. As well as I handle chemo (22nd infusion of the current program tomorrow), I'm looking forward to the day when I can get off this stuff and get my body back. May never happen, but I'm optimistic, as always.

Take care, my friend. You too are an inspiration to many here.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Re: Traveler's update - good news overall.

Postby Hapa » Sun Nov 24, 2013 12:55 pm

Great to see a post from you. Especially a post with good news!!
DH Stage 3 RC

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