Liver Resection! (Brought to you by Dr. K/MSK)

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FightMode
Posts: 22
Joined: Wed Dec 05, 2012 12:39 am

Liver Resection! (Brought to you by Dr. K/MSK)

Postby FightMode » Wed Sep 11, 2013 5:10 pm

Hi All,
I just wanted to share with you yet another good news story made possible by Dr. Kemeny as well as the wonderful surgery team at MSKCC. My Dad who was diagnosed with multiple scattered inoperable liver mets in Dec. (following a misdiagnosis of "only" stage II CRC several months prior) had ALL visible tumors resected from his liver yesterday. It was an 8 hour surgery in which they also removed his primary. His surgeons were Drs. DeMatteo and Garcia-Aguilar. He had the HAI pump installed in April after a few rounds of FOLFOX did nothing to get him resectable. For 4 months he had systemic infusions of FOLFIRI every couple of weeks with just a few infusions of FUDR in his HAI pump (due the the jump in liver enzymes from the FUDR he didn't get full doses each month). But in just 4 months Dr. K got the the team together to review his case again after seeing wonderful results on the scans and they deemed him operable! That was less than a month ago, and now he's recovering on the 15th floor.

I thought it was important to post this note for everybody because without the Colon Club and a lot of research and persistence by our family, we simply wouldn't be here (and by here I mean physically here in NYC or here in the greater sense of his much improved prognosis). I am certainly frustrated that other major cancer centers seem resistant to implementing protocols similar to Dr. K's; not only are the data quite strong, but we witnessed first hand what this pump did and will continue to do for my Dad. We feel lucky that we got here early in the course of his treatment, but a bit shocked that had we not pushed for this early it probably never would have happened. As I understand it, the HAI pump works best when used before other cocktails have failed. The people on this board have been an invaluable resource for me in understanding all of this, and I'm still a newbie but certainly happy to answer any questions I can for others.
-E
Daughter of Dad (age 61) with CRC
8/12 misdiagnosed 2a, 12/12 diagnosed stage IV liver mets
4 rounds FOLFOX/Avastin
4/13 HAI Pump Installed at MSKCC, FOLFIRI/FUDR
9/10/13 Liver/Primary Resection - NED
2/14 Stopped Chemo, 4/14 Reversal

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby so-scared » Wed Sep 11, 2013 6:13 pm

I can not begin to express how happy I am to read this!!! Your dad's story is amazing! He got to resection so fast!! I am so happy for you guys! Give your mom a hug from me! I hope that your dad has a quick and uneventful recovery so he can go enjoy his new lease on life!! :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby juliej » Wed Sep 11, 2013 6:30 pm

Fantastic news! :D Tell your dad he has people rooting for him here on the Colon Club!

I remember the 15th floor well. I hope his nurses are as nice as mine were. Tell him to walk, walk, and walk some more. About half way around the floor, there's a little kitchen that has orange juice, etc. At the beginning I'd stop there for a breather and drink a glass of oj to keep my energy up. Then my laps got faster and faster and the nurses teased me that I was in a race! There are movies on the patient rec floor if he gets tired of watching tv. Hopefully, he'll be walking out of there in just a few days -- cancer free! :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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O Stoma Mia
Posts: 1603
Joined: Sat Jun 22, 2013 6:29 am

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby O Stoma Mia » Wed Sep 11, 2013 6:48 pm

FightMode wrote:... I just wanted to share with you yet another good news story made possible by Dr. Kemeny as well as the wonderful surgery team at MSKCC...
I thought it was important to post this note for everybody because without the Colon Club and a lot of research and persistence by our family, we simply wouldn't be here.


Hi FightMode - Emily, thanks very much for posting this very encouraging report. I hope I never get to the point where I have to deal with liver mets, but if I do, I know who I should try to contact: Dr. Nancy Kemeny and her team
Nancy E. Kemeny, MD
Ronald DeMatteo, MD, FACS
Julio Garcia-Aguilar, MD, PhD.
.
Last edited by O Stoma Mia on Wed Sep 11, 2013 11:38 pm, edited 1 time in total.

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby Cb75 » Wed Sep 11, 2013 7:45 pm

Great news.
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby Badass » Wed Sep 11, 2013 9:04 pm

In jfk now, flying home from my appointment with Dr. K. two weeks post-resection. Great news about your Dad!

This
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

FightMode
Posts: 22
Joined: Wed Dec 05, 2012 12:39 am

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby FightMode » Wed Sep 11, 2013 10:47 pm

Thank you all for your very encouraging words. DeAnn you and Scott have been so inspiring and helpful ! And Julie you've been such a wonderful cheerleader and advisor as well. My Dad isn't so into the idea of the Internet forum thing, but I literally just read him your words of support and he really liked that -- he said "while some of them may be strangers they're certainly not strange bedfellows." I found that to be a little to articulate for 24 hours post up so told him to hit the pain pump again. The nurses are just wonderful. He is pretty sore though with a long road ahead and we'll certainly take all the good energy/thoughts/healing vibes/dizzy chickens/prayers you'll throw at us.
-Emily
Daughter of Dad (age 61) with CRC
8/12 misdiagnosed 2a, 12/12 diagnosed stage IV liver mets
4 rounds FOLFOX/Avastin
4/13 HAI Pump Installed at MSKCC, FOLFIRI/FUDR
9/10/13 Liver/Primary Resection - NED
2/14 Stopped Chemo, 4/14 Reversal

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Kathryn in MN
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Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
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Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby Kathryn in MN » Wed Sep 11, 2013 11:49 pm

Great news!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

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O Stoma Mia
Posts: 1603
Joined: Sat Jun 22, 2013 6:29 am

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby O Stoma Mia » Thu Sep 12, 2013 12:02 am

FightMode wrote:... we'll certainly take all the good energy/thoughts/healing vibes/dizzy chickens/prayers you'll throw at us.
-Emily


Hi Emily - We'll be praying for you all Image --- and here are a couple of chickens, if that's what you prefer...


Image Image
.
.

SeansWifeDenise
Posts: 62
Joined: Tue May 17, 2011 5:50 pm

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby SeansWifeDenise » Thu Sep 12, 2013 11:33 am

So great, hope your Dad is feeling better and stronger every day!
Husband Sean diag 3/11 @ 44 Stage IV
Colon resection 4/11 Columbia Univ.
liver mets; MSKCC; Liver resect & HAI pump 3/12.
12/12 chemo break; 4/13 spot on lung; ablation.
Erbitux. 11/13 liver ablation. Still on chemo

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ptfly
Posts: 392
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Facebook Username: Paul Turley little rock, ar
Location: Little Rock, AR
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Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby ptfly » Thu Sep 12, 2013 11:40 am

I could not be happier for you! :D
Husband to Tracie with stage 4 CC. Liver Mets
DX 5-10-13. C resection 5-17-13. 5/17 LN
FOLFOX+AVI 6-11 thru 9-19-13
HAI pump on 10/31/2013 :) Stopped 9/14 :(
https://www.facebook.com/paul.turley.92
Passed peacefully in my arms at home on 11/11/14

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very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby very worried husband » Thu Sep 12, 2013 11:43 am

Fantastic news. Thanks for sharing.
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby vickitwo » Thu Sep 12, 2013 12:09 pm

Great to hear your good news!
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

pfCml73183
Posts: 653
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Facebook Username: Celeste Marie Comeau
Location: FL

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby pfCml73183 » Thu Sep 12, 2013 12:10 pm

Hooray for your Dad. Glad to hear this very good news and it appears he is in good hands.
God bless you all.
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

marilyn
Posts: 8
Joined: Fri Jul 26, 2013 6:38 pm

Re: Liver Resection! (Brought to you by Dr. K/MSK)

Postby marilyn » Thu Sep 12, 2013 6:34 pm

That is wonderful news! I am very happy to hear this. I have researched Dr. Kemeny and her treatment methods. My next step is to get a copy of all my records and contact her for an appointment.
Diagnosed Stage IV Rectal Cancer 11/12.
Mets Liver
Folfox 12/12 - 3/13; 50% tumor shrinkage. Liver mets gone.
Radiation/Xeloda 5/13.
CT/PET/Endoscopy/Biopsy 7/13; no cancer cells found primary tumor; 4 new liver mets.
8/13 - 9/13. Folfox.


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