Day 8 in the hospital - UPDATE at bottom

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Kathleen808
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Day 8 in the hospital - UPDATE at bottom

Postby Kathleen808 » Sat Nov 09, 2013 2:04 am

Well, here we are on our 8th night in the hospital. Roller coaster is an understatement. I know I am preaching to the choir when I say this is such an emotional swing.
Dick's surgery, to clear the small bowel from adhesions went well Monday night. It has been real up and down with getting the bowels to wake up and they have been concerned that the part of the bowel that was hung up might have been too damaged to heal. Finally today, Friday, they think it is starting to work. The surgeon showed us the video of the operation on his ipad. It was incredible to watch them cut the adhesions away. The movie was from the tiny camera that was inserted inside of Dick. Truly incredible.
They have been working on getting Dick's blood pressure down. Dick started the day great, walking around (with his IV, pain meds, etc), shaving and having a friend visit Then he has quite a headache that came on today and they are not sure if that is from lack of nutrition or the high blood pressure. They started nutrition going in his port tonight. Of course we first had to deal with them not being able to draw blood from the port and having to put in a thinner of sorts. Finally 1.5 hours later they were able to draw blood and start the nutrition. He is not happy that he has been pushing his pain medicine button for the headache. He had really come down on it and then he started back up today. Hopefully that damn headache will go away.
Family has arrived to help and our college aged daughter flew in from California for the weekend. Dick loved seeing her today! She will spend the day here at the hospital tomorrow and then fly back to California on Sunday. It is wonderful having her home.
That's our update. Family and friends have been incredible. Please hold Dick in your prayers and loving thoughts.

Aloha,
Kathleen
Last edited by Kathleen808 on Sun Nov 10, 2013 9:06 pm, edited 1 time in total.
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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raym
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Re: Day 8 in the hospital

Postby raym » Sat Nov 09, 2013 6:50 am

I'm sorry things have been quite bumpy! I know being in the hospital sucks, especially when things are not going they way you want. Hoping he is able to get on some real food and move towards getting out.
3/11 IIIC +/FOLFOX
4/12 HIPEC
6/12 Chmo/Rad
9/12 XELIRI+Avast/Zltra
9/13 Plvic Absc,stpd chemo
11/13 Tumr rmvd frm Lap Port incis
12/13 Xeloda
1/14 Cardiac Issue no Xeloda/5FU
3/14 Irinotecan
6/14 Stopped chemo
8/14 Clin Trial
9/14 Infectn - Stpd Trial

vickitwo
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Re: Day 8 in the hospital

Postby vickitwo » Sat Nov 09, 2013 7:15 am

Kathleen,

I sure hope that the bowel is on the mend and that they can keep the high BP in check. I know how uplifting it must be for you and Dick to have your daughter home. We have three in college and there is nothing that makes my DH happier than when they are home for a visit. Sending healing prayers your way.
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: Day 8 in the hospital

Postby Hapa » Sat Nov 09, 2013 11:15 am

Sounds like he is on his way to healing. Bowel obstructions are so scary. My dh has had 3 in 6 weeks. He stubbornly stays home to ride them out. Thankfully, they did resolve on their own. Hope your dh is coming home soon!
DH Stage 3 RC

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BrownBagger
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Re: Day 8 in the hospital

Postby BrownBagger » Sat Nov 09, 2013 11:41 am

Thanks for the update, Kathleen. Please give my regards to Dick.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

NWgirl
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Re: Day 8 in the hospital

Postby NWgirl » Sat Nov 09, 2013 4:00 pm

Thinking of you all. I hope the headache eases off soon. Hospital stays are never fun.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Kathryn in MN
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Re: Day 8 in the hospital

Postby Kathryn in MN » Sat Nov 09, 2013 4:24 pm

Sorry to hear he is still struggling so much. Some pain meds give me headaches. Maybe a switch in pain meds might help?
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

orcasres
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Re: Day 8 in the hospital

Postby orcasres » Sat Nov 09, 2013 4:25 pm

Good thoughts coming your way. Hospital stays are hard, but it really does sound like he is making progress. I used to get two day migraines, so I really have sympathy with a headache that will not quit.

Glad for the family visit. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

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edinaman
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Re: Day 8 in the hospital

Postby edinaman » Sat Nov 09, 2013 4:41 pm

Thank you for the update. Hopefully they will get the headache pain under control. Wishing both of you the best.
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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Voxx66
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Re: Day 8 in the hospital

Postby Voxx66 » Sat Nov 09, 2013 5:14 pm

Sounds very scary but at least it seems to be heading in the right direction now. Wishing the best for you.
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri

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CRguy
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Re: Day 8 in the hospital

Postby CRguy » Sat Nov 09, 2013 5:25 pm

Sending POSI+++++ vibes to you and Dick and hoping you can get the big kahuna outta da big house soona !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

pukalania
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Location: Honolulu, Seattle

Re: Day 8 in the hospital

Postby pukalania » Sat Nov 09, 2013 7:14 pm

Dear Kathleen,
So sorry to hear you are still stuck there...when my hubby was in the hospital awaiting the system to wake up..they gave him a pill to stimulate the "awakening"...and i'm so sorry i didn't take the name of that medecine but it was blue in color, he took it once a day until everything started moving..good luck hope you are out of there soon!
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

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PGLGreg
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Re: Day 8 in the hospital

Postby PGLGreg » Sat Nov 09, 2013 8:21 pm

Is Dick at Castle? I'll be there this Tuesday and Friday for a colonoscopy from Dr. Jao. Best wishes for Dick and you.
Greg
stage 2a rectal cancer 11/05 at age 63
LAR 12/05 with adjuvant radiation+5FU,leucovorin 1-2/06
NED for 12 years, cured

skypup
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Joined: Mon Dec 17, 2012 12:12 pm

Re: Day 8 in the hospital

Postby skypup » Sat Nov 09, 2013 9:19 pm

Sending best wishes to all!

Mojo
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Joined: Sat Mar 26, 2011 1:43 pm

Re: Day 8 in the hospital

Postby Mojo » Sun Nov 10, 2013 9:26 am

Hoping things are getting better on all accounts, hugs.
colon cancer stage 3 2n0mets 2002
cancer returns march 2010
emerg brain surgery, chemo may 2010 sterotactic radiation april 2010

progression of tumors march 2011 new chemo camptosar leukovorin 5fu avastin
Kenny age 58/died 11/21/11


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