My wonderful husband, Eli, died this morning. His liver failure progressed, the elevated bilirubin progressed, jaundice, ascites, draining, and then hospice.
I've been thinking back on our journey since 2007. I think my best advice would be not to think you have no time for second opinions or longer consideration when it's time for a hard decision.
I can't tell you how important this group has been for me along the way.
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.