Postby DogMom » Tue Sep 17, 2013 7:33 pm
I have been on Regirafenib since Jan 1, 3013. I am taking the full dose, 4 pills/day for 21 days, then 7 days off. I have not had the serious side effects, liver toxicity or high blood pressure. I do have a lot of fatigue, compared to all the other chemos I have been on previously, slight (unsightly but not uncomfortable) rash, GI issues, which I have had with all other chemos too, slight hand foot, and seriously thinning hair ( a first for me).
So far, I am either stable or have very slight progression, meaning about a mm per quarter. Some of my lung nodules are cavitating (becoming dead on the inside), but its in no way a cure. Honestly, I wonder every day how much longer I can stay on this drug.
Best wishes to you.
DX 2/08 St 2 Rectal C, 47 y/o
Transanal excision/radiation/Xeloda
mult Lung Mets found 7/09
Xelox + Avastin 5 TX
neuropathy: Xeloda + Avastin 12/09
12/10 40 day Avastin headache, Xeloda
6/11 SBRT lungs
1/13 Regorafenib
11/13 Xeliri-fail
3/14 Gemzar