surpasstx wrote:My wife is presumed Lynch positive - she has a variant of uncertain significance. From what I understand, Lynch cancers have a significantly lower rate of recurrence in the form of distant metastases (close to 90% chance of recurrence-free survival). However, there is a high risk of recurrence (as much as 50%) in the form of a new primary cancer. Frequent screening (via annual colonoscopies with dye to detect sessile polyps, trans-vaginal ultrasounds, and EGD ) ,and possible prophylactic colostomy and hysterectomy are recommended courses of action.
-Sophie- wrote:Interesting about cea levels, mine has stayed in the normal range since diagnosis.
I also have the psm2 mutation which could be why there is no family history.
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