Any news from Rhea? ......UPDATED by Rhea !

Please feel free to read, share your thoughts, your stories and connect with others!
SoConfused
Posts: 1024
Joined: Mon Jan 30, 2012 2:40 pm

Any news from Rhea? ......UPDATED by Rhea !

Postby SoConfused » Thu Nov 07, 2013 10:14 am

Hi there - wondering if anyone from the board keeps in contact with her outside of here ... just thinking about her and curious about how liver resection went on Monday. Hope all is well with her.
Stage IV CC

User avatar
DBF
Posts: 314
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Any news from Rhea?

Postby DBF » Thu Nov 07, 2013 2:31 pm

I'm not in touch with her off the board, but I was wondering how she was doing, too. I hope her surgery went smoothly.
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :D
Mom to 3 boys: 21, 9 & 6

LKGower
Posts: 275
Joined: Fri Jan 11, 2013 4:23 pm
Location: Sydney, Australia

Re: Any news from Rhea?

Postby LKGower » Fri Nov 08, 2013 1:09 am

I have also been wondering how's she's doing. I've been waiting for her to post! I hope her surgery went well.

Lisa
Dx 10/12 @ age 28 Stg. IV CRC spread to both ovaries, bladder and liver
Surgery 11/12 - 8/16 LN positive
9/13 Liver resection & RFA - 1/1 LN positive
10/13 boo its back already! Back to chemo

Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: ......UPDATED by Rhea !

Postby Rheaeliza » Fri Nov 08, 2013 4:49 pm

I'm here!!!! I was sooooo out of it in the hospital I couldn't post....it took me like 10 minutes to send a text. I think I fell asleep texting, eating, talking with guests. You guys are right, I have NEVER been this wiped out in my life....falling asleep like every 2 hours.

The surgery went well, Monday morning, about 4 hours...two nights in the "step-down" unit, then two nights in a regular room, and home this afternoon! Only 4 nights. The surgery itself looked great. Took out the whole right lobe but from what he said and saw, got everything. Surgeon actually said "cancer free" I cried, hugged him. Had some nausea post surgery but I think it was the dilaudid because when we switched me to oral hydrocodone yesterday it stopped. I'm very very sore, and very tired, but so far so good otherwise. Glad to be home!!! Thanks for checking on me guys!!!

xoxo,
Rhea
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Any news from Rhea?

Postby pfCml73183 » Fri Nov 08, 2013 4:53 pm

RHEA, thank you for posting. That is great news. I am so happy for you.
Congratulations and speedy recovery.
Peace and love, Corporate
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

SoConfused
Posts: 1024
Joined: Mon Jan 30, 2012 2:40 pm

Re: Any news from Rhea?

Postby SoConfused » Fri Nov 08, 2013 4:54 pm

Rheaeliza wrote:I'm here!!!! I was sooooo out of it in the hospital I couldn't post....it took me like 10 minutes to send a text. I think I fell asleep texting, eating, talking with guests. You guys are right, I have NEVER been this wiped out in my life....falling asleep like every 2 hours.

The surgery went well, Monday morning, about 4 hours...two nights in the "step-down" unit, then two nights in a regular room, and home this afternoon! Only 4 nights. The surgery itself looked great. Took out the whole right lobe but from what he said and saw, got everything. Surgeon actually said "cancer free" I cried, hugged him. Had some nausea post surgery but I think it was the dilaudid because when we switched me to oral hydrocodone yesterday it stopped. I'm very very sore, and very tired, but so far so good otherwise. Glad to be home!!! Thanks for checking on me guys!!!

xoxo,
Rhea


SO HAPPY to hear from you ... and to learn that surgery was a success. Thanks for letting us know how you are ... and take good care as you continue to bounce back from surgery.
Stage IV CC

User avatar
GreenMonkey
Posts: 336
Joined: Wed Jun 12, 2013 5:43 am
Contact:

Re: Any news from Rhea?

Postby GreenMonkey » Fri Nov 08, 2013 8:35 pm

Rhea!!! thats GREAT NEWS. rest well, heal fast. thank you for posting. ((((((gentle hug)))))))
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby Bev G » Sat Nov 09, 2013 8:41 am

Yippeeee, Rhea! So, so glad to hear your wonderful news! NO LIFTING! My hernia taught me that too late.

xoxox to you

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

User avatar
Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby Kathryn in MN » Sat Nov 09, 2013 3:00 pm

Glad it went smoothly and you are home so soon and feeling well, albeit tired.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

User avatar
paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby paula » Sun Nov 10, 2013 7:34 am

fabulous news Rhea! hang in there, it gets better every day....when do you have a follow up appointment? Maybe I'll catch you in the little House? I'm still in New York recovering from the hysterectomy until the 24th of Nov. best wishes, love, and Light
Paula
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby Guinevere » Sun Nov 10, 2013 2:13 pm

So glad to hear from you!

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby Rheaeliza » Mon Nov 11, 2013 4:56 pm

Thanks for all the support guys. Some days this board really keeps me going.

So it's been a week since surgery and I am in a lot of pain. I didn't realize how HUGE this incision would be. It's as big as my HIPEC and resection incision, but higher up. Feels so tight around ribs/midsection. Like I'm wearing a freaking girdle that is 10 sizes to small! Doing my spirometer excersizes, but breathing in deep, yawning, ouch. Emailed with my PA today and she said taking ibuprofen instead of tylenol since it's anit-inflametory along with my oxycodone, and upping my oxycodone a little. I'm in awe of those of you of narcotic pain meds so fast! I know dialauded is more effective/stronger, but man it makes me out of it and was giving me waves of nausea over IV in the hospital. Anyone here had dilauded over pill form? Did it upset your stomach. Just want to get this pain a little more under control this week so I can get moving around a bit more.

OH and at the hospital, my surgeon told me he is 100 percent sure that my ostomy can be reversed. He did a lovely rectal exam while I was under for liver surgery and could feel nothing alarming and also felt the scar tissue forming, so that's good. A little relief there. Was lounging on the couch with the boyfriend Saturday evening when I got my first leak. Yippie. Got all on my undies and pajama pants, had to stop the movie, and do an emergency change and shower. Gross. Better there than while sleeping though I think.

One last thing...how much should I be walking a day? Right now I'm not much, mostly just laps in the house, but like I said the pain has been so much more this time. I have read about others up and walking miles days after surgery and i just don't think I can do that!!! At all yet anyways...

Thanks again guys! Hope everyone is well! sending love and healing thoughts to everyone.
xoxo,
Rhea
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13

debb
Posts: 179
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby debb » Mon Nov 11, 2013 9:48 pm

Hi..so good to hear from you! Sorry about your pain levels...it's good that your PA is so responsive via email, andbyou are trying to figure out the best pain management plan. And good news about possible reversal!
I think you should take your cues from your body, and walk as appropriate. Don't compare your recovery to any one else's. Everyone is unique. You're doing great!
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One+ year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin
1/19 rib mets again, radiation, folfiri & avastin

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Any news from Rhea? ......UPDATED by Rhea !

Postby skypup » Tue Nov 12, 2013 1:12 am

Rhea, love your great news from the surgeon!!! And, for what it's worth, I get really sick on pain meds, too, but if I keep the dosage small and take them regularly, my body does adjust a bit.

WooHooo for you!

Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: Any news from Rhea? ......NEWLY UPDATED by Rhea !

Postby Rheaeliza » Sun Nov 17, 2013 5:35 pm

Hi everyone, thanks for your replies and support as always. So tomorrow is two weeks since liver resection and I have to say I'm doing better than the dilapatated mess I was after HIPEC.

Saw my surgeon on Friday, got staples out and then he said to me, "Okay Rhea, I have some news that's going to make you cry."

He then told me they got pathology back on liver. 4 tumors removed, and they were all completely dead. No living cells, fried from chemo. A complete response. After that, my good pathology from HIPEC, all the scans, he was happy and comfortable to tell me I am currently cancer free!!!! Now of course I know that's not cured, I know what stats are on cancer coming back in stage 4, but when I was diagnosed I was told by several doctors and nurses that this day wouldn't come for me at all.

Next step, looks like post op chemo, going to go back to my oncologist in the next couple of weeks. My surgeon would like him to look over everything and decide if I should get the chemo before ostomy reversal or not. From everything I have read it seems like we should do the post op chemo sooner rather than later, meaning delaying the ostomy reversal which bums me out a bit, but hey, I'm cancer free so nothing should bum me out right now!!! Any thoughts/advice on this? The thought is that my resection and HIPEC was already over two months ago, and if we did ostomy reversal first, it would be still a month out to do the leak test, then healing from that surgery, then starting chemo with new plumbing? Seems like maybe not a great idea...

Anyways thank you guys so much for the continued support. What a year! Hell it hasn't even been a year!

xoxo,
Rhea
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Fluff Bottom, Majestic-12 [Bot] and 33 guests