53rd St. gang a.k.a. Nancy's kids

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paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

53rd St. gang a.k.a. Nancy's kids

Postby paula » Thu Sep 12, 2013 1:19 pm

Will any of you be at 53rd st. the first week of October from the 3rd til the 10th? My trip is coming up then for scans, etc. if anyone would like to plan a get-together, coffee, greeting in the waiting area, etc. All the best to each of you on the journey,

Paula
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: 53rd St. gang a.k.a. Nancy's kids

Postby pfCml73183 » Thu Sep 12, 2013 1:45 pm

Hi Paula,
I am in the process of getting an appt. set at that time for my husband. I will get back to you as soon as it is definite.
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

debzak
Posts: 424
Joined: Tue Oct 02, 2012 2:58 pm

Re: 53rd St. gang a.k.a. Nancy's kids

Postby debzak » Thu Sep 12, 2013 3:20 pm

I am there on oct 3, wednesday for a visit, pump fill and chemo. I usually get there around 9:45 and end up spending most of the day by th time the treatment is finished.

debbi
2/27/12 dx rectal cancer (stage III)
3/6/12 44th B-day
3/19/12 Oxi & 5-FU (8 rounds)
7/9/12 chemo-rad
11/5/12 LAR surgery temp ileo
1/20/13 4 rounds Xeloda
5/13 multiple liver mets
6/4/13 HAI pump at Sloan
KRAS wild & BRAF mutation found :(

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: 53rd St. gang a.k.a. Nancy's kids

Postby mymom » Thu Sep 12, 2013 4:08 pm

I will be there on october 2 for scan results for my mom.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: 53rd St. gang a.k.a. Nancy's kids

Postby mymom » Thu Sep 12, 2013 4:08 pm

I will be there on october 2 for scan results for my mom.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: 53rd St. gang a.k.a. Nancy's kids

Postby juliej » Thu Sep 12, 2013 4:43 pm

Hey hey Paula (does Sandy still sing that to you? :D ), I'm going to be there a few weeks after you. One of these days we're bound to be there at the same time though. Sending lots of good energy and saying prayers that you have a clear scan!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: 53rd St. gang a.k.a. Nancy's kids

Postby Badass » Thu Sep 12, 2013 5:26 pm

Darn, I will be there the week before. It would be fun to all meet up. If I decide to participate in her study, I will be getting all my chemo in NYC and will be there every couple of weeks... otherwise every 5.
Let's all keep trying. I like this thread "Nancy's Kids" as it is good place to check in.

Best of luck next week!
Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

Re: 53rd St. gang a.k.a. Nancy's kids

Postby paula » Thu Sep 12, 2013 7:27 pm

It's great that I may be seeing some of you but I'm disappointed that others of you will not cross my path this time...maybe next time for sure. Yes juliej, Sandy still sings "hey, hey, Paula...." LOL, and I was gonna give her a hard time about that hurricane being named after her, but right afterward she went on vacation :wink: On another note, I hope some of you who are waiting to hear from the wonderful, beautiful Dr. K eventually get her acceptance :D You will surely be cared for superbly, in my humble opinion. Well, I'm here to tell you 3 and 1/2 years later (NED) that I have been blessed as her patient and am grateful for every day, every minute with a great quality of life too. love to all,

Paula
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: 53rd St. gang a.k.a. Nancy's kids

Postby juliej » Thu Sep 12, 2013 8:23 pm

paula wrote:Yes juliej, Sandy still sings "hey, hey, Paula...." LOL, and I was gonna give her a hard time about that hurricane being named after her, but right afterward she went on vacation :wink:

Wanted to make sure you got your song! :D I saw Sandy a few weeks after the storm and asked how many comments she had received about her name being the same as the storm. She said "countless" and laughed. I told her that she and the hurricane were both forces of nature! :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: 53rd St. gang a.k.a. Nancy's kids

Postby BrownBagger » Thu Sep 12, 2013 8:31 pm

I'll be there on Sept. 25 for my consult (scan on Sept. 23 in Basking Ridge), en route to Louisiana for a meeting. Then, off to Finland on Oct. 8 for another business junket. Too busy to be sick. Sorry to miss everyone (again).

I saw Sandy two days after the storm. I said, "I heard you blew into town the other day."
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: 53rd St. gang a.k.a. Nancy's kids

Postby Badass » Thu Sep 12, 2013 8:47 pm

Eric, that is amazing! I will be there the 25th!! That's a Wednesday right?
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: 53rd St. gang a.k.a. Nancy's kids

Postby so-scared » Thu Sep 12, 2013 9:41 pm

My husband will be there on the 25th also! Before cancer he was a marathon runner. He is not allowed to run with the HAI pump so he has tried the bike thing a bit. Maybe Eric can give him a few pointers! :)
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

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paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

Re: 53rd St. gang a.k.a. Nancy's kids

Postby paula » Sun Sep 22, 2013 3:22 pm

OK so most of you have appointments this coming week or before Thursday the following week... I believe some of our newest members of the 53rd street gang do have appointments around the 3rd to the 16th, right? Celeste? Melanie (Sandy gma), maybe others? Maybe we can meet up at some point...what a great season to be in New York City; season of hope with the beautiful Dr. K, right?
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: 53rd St. gang a.k.a. Nancy's kids

Postby Badass » Sun Sep 22, 2013 4:25 pm

So-Scared, I never heard that about running. I have a pump and nobody said anything to me about that. I sometimes like to jog for just a couple of miles. Was there any other kind of exercise your husband was banned from?

Paula,
I will be there on the 25th and, if I decide to go ahead with Dr. K's study, on the 9th as well. Otherwise not till 10/30.

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

radnyc
Posts: 439
Joined: Tue Apr 06, 2010 6:32 pm

Re: 53rd St. gang a.k.a. Nancy's kids

Postby radnyc » Sun Sep 22, 2013 5:24 pm

I'll be there late october for pump maintenance. As to the running, I was never told not to. Obviously you have to give time for things to heal up right before you do any exercise. I have run more miles in the last three years than I had in the past 10, I credit exercise greatly with my being healthy. Keep on sweatin' is good for you!

Al
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15


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