Very upset! UPDATE - our friend passed away

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Very upset! UPDATE - our friend passed away

Postby Nanette » Thu Nov 14, 2013 4:40 pm

Hi all,

I am so upset right now...and it's not about Bruce, even though he does have an issue going on at the moment. We have a friend, Bob, who was diagnosed with stage III rectal cancer in July. He went through the chemo/rads for six weeks and tolerated it pretty well. Moving up to last Wednesday...he had his rectal cancer surgery, which was successful and has a temp. ileostomy. He did not have an NG tube and was feeling pretty good. His surgeon let him go home on Saturday morning. My friend called me Saturday night asking what Bob could use for severe heartburn. Sunday, he started vomiting and not feeling well at all. He was vomiting on Monday. They called the surgeon and his wife told him he was vomiting. The doc changed his pain medication. His ileostomy was having a lot of output that the doc was going to start him on Imodium to slow it down. He finally went back into the hospital on Tuesday morning. He wasn't having much output at the time and was still throwing up bile. They did a CT and he had a blockage. Bob was put on a liquid diet as the surgeon said this would slowly move the blockage and this happens a lot after surgery. Well, early this morning, Bob was having trouble breathing and they moved him to the ICU. His oxygen is 58 and he is now on life support!!!!!!!! How can this happen???!!! They are giving him hours to live!!!! We are so upset. Have any of you heard of such a thing after rectal surgery??? Bob's surgeon is a great doctor and a board certified colorectal surgeon.

We are praying for a miracle. Please keep Bob and his family in your prayers.

Thank you!
Last edited by Nanette on Sun Nov 17, 2013 9:58 pm, edited 1 time in total.
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

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Re: Very upset!

Postby janklo » Thu Nov 14, 2013 5:26 pm

Oh my gosh Nanette - that's awful! I will pray for your and Bruce's friend. I hope you can show some improvement!
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

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chemo sabe
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Re: Very upset!

Postby chemo sabe » Thu Nov 14, 2013 6:43 pm

This is major surgery and there is a risk of complications associated with the surgery and the recovery. A very real risk following an ileostomy is a blockage. From what I have read, that can run up to about 15% of patients. In this case, the blockage did not occur while still in the hospital and worse yet was over a weekend. So now a respiratory ailment takes advantage of a very weakened system and things slip further, probably before even getting back into the hospital. I am very sorry to hear this story. I was just in the hospital (this time for an incisional hernia repair, not cancer). Even though it hurt, I kept walking and kept using that stupid plastic Airlife breathing exercise tool and I kept hoping that I would not develop any problems. Again, I am very sorry to hear this story but yes, surgical complications can develop.
64 year old male
Diagnosed Stage 3 Rectal Cancer - T3N1M0 - Oct 2011
28 radiation treatments with xeloda
Colon resection with ileostomy Feb 2012
8 Rounds of Xelox completed Sept 2012
Ileostomy reversal surgery Oct 2012
Incisional Hernia Repair Nov 2013

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Re: Very upset!

Postby abuttigi » Thu Nov 14, 2013 6:48 pm

Hey Nanette,

I had a patient during my surgery rotation that this happened to. Like someone above said, this was a big surgery, which always comes with risks. That said, it doesn't make it any easier. I'm sorry you are going through this!

Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfori, Avastin
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

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Re: Very upset!

Postby Patience » Thu Nov 14, 2013 7:22 pm

Encyclopedia of Surgery

Among patients who have undergone a Brooke ileostomy, medical literature reports a 19–70% risk of complications. Small bowel obstruction occurs in 15% of patients; 30% have problems with the stoma; 20–25% require further surgery to repair the stoma; and 30% experience postsurgical infections. The rate of complications is also high among patients who have had a continent ileostomy (15–60%). The most common complications associated with this procedure are small bowel obstruction (7%), wound complications (35%), and failure to restore continence (50%). The mortality rate of both procedures is less than 1%.

It is sad that your friend is experiencing such a dangerous complication. To get to such a serious point does seem rare, but not unheard of.
"Sweet dreams till sunbeams find you.
Sweet dreams that leave all worries behind you."

justin case
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Re: Very upset!

Postby justin case » Thu Nov 14, 2013 7:26 pm

It almost happened to me. I was home almost 4 days, and was throwing up bright green, and my bag was full of bright green output, and I mean it looked like lime Kool-Aid. I went back in the hospital, and was told I was very close to renal failure. I was given IV hydration and sent home. A few days later I was back in ER, and the CT scan found a blockage, which they tried to clear with the NG tube for a week. I was then reopened and had a surgery to clear the blockage, and they did the reversal in the process. It was a 3 week ordeal, and the second time I was in the hospital, I opted for more days, after they said I could leave :roll: :roll: .It really hurt and scared the Sh!t out of me! I don't know what may become of your friend, but my thoughts are with him.
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Re: Very upset!

Postby ziggymonster » Thu Nov 14, 2013 7:32 pm

That is horrible news, praying for a turnaround!!
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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Re: Very upset!

Postby Guinevere » Thu Nov 14, 2013 9:53 pm

Praying for your friend, Nannette as well as you and Bruce. I'm so sorry things have taken this turn.

God bless ~
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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Re: Very upset!

Postby Kathleen808 » Thu Nov 14, 2013 10:13 pm

I am so sorry to hear this. My prayers are with your friend. What a tragic turn for their whole family. We all know that things can turn quickly but we just don't expect it.
Right now Dick is on a NG tube after his obstruction from the small bowel being wrapped around adhesions. He is eager to get it out but we will be cautious and pay attention.
Thinking of you.

DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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Re: Very upset!

Postby SMR » Thu Nov 14, 2013 10:17 pm

Oh I am so sorry to hear this news. How terrible for all his family and loved ones...
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

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Re: Very upset!

Postby GreenMonkey » Thu Nov 14, 2013 10:27 pm

I am so sorry to read this. Sending prayers your way.
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED

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Re: Very upset!

Postby chp » Thu Nov 14, 2013 10:41 pm

Praying for your friend and his family! Hope Bruce has nothing serious going on!
57 yr old female
Dx CC Sept 2012
Resection surgery Sept. 19, 2012
T3 N0 MX. Signet ring cell
Started Xeolda Nov 14
Tiny spots on lungs on 1yr scan. Watching

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Re: Very upset!

Postby skypup » Fri Nov 15, 2013 12:12 am

Oh, this is just terrible. I do hope your friend is being kept comfortable. Prayers for him and all who love him.

(I had a blockage after RC surgery, too, which fortunately cleared on its own after a couple of days on a liquid diet.)

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Re: Very upset!

Postby jacekica » Fri Nov 15, 2013 3:34 am

I am so sorry for such turn of event/recovery but it does happans, not just with big surgeries. Hope he will become much better soon, all of you are in my prayers.
Dx 2/11
surgery 5/11, T2N0MX, G2, SRC rectal ca, 22 cm removed
CT- numerous mets in abdomen - LN, 2 big ones on pancreas, one penetrated right urether. Surgery, they just take samples for PHD, 6 roundds 5FU, refuse further chemos

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Re: Very upset!

Postby mstults » Fri Nov 15, 2013 4:10 am

Praying for your friend. This highlights the urgent need for patients to be proactive. I'm not saying he wasn't or didn't do everything he could. Just that we need to be reminded how bad wrong things can go. Often it's hard to get anyone to listen. I know 2 people that had about the same complications from gallbladder surgery. One didn't make it. The other has been in 2 hospitals and rehab for 8 weeks. It basically looks to me like they sent her home too quick. When I had my Colin resection they made sure I was passing gas and had bowel move,emits before considering sending me home. By that time my incision was infected and I spent 11 days. They did remove my ng tube too quick and I was deathly sick because everything on my stomach had to come up. Hopefully they got on him in time and he will recover.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

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