Dear Friends,
I apologize for posting and then deleting the post. We had not talked to our daughter yet and I did not want any news to get out on social media. She is away at college and we spoke to her yesterday evening.
Dick's pet scan on Friday showed growth in lung mets (largest is now 2.2cm), enlarged lymph nodes (we think that is why the leg was swollen) and growth on his adrenal gland. We were quite shook up on Friday and of course I came right to you. Then I realized we had not told our daughter and I pulled my post.
We are meeting with Dick's local onc tomorrow and calling Sloan Kettering back. Some of you remember that Dick was all set to go to Sloan last fall and hurricane Sandy hit. We were going to a doc who was going to find a new chemo mix for Dick. Once we were cancelled because of Sandy, they said to call back when there was growth. So, I am calling Sloan tomorrow morning.
We are going to have a biopsy of a lymph node done and then we want to do all the tests on the biopsy. I believe it is DNA testing and tests to see what specific drugs kill Dick's specific tumor. We know there is a lab in Greece and one in LA. Who has had these specific tests done? Can you please send me the info? We know that the cancer changes to "get around" the chemo and that there may be drugs used for different types of cancer that will work better on Dick's current cancer. All information is appreciated.
I'll be in touch.
Aloha,
Kathleen