Throwing in the towel

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DaniMags
Posts: 105
Joined: Tue Nov 01, 2011 2:10 pm
Facebook Username: Dani Johnson Magnuson
Location: Lehigh Valley, PA

Throwing in the towel

Postby DaniMags » Thu Jul 18, 2013 10:46 pm

With many tears and alot of talking, I have decided I can't do this anymore. Guess it kind of helps that there are no treatments either. I had such an agonizing Monday nite that I made my mind up. I was filled once again with ascites (drained twice in the last four weeks) but I also have lung damage from my previous tx (tdm-1) and mets. It is so hard to breathe and it really frightened me a few times. If that's not enough my left foot is totally swollen. Doc sent me for an ultrasound to rule out a clot. Negative on that but my artery is almost totally shut down from my foot to thigh. I haven't quite decided to call Hospice yet as my husband will be bringing our bed downstairs this weekend and rearranging things for the comfort of guests. Doc is working on getting an abdominal drain to be accessed at home.

One thing I must say, I thought telling my mother I had cancer was the hardest thing I would have to do but this, this....takes the cake especially since my younger sister is right behind me.

I'll still be on reading every night and keep you all updated.

God be with you all,
Dani
DX 12/09 St IIIC
1/10-6/10 FOLFOX
9/11 mets omentum/abd; 10/11 FOLFOX/Erb
1/12 Alimta/Herc
3/12 mets to liver -FOLFOX/Erb
5/12 FOLFIRI/Erb
8/12 FOLFIRI/Avastin, 1/13-Temodar/Avastin
3/13 widespread progr inc. lungs
4/13 - Stivarga (failed)

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Ashlee H.
Posts: 2435
Joined: Fri Oct 09, 2009 11:50 pm
Location: Southern California

Re: Throwing in the towel

Postby Ashlee H. » Thu Jul 18, 2013 11:06 pm

Dani - I was so sorry to read your thread. But, you know we "get it" and support you. I've learned so much from this group, and one of those things have been that I want to make the choices at the end. I hate that you are in the end stage - but so happy you have loved ones to surround you on the final journey. May they keep you comfortable and out of pain. Your race may be coming to an end, but what a race you have run! You are a hero to many. Your life has mattered. You made a difference in this world.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

Traffic_Dude
Posts: 52
Joined: Tue Jan 10, 2012 2:35 pm

Re: Throwing in the towel

Postby Traffic_Dude » Thu Jul 18, 2013 11:35 pm

I want to thank you for your post. I'm not there yet but your words have helped me understand my potential end point a little better and some of the stuff i might face in the future. Thank you for taking the time to send it even though it probably sucked writing it out. Very courageous.

God bless Dani. I'm wishing you the best at this point and will be thinking of you.

Tim

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Throwing in the towel

Postby NWgirl » Fri Jul 19, 2013 12:37 am

That has got to be the most agonizing decision you will ever have to make. I have such respect for your strength and courage to say "enough". Many of us will reach that point and have to make the same decision. Please know you are in my thoughts and prayers.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Throwing in the towel

Postby tammylayne » Fri Jul 19, 2013 7:53 am

Sending you the most gentle hugs and strongest thoughts as you face this next step of your journey. I wish you lots of pain free time surrounded by all who you love and that love you.

Please always know that your CC family are thinking of you...always...
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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tchan8888
Posts: 208
Joined: Mon Mar 25, 2013 8:41 pm
Location: San Francisco Bay Area

Re: Throwing in the towel

Postby tchan8888 » Fri Jul 19, 2013 8:18 am

Dani,

Thank you so much for sharing your difficult decision. You have displayed amazing strength and inspiration. Thank you again.

Be blessed,

Tom
Tom, 49 now
12/12 Right Hemicolectomy 2X (29 days in hospital)
12/12 Stage IV: multiple distant LN; no organs
20X: FOLFIRI (stopped working)
8X: 5FU
8X: FOLFOX and Avastin
2016: Clinical trial pembrozilumab MSI high

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Throwing in the towel

Postby skypup » Fri Jul 19, 2013 8:42 am

Dear Dani,
I add my thanks to you for leading those of us who will be following by your example of how to fight well and hard, and then have the wisdom and courage to say enough. May they find ways to make you comfortable so you can engage in this next part of the journey. Thank you for staying in touch, it means a lot to me to share our humanity over these electron beams--I want to support you and it keeps me from feeling alone in all this, as well.
About hospice, they are for the last six months (or more), not just the last couple of weeks, and are able to bring much comfort to people, including offering volunteers who can give caregivers a break or can run errands, etc. If you have a good one available, you might want to give them a try.
Gentlest hugs.

SoConfused
Posts: 1027
Joined: Mon Jan 30, 2012 2:40 pm

Re: Throwing in the towel

Postby SoConfused » Fri Jul 19, 2013 9:32 am

Dani - I am thinking about you and your family ... and sending you all prayers for peace and comfort during this difficult time. I don't think you're throwing in the towel at all ... you've lived with your disease with grace and dignity, and are proactively managing your care by deciding what is the most appropriate step for you now.
Stage IV CC

luvmymom
Posts: 278
Joined: Thu Nov 22, 2012 9:51 am

Re: Throwing in the towel

Postby luvmymom » Fri Jul 19, 2013 9:43 am

Sending you love.
Daughter of mom dx @ 68, Stage IIIB (T3N1) rectal.
Colonoscopy 11/19/12. Dx adenocarcinoma 11/28/12.
LAR 1/2/13. Port 2/4/13.
2-7/13: FOLFOX6 (4x). Xeloda+radiation (28x). FOLFOX6 (4 tx).
9/25/13--1st CT post-tx. NED.
http://sunrainlilies.wordpress.com/

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Throwing in the towel

Postby janklo » Fri Jul 19, 2013 9:54 am

Sorry you have reached this state, but I hope for pain free days with your loved ones ahead.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Lisahopes
Posts: 328
Joined: Wed Oct 17, 2012 2:09 pm

Re: Throwing in the towel

Postby Lisahopes » Fri Jul 19, 2013 10:18 am

Dani I am so sorry that you have reached this point in your journey.

Please ensure that you are well taken care of and surrounded by family and friends.

I wish you peace on this part of your journey.
Daughter to Mom, 65, Stage IV with mets to liver, lungs and peri.
Dx 2006, Stage II.
Regular check October 2011, Stage IV established.
She has had Oxi, Folfox and Xeloda, now Avastin.
Progression.
Mom died on April 5th 2013.

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Throwing in the towel

Postby Guinevere » Fri Jul 19, 2013 10:20 am

I'm so very sorry it's gotten to this point but, like someone else here said, we get it. I hope you can get hospice for comfort and to give your caregivers a break. Please know you're a blessing here and always have been.

God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

scattered edge
Posts: 405
Joined: Sun Jul 31, 2011 6:45 pm
Facebook Username: Rosie Englebert-Elmore

Re: Throwing in the towel

Postby scattered edge » Fri Jul 19, 2013 10:53 am

Thanks for sharing with us, Dani. I respect you and admire your grace and courage. May your days and nights be filled with comfort and love.

Rosie
resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

concernedrelative
Posts: 322
Joined: Tue May 17, 2011 1:33 pm

Re: Throwing in the towel

Postby concernedrelative » Fri Jul 19, 2013 11:25 am

DaniMags- I so respect your decision. Watching my wife's side effects increase (in her primary site) and the Regorafenib cause fatigue and hand/foot soreness for now, I question how much more she will be able to handle without being heavily medicated. I pray she has the same presence of mind as you do when the time is right.

Wishing you our very best, Concerned Relative
Crgvr to 37 y.o. DW
3/11 Dx IV w mets lungs, xeloxi/avastin
8/12 switch irino/avastin
4/13 2nd line failed
6/13 imprime pgg trial failed
7/13 stivarga started/failed
9/13 folfiri+erb
Lost her valiant and noble fight 022114

Tmitchelltotammielee

Re: Throwing in the towel

Postby Tmitchelltotammielee » Fri Jul 19, 2013 10:34 pm

Dani,
Thank you for sharing your decision with all of us. I hope you find peace as you enter this phase of your journey. My thoughts and prayers are with you and your family.
Tammie


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