Hi Everyone,
My name is Heidi and I have posted a few times but usually do not get many responses.
Yesterday I had a reg Dr. apt and this will be my 11th round of chemo comming up on Monday, I have 11 tumors in my liver and two lymph nodes that are cancer, that they found after my resect surgery. (no bag). Well I am on Avastin, 5-fu, and lucovorin, and Oxyplation. Well he said he is taking me off the Oxyplation as the side effects are now affecting my feet and legs and he said that they only keep people on it for about six months anyway. The drug that he wants to put me on to replace it is Campostar, which is deff going to make me loose my hair. I know its prob really really stupid of me to feel so upset about that but I am, another thing is , is that my tumors have only shrank about 30%, and I asked him the big ? about how long for survival, and he said he really can't say it could be any where from a year to three or more as there is always hope. I am a 33yr old wmn who just got married going on three years ago (Oct) have a 14, 11, and 1yr old. I am just so damn scared and not ready. The hair thing is big as I have long (down to the middle of back) that is beautiful and curly. It was one of the things my Husband fell in love with me over along with the other things.
The dr. decided that because of how upsetting it was to me, that on Monday when I recieve chemo (I get it every 12 days)that we will do the normal regiman except leave out the Oxyplation and Campostar, then we will do an "early" CT scan and see what happens wether the tumor shrank or grew or stays the same and then we will take it from there.
AM I DOING THE RIGHT THING??? WILL ONE CHEMO REALLY MAKE THE CANCER WORSE IF I DO IT THIS WAY?? I am just so so scared and don't know what to do. The idea of the wig is getting better with me I got one there yesterday and have since talked with my family Please help I need so much encouragement, Is anyone had to deal with a situation similar to mine or has cancer like mine with how many tumors and lymph nodes. And what are Drs telling you about life span? Please reply.
Heidi