Postby j'swife » Wed Nov 20, 2013 12:13 am
Jason, this is so hard and I already posted an opinion early today, so this second bit should not be counted as a new vote.Just mor eexplanation. I think that you need to be in a nationally ranked cancer center from the beginning of your treatment because you are young with advanced disease and you deserve everythign science has got on your side including very well trained experienced specialists in your surgery. Your surgeon shuldl be part of a team with oncologists for continuous care You live where there are two, #5 ranked Dana Farber and #6 ranked Mass General. If your GI surgeon operates at one of these facilities, then go for it if 1- he has done hundreds of colorectal cancer surgeries and also if he can tell you there will be a team of different specialists who are cancer scialists working with him and/or evaluating you after the quick surgery.
If not, your oncologist should not be at all hurt for you to insist that you need her to expedite you into one or the other of these centers because she believes your blockage is an emergency and she knows your situation is very risky. Ask whether, if you wait till the friday appointment, the doctor you consult is likely to admit you immediately if he/she agrees the blockage is dangerous.
Here is a sneaky question: if you are forced to wait longer-i.e to Friday- to see the specialist at D-F, can you position yourself nearby so that if the blockage become too great you check in to the emergency room at D-F/Brighams or MGH? A safety net to land you in the right spot to snag a specialist if you need one fast? Definitely consult your original doctor on this whacky strategy; see whether it is a last-ditch option to put yourself in the Center that will have most of what you need and a lot of experience while keeping you safe..
Tough stuff! Keep up with asking questions as you have been!
All the best..
DH 63 12/12 unresectable liver mets. 2/13 Ffx-Avstn fail. 4/13 HAI pump@MSK. 8/13 mets 50%;Resectn & LAR 10/13.NED! Folfiri & FUDR. reversal 4/14. 3 lvr spots 10/14. 5FU+FUDR. 5/15 resectn/IRE . 7/15 lung 'thingy' 9/15. FUDR, Xeloda. HFS. 2/16 RFA of lung met. FUDR/IRI. 4/16 2 lung 1pelv spots. XEL, stop FUDR. 6/16 RFA 2of 3 mets. XEL. D.10/3/2016 of infection post surgery to remove aortic clots (rare Budd-Chiari syndrome) in local hospital. HAI success! then blindsided...