Unfortunately, bad news

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gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Unfortunately, bad news

Postby gep » Tue Jul 30, 2013 10:08 pm

My wonderful husband, Eli, died this morning. His liver failure progressed, the elevated bilirubin progressed, jaundice, ascites, draining, and then hospice.
I've been thinking back on our journey since 2007. I think my best advice would be not to think you have no time for second opinions or longer consideration when it's time for a hard decision.
I can't tell you how important this group has been for me along the way.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

srwl21901
Posts: 136
Joined: Tue Mar 12, 2013 12:29 pm

Re: Unfortunately, bad news

Postby srwl21901 » Tue Jul 30, 2013 10:29 pm

I'm fairly new to this forum but want to express my sympathy for your loss and sounds like difficult journey.
Stage 3
Rectal cancer
DX 2/20/13
LAR 3/27/13
Xeloda (canceled)
Oxaliplatin
Port placed on May 8, 2013
Folfox6
Stage IV metastasis in lymph nodes
Seeking treatment now

gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: Unfortunately, bad news

Postby gep » Tue Jul 30, 2013 10:38 pm

Thanks for the note. I think you'll find that signing up and reading the posts on the board (current and archived) will be a great adjunct to your treatment.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Unfortunately, bad news

Postby Guinevere » Tue Jul 30, 2013 10:42 pm

Gloria,
I'm so sorry and pray that you will have peace, mercy and grace during the coming days, weeks and months.
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Unfortunately, bad news

Postby NWgirl » Tue Jul 30, 2013 10:45 pm

You have my deepest and most sincere sympathy. Your husband was diagnosed shortly before I was. I was diagnosed 3c in October 2007. 2007 does not seem to be a good year lately for being diagnosed. My next PET is in August. We'll see.

I want to let you know how grateful I am for your husbands participation in clinical trials. It is heart breaking that they did not work for him - but it has paved the way for better treatments down the road. All information gained from clinical trials - even those that don't work - yield valuable information for future trials and treatments.

Your husband is now at peace. May you too find the peace you so deserve.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: Unfortunately, bad news

Postby Rockovage » Tue Jul 30, 2013 10:55 pm

My condolences on the passing of your husband .

May he rest in peace
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

Hall0731
Posts: 295
Joined: Sat Sep 08, 2012 1:55 pm
Facebook Username: Teresa Hall
Location: Spring, Tx ( right outside Houston)

Re: Unfortunately, bad news

Postby Hall0731 » Tue Jul 30, 2013 11:18 pm

I am so sorry for your loss. May peace and healing find you in this time of need.
Dx 7/12 stage 3
8/13 1 lung met & 5 liver mets
1/14 2 sided liver wedge resection
3/14 lung wedge resection
10/14 It's back. 1 liver lesion
2nd liver resect. 1/5/15 Clean
5/22/15 back again 5-10 lung mets

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: Unfortunately, bad news

Postby Laurettas » Tue Jul 30, 2013 11:42 pm

Gloria, I am so sorry to hear this news. You and Eli have had a long battle with this disease. I hope for peace for you and your family in the coming days.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Unfortunately, bad news

Postby skypup » Wed Jul 31, 2013 12:51 am

My sincere condolences on Eli's passing. May you find peace, rest and comfort. Thank you for being a caregiver.

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WorriedWife
Posts: 1125
Joined: Tue Jul 24, 2012 5:41 pm

Re: Unfortunately, bad news

Postby WorriedWife » Wed Jul 31, 2013 1:34 am

I am so, so sorry for the loss of your husband. I pray you have the strength to get through this very difficult time. My heart just aches for you.
Hubby
CC Stg. 2b
Dx 6/12
surgery & reconnect
opted out Folfox
Pet Scan Aug NED
abscess/fistula for over a year
ongoing Dec 2013
Praying for each and every one of you

User avatar
CRguy
Posts: 10229
Joined: Sun Feb 10, 2008 6:00 pm

Re: Unfortunately, bad news

Postby CRguy » Wed Jul 31, 2013 1:47 am

Prayers and my sincere sympathies for your loss Gloria.
Thank you for being part of our community.

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

rcap

Re: Unfortunately, bad news

Postby rcap » Wed Jul 31, 2013 2:21 am

Gloria I am very sorry for your loss.I am praying for peace and strength in your heart.GOD BLESS.

rcap

dh 59
dx jan/13 stage 4 cc
8th treatment folfox/avastin

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Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: Unfortunately, bad news

Postby Kathryn in MN » Wed Jul 31, 2013 2:46 am

My condolences on the loss of your husband. I hope the memories of good times you had together bring you some comfort in the coming days as you adjust to life without him hear on Earth with you.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

gep
Posts: 418
Joined: Wed Aug 19, 2009 6:21 pm
Location: Chicago, IL

Re: Unfortunately, bad news

Postby gep » Wed Jul 31, 2013 7:50 am

Thanks so much, everyone.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Unfortunately, bad news

Postby BrownBagger » Wed Jul 31, 2013 8:16 am

My sincere condolences.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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