Postby lilacbreastedroller » Tue Jan 27, 2015 10:50 pm
JJ - maybe I"ll put this on a t-shirt. "Stivarga - beats being dead. And that's about it." Yup. My bar is pretty low. Your comment made me laugh!
DrEbay - no hand and foot yet? That's great if it hasn't hit you. Mine started o/a month three, and a googling confirmed that other takers of this stuff got same at around the same time. You're past that point so maybe you won't get it. hooray.
Good luck to both of you with this drug. I'm crossing my fingers about your scan, JJ. I forgot to mention that while the CT scan showed many mets, many were also calcified, or partially so, which means that my immune system was in fact chomping the tumors away, aided and abetted by Stivarga apparently, according to my onc. I haven't had a PET recently which shows the living vs dead tissue. I"m a rectal cancer patient, too. Maybe it works better for rectal cancer than regular colon?? (no idea)
best
Karin
dx 6/1/12@45yo
RT, 4 liv, 5 lung
7/12 FOLFOX
2/13 Xeloda 4k mg/d
7/13 DC VAX,1k mg/d metro Xel
11/13 Erbi, Irino
6/14 clinical trial lirilumab, nivolumab
9/14 Stivarga
1/15 clinical trial immunotherapy (young TILs)
RT, mets to liv, lung, adrenal, lns