For those following Steve's story UPDATE 10/20 :-0

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ColOrPan
Posts: 378
Joined: Thu Aug 22, 2013 2:15 pm

Re: For those following Steve's story UPDATE 10/11 :-0

Postby ColOrPan » Fri Oct 11, 2013 7:57 am

Dear Bev,

I have been keeping up with this post but just didn't know what to say. It just seems so rottenly unfair that both you and your husband should get this wretched disease. It all just makes me so mad.
I hope they find what is going on with your husband real fast and treat it.
You have been and remain in my thoughts.

Suze
06/2012 DH rare intestinal type Ampullary/duodenal cancer. They extrapolate from colon cancer. FOLFOX 6 been working since Aug 2013. Feb 2014 once a month folfox as maintenance.
May 2014 Folfiri - fail
Starting off-label JAKAFI 08/25/14

Cj51
Posts: 893
Joined: Thu May 13, 2010 5:58 pm
Location: Midwest

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Cj51 » Fri Oct 11, 2013 8:26 am

Ugh. I have no useful info to impart, only want to agree that this really stinks, and that you're an amazing person. And that you and your husband are very much in my prayers. Thank you for keeping us posted, you have so much going on in your life and it's just amazing that we even cross your mind at all. Take care of yourself!
Cj
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

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Canadianmom
Posts: 603
Joined: Wed Nov 03, 2010 6:29 pm

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Canadianmom » Fri Oct 11, 2013 9:44 am

You & your family are never far from my thoughts my friend. I have to tell you that I am worried about you Bev. Please get some rest while your step daughter helps out.
I think you may very well be the strongest woman I know. Xo
30/09/10 Dx mCRC/ 39 yrs old
08/11/10 liver met; Stage IV
23/11/10 PET 2 lit LNs
25/11/10 RFA to liver met
13/12/10 Folfox 6 plus Avastin.
15/03/11 After 7 rounds. NED. No further tx. 2014 still NED
Praying for patience and strength.

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edinaman
Posts: 1108
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: For those following Steve's story UPDATE 10/11 :-0

Postby edinaman » Fri Oct 11, 2013 11:24 am

Bev, what more can be said? I am wishing you and Steve all the strength necessary to get through this. I have a friend who recently finished chemo to destroy his marrow in preparation for a transplant. It is so different from "our" cancer. My best to you, Steve, and your family.
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

Hall0731
Posts: 295
Joined: Sat Sep 08, 2012 1:55 pm
Facebook Username: Teresa Hall
Location: Spring, Tx ( right outside Houston)

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Hall0731 » Fri Oct 11, 2013 11:41 am

Bev,

I hope you can get some rest and that it starts to be bright and sunny over Steve. Sending hugs, love, and prayers your way.


Teresa
Dx 7/12 stage 3
8/13 1 lung met & 5 liver mets
1/14 2 sided liver wedge resection
3/14 lung wedge resection
10/14 It's back. 1 liver lesion
2nd liver resect. 1/5/15 Clean
5/22/15 back again 5-10 lung mets

oldegg
Posts: 12
Joined: Tue Nov 08, 2011 11:39 am

Re: For those following Steve's story UPDATE 10/11 :-0

Postby oldegg » Fri Oct 11, 2013 12:03 pm

I can't even imagine, Bev. Hang in there. Sending best wishes.

Helen
Posts: 240
Joined: Wed Jul 11, 2012 11:50 pm
Facebook Username: helen.andersen

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Helen » Fri Oct 11, 2013 12:17 pm

Bev

I am sending the best thoughts for Steve.I hope that you are able to not only take care of Steve but also yourself Bev.I know it is easier said than done and sometimes just not possible,still I hope you can get moments of rest and drink lots of water.When my darling Pam was first dx and we were in the hospital a lot,a nurse told me to drink water when I was super tired over coffee.I tried it and for me it helped.I just lit a candle for both of you and will go swing the proverbial chickens.

Peace and Love
Helen
My partner of almost 18 years ***Wife as of July 1 2013***Pam was dx in Nov 2011
Stage IV advanced mCRC
Nov 2011 colostomy
Feb 2012 Folfiri
March 2012 Erbitux
May 2012 3 blood clots
June 2012 Lovenox
May 2013 FOLFOX
Dec 19 2013 My beloved was set free

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: For those following Steve's story UPDATE 10/11 :-0

Postby ams5796 » Fri Oct 11, 2013 12:23 pm

Bev,

I've been thinking about you and Steve often. This truly doesn't seem fair. I hope you're getting some rest while your daughter-in-law helps out. Sending out positive thoughts to you.



Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: For those following Steve's story UPDATE 10/11 :-0

Postby chrissyrice » Fri Oct 11, 2013 4:29 pm

Hugs and prayers. I am so sorry you both are going through this, Bev.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

SoConfused
Posts: 1027
Joined: Mon Jan 30, 2012 2:40 pm

Re: For those following Steve's story UPDATE 10/11 :-0

Postby SoConfused » Fri Oct 11, 2013 5:00 pm

praying for you, Steve, and your family.
Stage IV CC

Busymamaof3
Posts: 193
Joined: Fri Sep 07, 2012 1:37 pm

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Busymamaof3 » Fri Oct 11, 2013 10:33 pm

Prayers for both of you
Dx Stage IV CRC 8/12, 40yrs old
3 kids under 10
10/5/12 1 met to liver
folfox w/avastin 4 rds
Folfox alone 4 rds
HIPEC/CRS 2/13/13
PT3N1cM1
Back on Folfox 3/12 - 4/23/13
It is back 8/23/13
FOLFORI 9/13-1/14 cea up
Folfox 1/13
Hipec w crs #2 2/27/14

mackswife
Posts: 263
Joined: Fri Aug 17, 2012 7:11 pm
Location: Atlanta, Ga.

Re: For those following Steve's story UPDATE 10/11 :-0

Postby mackswife » Sat Oct 12, 2013 10:15 am

Bev, I'm one of many who are remembering you and Steve in thought and prayer many times each day.

Pattie
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

Sharona
Posts: 187
Joined: Sun May 19, 2013 3:06 am
Facebook Username: Sharon Rauch

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Sharona » Sun Oct 13, 2013 6:50 am

Thoughts and prayers for both you and Steve.
Sharon
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
colostomy
FOLFIRI, FOLFIRI, avastin, Zaltrap
Stivarga
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15
http://www.caringbridge.org/visit/sharonrauch

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: For those following Steve's story UPDATE 10/11 :-0

Postby michelle c » Sun Oct 13, 2013 9:07 am

Thinking of you both. Hope you are getting some rest. I know that you'll update us when you can.

Love and hugs,

Michelle xox
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: For those following Steve's story UPDATE 10/11 :-0

Postby Guinevere » Sun Oct 13, 2013 9:52 am

You and Steve are on my mind this morning and I'm praying that Steve is getting some relief.
Super huge hugs with loads of love ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14


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