Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

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Maia
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Joined: Fri Aug 24, 2012 8:00 am

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby Maia » Tue Apr 04, 2017 12:26 pm

So happy to see you here, Stephen! Great to know about the insurance!

Cee Cee/ Maia

stevieb
Posts: 381
Joined: Sat Feb 09, 2013 12:26 am

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby stevieb » Tue Apr 04, 2017 1:08 pm

Maia wrote:So happy to see you here, Stephen! Great to know about the insurance!

Cee Cee/ Maia


Thanks Maia, I am currently NED as of last scan on 1/23/17 and am currently on Adapt protocol. I have my next scan coming up at the end of April!! I have no side effects from the xeloda and celebrex. I have been feeling great, almost back to normal, whatever that is now!!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

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Maia
Posts: 2364
Joined: Fri Aug 24, 2012 8:00 am

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby Maia » Tue Apr 04, 2017 1:26 pm

More than happy to hear that : ) : ) : )

That's right, the regimen should be almost imperceptible, it's metronomic, very low dose chemo. Just enough to keep any potential baddies at bay : )

rp1954
Posts: 1155
Joined: Mon Jun 13, 2011 1:13 am

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby rp1954 » Wed Apr 05, 2017 2:57 am

....currently NED as of last scan on 1/23/17 and am currently on Adapt protocol. I have my next scan coming up at the end of April!! I have no side effects from the xeloda and celebrex. I have been feeling great, almost back to normal, whatever that is now!!


That's great Stephen. There seems to be some large variations in the Xeloda dose people have been getting for Lin's Adapt protocols. Any insights or dose history you could share?

Also you've mentioned cimetidine use on or off in previous years. Any timeline of cimetidine use or CA19-9 background results you could comment on? For pancreatic cancer, 37 units of CA19-9 is the important single use cutoff at dx for pancreatic cancer. For colon cancer, ~19 units of CA19-9 is potentially a stickiness factor that is notable and shouldn't be ignored but it doesn't necessarily show CRC either.
watchful, active caregiver for stage IVb CC since early 2010. immuno"Chemo forever," for mCRC

stevieb
Posts: 381
Joined: Sat Feb 09, 2013 12:26 am

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby stevieb » Wed Apr 05, 2017 12:52 pm

Everyone that I have spoken to (including Dr. Lin) regarding dosage of Xeloda on Adapt is 1000mg twice a day or 2000mg/day while on the Celebrex. I have tried to use cimetidine before and after my surgeries but haven't had any luck with it so far. I have had several lung reoccurances every time. The last two being one spot on each lung twice so maybe it is keeping the quantity down but no way to know for sure.
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

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Sophy
Posts: 226
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby Sophy » Sat Jun 17, 2017 5:50 am

I had this surgery in January, June and August 2014. It was difficult lonely and expensive but I have been NED since.

Sophy
dx T3N1M0 Feb 11
Children age 11, 7 and 2
Xeloda/rad March 11
LAR June 11 temp ileo
Xelox 6 rounds
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung
Aug 14 Started Xeloda and Celebrex (ADAPT) 3 year course
May 2017 CT shows still NED

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Sophy
Posts: 226
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Postby Sophy » Sat Jun 17, 2017 5:55 am

And should say - started ADAPT August 2014 after last surgery
dx T3N1M0 Feb 11
Children age 11, 7 and 2
Xeloda/rad March 11
LAR June 11 temp ileo
Xelox 6 rounds
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung
Aug 14 Started Xeloda and Celebrex (ADAPT) 3 year course
May 2017 CT shows still NED


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