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momsCancer
Posts: 51
Joined: Mon May 26, 2008 11:53 pm
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Hello

Postby momsCancer » Thu Aug 28, 2008 1:55 am

it's really been a while since I've checked in here. Mom's healing up from treatment and I've jumped back into my family, job, and life.

She had a PET Scan and we met with the doctor on Tues. He showed us the before and after pics. You could really see the tumor from the pics in April and then absolutely nothing lit up from the last scans. YIPPEE! She's going to have a scope done in a couple of weeks just for a closer look. But PET Scan of colon look good!!! So, as terrible as the treatment was (terrible's not even a strong enough word), looks like it totally did it's thing!

We could tell the doctor had a scans look good . . .BUT coming. Sure enough, the doctor said that a couple of lymph nodes in Mom's chest were lit up. He said that it could be anything inflammation from a cold (she's not noticed being sick but who knows). He doesn't think it's the cancer. He said that's a long jump from the colonrectal to the chest. It wouldn't make sense for it to be the cancer, since when does cancer make sense?

So another 6 week wait for another PET Scan then 2 more weeks to see the doctor, basically won't know anything for 2 months. I almost wish he would not have said anything about the lit up lymph nodes in her chest. She left the doctor's office in tears. She wanted it to be done, no more tests, no more cancer, no more doc appts, etc... I followed her to her house and stayed with her as she cried until I could talk her into going for icecream, (my cure-all drug).

She's still nauseous 24/7. The only thing that works is a suppository that knocks her out. When she wakes up, she's not nauseous for a little while. She's so tired of being sick. Fatigue is still a problem. She eats very little and then pays for it a day or two later. So, it's like she eats (like a bird ) 1 day and then pays for it in diarrhea and nausia and doesn't eat for 2 days following. She's lost alot of weight. The diarrhea is a problem. Just Monday at work, she didn't make it to the bathroom and it went through her clothes.

Wow! I had dreams Monday night of coming here and posting she's dancing with NED and maybe she is, guess we won't know 100 percent for a few more weeks.
MOM has Stage 2 Anal Cancer on chemo (5-FU and Mitomycin-C) for 6 weeks. Looking to vent and give/receive support. My blog address is;

www.onecrazeemommy.blogspot.com

I should change the name to one crazee daughter, I think.

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Hello

Postby NWgirl » Thu Aug 28, 2008 4:18 pm

Thank you for the update. I have been wondering about her and how you are both doing. I wish she was doing better - but I'm glad there has been at least some improvement. Hang in there. My thoughts and prayers are with you both.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

User avatar
bradyr
Posts: 1138
Joined: Mon Apr 30, 2007 7:19 pm
Location: Redmond, WA

Re: Hello

Postby bradyr » Thu Aug 28, 2008 4:31 pm

don't lose hope. It's very likely that the doctor is right... that this isn't cancer at all. I've had little thinks like this light up before, they disapeared next scan.

but, part of the bad of this illness is the uncertainty. It's very hard to live with, but that's what you have. The good news is that the response has been excellent. Worse case, there is no reason that these additional problems couldn't be taken care of, but you don't have worry about any additional treatments for at least two months.

but as well as she responded, it sounds like the doctor feels good taht this nothing. He had to tell you because he has to disclose everything) but he was confient to tell you he didn't think it was cancer. A lot of times if the doctor has doubt he won't say that - just that we have to wait and see.

so, I have a good feeling about this - I say screw the possible problem - go ahead and declare yourself done with this and - let tommorow (or in this case two months from now take care of itself in due time). but until then, put this out of your head and just celebrate beating this cancer.
bradyr
DX 2/07 mets liver/bone/brain/spleen
Foxfox/avastin 3-6/07
bone mets 5 times
xedada 9-7/07
Folfri 1-6/07
GammaKnife brain lesion 1/08
SIRT Spheres rlobe 7/08 llobe 8/08
cyberknife brain 10/08
Brain surgery 1/09
Vebctibix 1-4/09


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