Day 14 in the hospital- improving

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Kathleen808
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Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Day 14 in the hospital- improving

Postby Kathleen808 » Fri Nov 15, 2013 1:55 am

Hi Everyone,
We are spending our 14th night in the hospital tonight and things are moving along. Looking back 2 weeks, I can't believe what terrible condition Dick was in when he entered the ER. His pain was at a constant 9-10 and he was on heavy, heavy pain meds. Pain was just relieved for about 15 minutes at a time. After the surgery that Monday, things have very, very slowly been improving with slips back. They were so worried about his kidney numbers and potassium and magnesium which help regulate the heart.
The NG tube came out tonight and he is starting to sip clear liquids. They are being very cautious which we support. I am happy to say that the weather here is fantastic and we have been taking walks outside a couple times a day. The next few days will be critical as they get him back on food. Of course the hell of it is we are getting him healthy so he can go back on chemo. Aghhhh. But, I don't need to get ahead of myself. I need to stay grateful for how he is doing today. And, today we have laughed, taking a few walks, watched some good TV, hung out with his sister and he took a sip of Gatorade. All is well today.
Thanks for all your support.
Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

jacekica
Posts: 733
Joined: Sun Aug 05, 2012 12:43 pm
Facebook Username: jasminka marout

Re: Day 14 in the hospital- improving

Postby jacekica » Fri Nov 15, 2013 3:00 am

Improving is very good for him and you, of course. Happy that he can breathe, eat and drink normally again..........as for the recovery - I am sue he will be happy with new people and approach.
Dx 2/11
surgery 5/11, T2N0MX, G2, SRC rectal ca, 22 cm removed
CT- numerous mets in abdomen - LN, 2 big ones on pancreas, one penetrated right urether. Surgery, they just take samples for PHD, 6 roundds 5FU, refuse further chemos

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: Day 14 in the hospital- improving

Postby vickitwo » Fri Nov 15, 2013 8:12 am

Kathleen, So glad to hear that things are moving in the right direction even thought it is moving slowly. I know how this horrible disease just makes you want to scream. AHHH! I feel that everyday. It also makes you so happy for the simple special moments that you share. :D
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: Day 14 in the hospital- improving

Postby gep » Fri Nov 15, 2013 9:02 am

Good to hear it. Will continue to send positive vibes.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Day 14 in the hospital- improving

Postby Guinevere » Fri Nov 15, 2013 12:40 pm

What an answer to prayers, huh? :D I think his going outside is probably lifting his spirits too. I'm praying that he gets sprung soon but not too soon.
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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GreenMonkey
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Joined: Wed Jun 12, 2013 5:43 am
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Re: Day 14 in the hospital- improving

Postby GreenMonkey » Fri Nov 15, 2013 12:46 pm

slow but steady! thanks for the update Kathleen. best to both of you. you're lucky to have each other.
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Day 14 in the hospital- improving

Postby CRguy » Fri Nov 15, 2013 1:07 pm

Praying for a "big housectomy" soon .... you know getting cut loose from da' big house !
Continuing cheers and Mega +++Vibes coming your way.
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
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Joined: Thu Aug 05, 2010 12:59 pm

Re: Day 14 in the hospital- improving

Postby juliej » Fri Nov 15, 2013 1:32 pm

He has had quite a rough time! So glad to hear things are improving. I bet the good weather helps keep everyone's spirits up. Sending prayers and swinging chickens for Dick!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Nanette
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Facebook Username: Nanette Pepperday-Derry
Location: Buffalo, NY

Re: Day 14 in the hospital- improving

Postby Nanette » Fri Nov 15, 2013 1:54 pm

Hi Kathleen-

I'm so glad Dick is feeling better and on the mend. It is a good day when everything goes in the right direction. You can only take it day by day, which I've seen with our friend, Bob.

You guys are in my thoughts and prayers for continuous improvement so he can get home.

Hugs,
-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

NWgirl
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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Day 14 in the hospital- improving

Postby NWgirl » Fri Nov 15, 2013 2:21 pm

That's a long time to be in da big house. I'm so sorry you are both going through this. The news today sounds encouraging - I'm keeping my fingers and toes crossed that improvement continues through the weekend and Dick is home soon.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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tchan8888
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Joined: Mon Mar 25, 2013 8:41 pm
Location: San Francisco Bay Area

Re: Day 14 in the hospital- improving

Postby tchan8888 » Fri Nov 15, 2013 4:20 pm

May you both be blessed with great strength, peace and calm and, most of all, healing. Stay strong!

I was in the hospital for 29 days so really understand what you are experiencing. My wife didn't leave the hospital either.

Blessings,

Tom
Tom, 49 now
12/12 Right Hemicolectomy 2X (29 days in hospital)
12/12 Stage IV: multiple distant LN; no organs
20X: FOLFIRI (stopped working)
8X: 5FU
8X: FOLFOX and Avastin
2016: Clinical trial pembrozilumab MSI high

Helen
Posts: 240
Joined: Wed Jul 11, 2012 11:50 pm
Facebook Username: helen.andersen

Re: Day 14 in the hospital- improving

Postby Helen » Sat Nov 16, 2013 11:17 am

Kathleen my good thoughts and best energy is on its way to you and Dick.

Peace and Love
~Helen
My partner of almost 18 years ***Wife as of July 1 2013***Pam was dx in Nov 2011
Stage IV advanced mCRC
Nov 2011 colostomy
Feb 2012 Folfiri
March 2012 Erbitux
May 2012 3 blood clots
June 2012 Lovenox
May 2013 FOLFOX
Dec 19 2013 My beloved was set free

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: Day 14 in the hospital- improving

Postby so-scared » Sat Nov 16, 2013 11:26 am

Wow, what a run you two have had! I am so happy to read that things are improving. Hopefully he will get out soon.

I hope that he will do well on the new chemo and that it will do what we all so badly want it to do!

DeAnn
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Day 14 in the hospital- improving

Postby skypup » Mon Nov 18, 2013 1:02 am

Kathleen, how are things going?


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